Steffens Scleroderma Foundation

Steffens Scleroderma Foundation www.steffens-scleroderma.org Ann's nature was to help others, and she participated in several research studies throughout her life.

The Steffens Scleroderma Foundation was formed in memory of Ann Steffens who was diagnosed with scleroderma in 1984 and passed away in 1997. Her mother Helen Polenz donated the funds to create the research center in the hope of sparing others the pain of losing a loved one to this disease.

People living with rare diseases carry challenges that most never see.Delayed diagnoses, limited treatment options and a...
02/23/2026

People living with rare diseases carry challenges that most never see.

Delayed diagnoses, limited treatment options and a lack of recognition shape so much of their daily reality. Rare Disease Day exists because these needs deserve attention now.

๐‘บ๐’‰๐’‚๐’“๐’Š๐’๐’ˆ ๐’•๐’‰๐’Š๐’” ๐’‘๐’๐’”๐’• helps more people understand what rare disease families face every day, and your voice can help move this mission forward.

Share this message, start a conversation or support the organizations working every day to push research and advocacy ahead. Every action brings meaningful change closer.

๐‘๐š๐ซ๐ž ๐ƒ๐ข๐ฌ๐ž๐š๐ฌ๐ž ๐ƒ๐š๐ฒ ๐ข๐ฌ ๐’๐š๐ญ๐ฎ๐ซ๐๐š๐ฒ, ๐…๐ž๐›๐ซ๐ฎ๐š๐ซ๐ฒ ๐Ÿ๐Ÿ–, ๐Ÿ๐ŸŽ๐Ÿ๐Ÿ”. This is a moment to stand with the rare disease community.

If you feel moved to support this work, there are two ways to give:

โ€ข Venmo at @๐’๐ญ๐ž๐Ÿ๐Ÿ๐ž๐ง๐ฌ-๐’๐œ๐ฅ๐ž๐ซ๐จ๐๐ž๐ซ๐ฆ๐š
โ€ข Online at https://www.paypal.com/donate/?hosted_button_id=CFF8BP5UB8PYJ

Today we recognize the caregivers who provide steady, compassionate support for people living with rare diseases. Their ...
02/20/2026

Today we recognize the caregivers who provide steady, compassionate support for people living with rare diseases.

Their work is demanding, often unseen, and essential. They make it possible for families to focus on love instead of logistics, and they bring comfort and dignity to some of lifeโ€™s hardest moments.

To every caregiver who gives their time, strength and heart so others can keep going, thank you.

If youโ€™d like to honor someone special, you can make a gift in their name through Venmo or at our donation link: https://www.paypal.com/donate/?hosted_button_id=CFF8BP5UB8PYJ.

The countdown to ๐–๐ข๐ง๐ญ๐ž๐ซโ€™๐ฌ ๐„๐ง๐ is officially on. ๐Ÿ๐ŸŽ ๐๐š๐ฒ๐ฌ ๐ญ๐จ ๐ ๐จ!We canโ€™t wait to welcome you to Sidelโ€™s Restaurant on ๐’๐ฎ๐ง๐...
02/19/2026

The countdown to ๐–๐ข๐ง๐ญ๐ž๐ซโ€™๐ฌ ๐„๐ง๐ is officially on. ๐Ÿ๐ŸŽ ๐๐š๐ฒ๐ฌ ๐ญ๐จ ๐ ๐จ!

We canโ€™t wait to welcome you to Sidelโ€™s Restaurant on ๐’๐ฎ๐ง๐๐š๐ฒ, ๐Œ๐š๐ซ๐œ๐ก ๐Ÿ, ๐Ÿ๐ŸŽ๐Ÿ๐Ÿ” for our Winterโ€™s End event.

This isn't just a fundraiser. Itโ€™s an afternoon of community, music and bringing hope and awareness to the forefront of our mission.

๐–๐ก๐š๐ญ ๐ญ๐จ ๐„๐ฑ๐ฉ๐ž๐œ๐ญ:
โœ” A full buffet and cash bar.
โœ” Dessert ๐˜ฃ๐˜ฆ๐˜ง๐˜ฐ๐˜ณ๐˜ฆ dinner in honor of Adam, who we lost to Degos Disease in 2014.
โœ” Entertainment by the talented Jeff Lewis.
โœ” Theresa Schofield-Slayton briefly shares her personal journey with Degos.
โœ” Raffles include Johnnie Walker Blue, a large basket of lottery tickets and more! ($10 per chance or $25 for 3 chances).

๐’๐ญ๐ž๐ฉ ๐Ÿ: ๐‘๐ž๐ ๐ข๐ฌ๐ญ๐ž๐ซ ๐จ๐ง๐ฅ๐ข๐ง๐ž: https://www.degosdisease.org/events/winters-end

๐’๐ญ๐ž๐ฉ ๐Ÿ: ๐‚๐ก๐จ๐จ๐ฌ๐ž ๐˜๐จ๐ฎ๐ซ ๐๐š๐ฒ๐ฆ๐ž๐ง๐ญ ๐Œ๐ž๐ญ๐ก๐จ๐:

๐‚๐ซ๐ž๐๐ข๐ญ ๐‚๐š๐ซ๐ ๐จ๐ซ ๐๐š๐ฒ๐๐š๐ฅ: Click ๐ƒ๐จ๐ง๐š๐ญ๐ž at the bottom of the registration page.
๐•๐ž๐ง๐ฆ๐จ: Send your donation to @๐’๐ญ๐ž๐