Steffens Scleroderma Foundation

Steffens Scleroderma Foundation www.steffens-scleroderma.org Ann's nature was to help others, and she participated in several research studies throughout her life.

The Steffens Scleroderma Foundation was formed in memory of Ann Steffens who was diagnosed with scleroderma in 1984 and passed away in 1997. Her mother Helen Polenz donated the funds to create the research center in the hope of sparing others the pain of losing a loved one to this disease.

๐ƒ๐ซ๐ž๐š๐ฆ๐ข๐ง๐  ๐จ๐Ÿ ๐ญ๐ก๐ข๐ฌ ๐ฅ๐ž๐ฏ๐ž๐ฅ ๐จ๐Ÿ ๐œ๐จ๐ณ๐ฒ? ๐Ÿ˜ดYou could win this stunning magnolia quilt set and transform your bedroom into a peacef...
11/20/2025

๐ƒ๐ซ๐ž๐š๐ฆ๐ข๐ง๐  ๐จ๐Ÿ ๐ญ๐ก๐ข๐ฌ ๐ฅ๐ž๐ฏ๐ž๐ฅ ๐จ๐Ÿ ๐œ๐จ๐ณ๐ฒ? ๐Ÿ˜ด

You could win this stunning magnolia quilt set and transform your bedroom into a peaceful sanctuary! Makes a wonderful gift too.

Imagine curling up with a good book and a cup of tea under this beauty. ๐‘ป๐’‰๐’† ๐’”๐’๐’†๐’†๐’‘๐’Š๐’๐’ˆ ๐’Œ๐’Š๐’•๐’•๐’š ๐’Š๐’”๐’'๐’• ๐’Š๐’๐’„๐’๐’–๐’…๐’†๐’…, ๐’ƒ๐’–๐’• ๐’•๐’‰๐’† ๐’˜๐’‚๐’“๐’Ž๐’•๐’‰ ๐’Š๐’”! ๐Ÿงก

Every ticket you buy helps fund research and support for those affected by scleroderma.

๐ŸŽŸ๏ธ ๐‘๐ž๐š๐๐ฒ ๐ญ๐จ ๐ฐ๐ข๐ง ๐š๐ง๐ ๐ฆ๐š๐ค๐ž ๐š ๐๐ข๐Ÿ๐Ÿ๐ž๐ซ๐ž๐ง๐œ๐ž?


๐‚๐ฅ๐ข๐œ๐ค ๐ญ๐ก๐ž ๐ฅ๐ข๐ง๐ค ๐ญ๐จ ๐ ๐ž๐ญ ๐ฒ๐จ๐ฎ๐ซ ๐ซ๐š๐Ÿ๐Ÿ๐ฅ๐ž ๐ญ๐ข๐œ๐ค๐ž๐ญ๐ฌ ๐ญ๐จ๐๐š๐ฒ! https://go.rallyup.com/steffens/Campaign/Details

๐‘ซ๐’๐’'๐’• ๐’˜๐’‚๐’Š๐’• โ€“ ๐’•๐’‰๐’Š๐’” ๐’…๐’“๐’†๐’‚๐’Ž ๐’’๐’–๐’Š๐’๐’• ๐’…๐’†๐’”๐’†๐’“๐’—๐’†๐’” ๐’‚ ๐’‰๐’๐’Ž๐’† ๐’‡๐’Š๐’๐’๐’†๐’… ๐’˜๐’Š๐’•๐’‰ ๐’‰๐’†๐’‚๐’“๐’•!

๐๐จ๐ฏ๐ž๐ฆ๐›๐ž๐ซ ๐ˆ๐ฌ ๐‚๐š๐ซ๐ž๐ ๐ข๐ฏ๐ž๐ซ๐ฌ ๐€๐ฐ๐š๐ซ๐ž๐ง๐ž๐ฌ๐ฌ ๐Œ๐จ๐ง๐ญ๐กWe honor the millions of Americans who provide care, particularly those supporting...
11/15/2025

๐๐จ๐ฏ๐ž๐ฆ๐›๐ž๐ซ ๐ˆ๐ฌ ๐‚๐š๐ซ๐ž๐ ๐ข๐ฏ๐ž๐ซ๐ฌ ๐€๐ฐ๐š๐ซ๐ž๐ง๐ž๐ฌ๐ฌ ๐Œ๐จ๐ง๐ญ๐ก

We honor the millions of Americans who provide care, particularly those supporting loved ones battling scleroderma and Degos disease.

Caring for someone with a complex illness can bring significant emotional, physical and financial strain. Caregivers are heroes, and their dedication deserves support.

๐“๐ก๐ซ๐ž๐ž ๐–๐š๐ฒ๐ฌ ๐˜๐จ๐ฎ ๐‚๐š๐ง ๐’๐ฎ๐ฉ๐ฉ๐จ๐ซ๐ญ ๐€ ๐‚๐š๐ซ๐ž๐ ๐ข๐ฏ๐ž๐ซ:
Ask โ€œ๐‘€๐‘Ž๐‘ฆ ๐ผ ๐‘๐‘Ÿ๐‘–๐‘›๐‘” ๐‘‘๐‘–๐‘›๐‘›๐‘’๐‘Ÿ ๐‘‡๐‘ข๐‘’๐‘ ๐‘‘๐‘Ž๐‘ฆ?โ€ It can be more effective than โ€œ๐ฟ๐‘’๐‘ก ๐‘š๐‘’ ๐‘˜๐‘›๐‘œ๐‘คโ€ฆโ€
Keep inviting them! An invitation fights isolation, even if they canโ€™t attend.
A thoughtful card or simple text reminds them their efforts are seen.

๐…๐ข๐ง๐ ๐„๐ฑ๐ญ๐ž๐ซ๐ง๐š๐ฅ ๐‘๐ž๐ฌ๐จ๐ฎ๐ซ๐œ๐ž๐ฌ (support groups, education, etc.):
https://www.steffens-scleroderma.org/external-resources

๐’๐ข๐ ๐ง ๐ฎ๐ฉ ๐Ÿ๐จ๐ซ ๐Ž๐ฎ๐ซ ๐๐ž๐ฐ๐ฌ๐ฅ๐ž๐ญ๐ญ๐ž๐ซ ๐Ÿ๐จ๐ซ ๐”๐ฉ๐๐š๐ญ๐ž๐ฌ ๐š๐ง๐ ๐‚๐จ๐ง๐ง๐ž๐œ๐ญ๐ข๐จ๐ง:
https://www.steffens-scleroderma.org/news

If you are a caregiver, know that your work is seen and valued.
We stand with you. Thank you for all that you do.

๐‘พ๐’Š๐’ ๐’•๐’‰๐’† ๐‘ด๐’‚๐’“๐’—๐’†๐’๐’๐’–๐’” ๐‘ด๐’‚๐’ˆ๐’๐’๐’๐’Š๐’‚ ๐‘ธ๐’–๐’Š๐’๐’•!The magnolia flower is a symbol of ๐ฉ๐ž๐ซ๐ฌ๐ž๐ฏ๐ž๐ซ๐š๐ง๐œ๐ž and ๐ ๐ซ๐š๐œ๐žโ€”a perfect tribute to the stre...
11/15/2025

๐‘พ๐’Š๐’ ๐’•๐’‰๐’† ๐‘ด๐’‚๐’“๐’—๐’†๐’๐’๐’–๐’” ๐‘ด๐’‚๐’ˆ๐’๐’๐’๐’Š๐’‚ ๐‘ธ๐’–๐’Š๐’๐’•!

The magnolia flower is a symbol of ๐ฉ๐ž๐ซ๐ฌ๐ž๐ฏ๐ž๐ซ๐š๐ง๐œ๐ž and ๐ ๐ซ๐š๐œ๐žโ€”a perfect tribute to the strength shown by those living with scleroderma.

This beautiful magnolia quilt is the final prize in our Holiday Quilt Raffle! Imagine bringing this treasure of elegance and comfort into your home or gifting it to someone special!

๐–๐ก๐ž๐ง ๐ฒ๐จ๐ฎ ๐›๐ฎ๐ฒ ๐š ๐ญ๐ข๐œ๐ค๐ž๐ญ, ๐ฒ๐จ๐ฎ ๐๐จ ๐ญ๐ก๐ซ๐ž๐ž ๐ญ๐ก๐ข๐ง๐ ๐ฌ:

โœ… You enter to win this magnificent quilt.
โœ… You embody the essence of perseverance and grace.
โœ… You fund crucial research and vital support services.

Purchasing a raffle ticket translates into real help and real progress in the persistent fight against scleroderma. Support our mission and enter to win this magnificent quilt today!

๐๐ฎ๐ซ๐œ๐ก๐š๐ฌ๐ž ๐ซ๐š๐Ÿ๐Ÿ๐ฅ๐ž ๐ญ๐ข๐œ๐ค๐ž๐ญ๐ฌ ๐ก๐ž๐ซ๐ž: https://go.rallyup.com/steffens/Campaign/Details

โณ ๐‰๐ฎ๐ฌ๐ญ ๐š ๐œ๐จ๐ฎ๐ฉ๐ฅ๐ž ๐จ๐Ÿ ๐ก๐จ๐ฎ๐ซ๐ฌ ๐ฅ๐ž๐Ÿ๐ญ!  The clock is ticking! Don't miss your chance to bring this cozy holiday classic home and...
11/14/2025

โณ ๐‰๐ฎ๐ฌ๐ญ ๐š ๐œ๐จ๐ฎ๐ฉ๐ฅ๐ž ๐จ๐Ÿ ๐ก๐จ๐ฎ๐ซ๐ฌ ๐ฅ๐ž๐Ÿ๐ญ!

The clock is ticking! Don't miss your chance to bring this cozy holiday classic home and contribute to crucial research.

As soon as the poinsettia quilt raffle closes tonight, the final quilt in our series will be revealed and its raffle will begin!

๐ŸŽ ๐๐ฎ๐ซ๐œ๐ก๐š๐ฌ๐ž ๐ฒ๐จ๐ฎ๐ซ ๐ซ๐š๐Ÿ๐Ÿ๐ฅ๐ž ๐ญ๐ข๐œ๐ค๐ž๐ญ๐ฌ ๐ง๐จ๐ฐ: https://go.rallyup.com/steffens/Campaign/Details

๐‹๐ž๐ญโ€™๐ฌ ๐ฐ๐ซ๐š๐ฉ ๐ญ๐ก๐ข๐ฌ ๐ฌ๐ž๐š๐ฌ๐จ๐ง ๐ข๐ง ๐ฐ๐š๐ซ๐ฆ๐ญ๐ก ๐š๐ง๐ ๐ฉ๐ฎ๐ซ๐ฉ๐จ๐ฌ๐ž.

โฐ ๐‹๐š๐ฌ๐ญ ๐‚๐š๐ฅ๐ฅ!  ๐“๐Ž๐ƒ๐€๐˜ ๐ข๐ฌ ๐ฒ๐จ๐ฎ ๐ฅ๐š๐ฌ๐ญ ๐œ๐ก๐š๐ง๐œ๐ž ๐ญ๐จ ๐ฐ๐ข๐ง ๐ญ๐ก๐ž ๐‡๐จ๐ฅ๐ข๐๐š๐ฒ ๐๐จ๐ข๐ง๐ฌ๐ž๐ญ๐ญ๐ข๐š ๐๐ฎ๐ข๐ฅ๐ญ! โฐThis stunning quilt is ready to be snuggled...
11/14/2025

โฐ ๐‹๐š๐ฌ๐ญ ๐‚๐š๐ฅ๐ฅ! ๐“๐Ž๐ƒ๐€๐˜ ๐ข๐ฌ ๐ฒ๐จ๐ฎ ๐ฅ๐š๐ฌ๐ญ ๐œ๐ก๐š๐ง๐œ๐ž ๐ญ๐จ ๐ฐ๐ข๐ง ๐ญ๐ก๐ž ๐‡๐จ๐ฅ๐ข๐๐š๐ฒ ๐๐จ๐ข๐ง๐ฌ๐ž๐ญ๐ญ๐ข๐š ๐๐ฎ๐ข๐ฅ๐ญ! โฐ

This stunning quilt is ready to be snuggled!
It could be yours just in time for the holidays, but the ticket sales close soon!

Your participation directly benefits the Steffens Scleroderma Foundation and the Degos Disease Foundation. The funds raised are crucial for supporting those battling these conditions.

Let's make this the most successful raffle yet! ๐‘๐š๐Ÿ๐Ÿ๐ฅ๐ž ๐œ๐ฅ๐จ๐ฌ๐ž๐ฌ ๐…๐ซ๐ข๐๐š๐ฒ ๐š๐ญ ๐Ÿ• ๐.๐Œ. ๐„๐’๐“!

๐๐ฎ๐ซ๐œ๐ก๐š๐ฌ๐ž ๐ญ๐ข๐œ๐ค๐ž๐ญ๐ฌ ๐ก๐ž๐ซ๐ž: https://go.rallyup.com/steffens/Campaign/Details

Thank you for supporting vital research and making a difference!

๐™Ž๐™ค๐™ข๐™š ๐™œ๐™ž๐™›๐™ฉ๐™จ ๐™–๐™ง๐™š๐™ฃโ€™๐™ฉ ๐™ฌ๐™ง๐™–๐™ฅ๐™ฅ๐™š๐™™ โ€” ๐™ฉ๐™๐™š๐™ฎโ€™๐™ง๐™š ๐™จ๐™ฉ๐™ž๐™ฉ๐™˜๐™๐™š๐™™.  This poinsettia quilt carries the spirit of the season in every thread: w...
11/13/2025

๐™Ž๐™ค๐™ข๐™š ๐™œ๐™ž๐™›๐™ฉ๐™จ ๐™–๐™ง๐™š๐™ฃโ€™๐™ฉ ๐™ฌ๐™ง๐™–๐™ฅ๐™ฅ๐™š๐™™ โ€” ๐™ฉ๐™๐™š๐™ฎโ€™๐™ง๐™š ๐™จ๐™ฉ๐™ž๐™ฉ๐™˜๐™๐™š๐™™.

This poinsettia quilt carries the spirit of the season in every thread: warmth, beauty and the quiet comfort of knowing someone cares.

Itโ€™s the kind of gift that turns a chair into a haven, a chilly evening into a moment of peace.

When you enter our Holiday Quilt Raffle, youโ€™re helping bring that same comfort to those living with scleroderma through research, support and community.

Let this season be about more than giving. Let it be about lifting others up.

๐Ÿงต ๐„๐ง๐ญ๐ž๐ซ ๐ญ๐ก๐ž ๐ซ๐š๐Ÿ๐Ÿ๐ฅ๐ž: https://go.rallyup.com/steffens/Campaign/Details

Ohโ€ฆ and donโ€™t wait too long! The poinsettia quilt raffle ๐œ๐ฅ๐จ๐ฌ๐ž๐ฌ this ๐…๐ซ๐ข๐๐š๐ฒ, ๐๐จ๐ฏ๐ž๐ฆ๐›๐ž๐ซ ๐Ÿ๐Ÿ’ ๐š๐ญ ๐Ÿ• ๐ฉ.๐ฆ. ๐„๐’๐“!

โ€œ๐–๐ˆ๐ ๐Œ๐„!โ€ ๐š๐ง๐ ๐ฐ๐š๐ซ๐ฆ ๐ฌ๐จ๐ฆ๐ž๐จ๐ง๐žโ€™๐ฌ ๐ก๐ž๐š๐ซ๐ญ ๐ญ๐ก๐ข๐ฌ ๐ก๐จ๐ฅ๐ข๐๐š๐ฒ.This stunning poinsettia quilt isnโ€™t just a festive prize โ€” itโ€™s a symbo...
11/12/2025

โ€œ๐–๐ˆ๐ ๐Œ๐„!โ€ ๐š๐ง๐ ๐ฐ๐š๐ซ๐ฆ ๐ฌ๐จ๐ฆ๐ž๐จ๐ง๐žโ€™๐ฌ ๐ก๐ž๐š๐ซ๐ญ ๐ญ๐ก๐ข๐ฌ ๐ก๐จ๐ฅ๐ข๐๐š๐ฒ.

This stunning poinsettia quilt isnโ€™t just a festive prize โ€” itโ€™s a symbol of comfort, care and community. Every ticket you purchase helps fund life-changing research and support for those living with scleroderma.

By entering our ๐‡๐จ๐ฅ๐ข๐๐š๐ฒ ๐๐ฎ๐ข๐ฅ๐ญ ๐‘๐š๐Ÿ๐Ÿ๐ฅ๐ž, youโ€™re not just giving yourself a chance to win, youโ€™re helping others find comfort, connection and the support they deserve.

๐–๐ซ๐š๐ฉ ๐ญ๐ก๐ž ๐ก๐จ๐ฅ๐ข๐๐š๐ฒ๐ฌ ๐ข๐ง ๐ก๐จ๐ฉ๐ž.

๐ŸŽ ๐„๐ง๐ญ๐ž๐ซ ๐ง๐จ๐ฐ: https://go.rallyup.com/steffens/Campaign/Details

11/04/2025

Wrap yourself in warmth and hope this holiday season.

Enter the Steffens Scleroderma Foundationโ€™s Winter Poinsettia Quilt Raffle and bring home a radiant symbol of comfort and care.

Each ticket supports life-changing research and awareness for those living with scleroderma.

๐ŸงตThe raffle closes Thursday, November 14 at 7 p.m. EST. Donโ€™t miss your chance to make a difference. โœจ

๐ŸŽŸ๏ธ Purchase tickets at: https://go.rallyup.com/steffens/Campaign/Details

11/04/2025

Wrap yourself in warmth and hope this holiday season.

Enter the Steffens Scleroderma Foundationโ€™s Winter Poinsettia Quilt Raffle and bring home a radiant symbol of comfort and care.

Each ticket supports life-changing research and awareness for those living with scleroderma.

๐ŸงตThe raffle closes Thursday, November 14 at 7 p.m. EST. Donโ€™t miss your chance to make a difference. โœจ

๐ŸŽŸ๏ธ Purchase tickets at: https://go.rallyup.com/steffens/Campaign/Details

11/02/2025
November is Pulmonary Arterial Hypertension (PAH) Awareness Month.Our mission is to advance research and understanding t...
11/02/2025

November is Pulmonary Arterial Hypertension (PAH) Awareness Month.

Our mission is to advance research and understanding to overcome the many complications our community faces. Your support helps us drive scientific collaboration.

Learn more about our research and how you can support our mission on our website.

https://www.steffens-scleroderma.org/our-research

Carla J. Gage
11/01/2025

Carla J. Gage

Dreaming of cozy nights and a warm touch of festive elegance?

Our beautiful ๐‘พ๐’Š๐’๐’•๐’†๐’“ ๐‘ท๐’๐’Š๐’๐’”๐’†๐’•๐’•๐’Š๐’‚ ๐’’๐’–๐’Š๐’๐’• raffle officially kicks off ๐“๐Ž๐๐ˆ๐†๐‡๐“ ๐š๐ญ ๐Ÿ– ๐๐Œ ๐„๐’๐“!

This exquisite queen-size quilt (90"x90") comes with two matching pillow covers (20"x30"), ready to bring a burst of holiday charm and comfort to your home. Perhaps a great holiday gift for someone special.

It's more than a quilt. It's an invitation to relaxation and beauty.

๐˜๐จ๐ฎ๐ซ ๐œ๐ก๐š๐ง๐œ๐ž ๐ญ๐จ ๐ฐ๐ข๐ง ๐ฌ๐ญ๐š๐ซ๐ญ๐ฌ ๐ข๐ง ๐ฃ๐ฎ๐ฌ๐ญ ๐š ๐Ÿ๐ž๐ฐ ๐ก๐จ๐ฎ๐ซ๐ฌ!

โžก๏ธ ๐‘ป๐’‰๐’† ๐‘ท๐’๐’Š๐’๐’”๐’†๐’•๐’•๐’Š๐’‚ ๐’’๐’–๐’Š๐’๐’• ๐’“๐’‚๐’‡๐’‡๐’๐’† ๐’ˆ๐’๐’†๐’” ๐’๐’Š๐’—๐’† ๐’‚๐’• ๐Ÿ– ๐’‘.๐’Ž. ๐‘ฌ๐‘บ๐‘ป: https://go.rallyup.com/steffens/Campaign/Details

Address

P. O. Box 38037
Albany, NY
12203

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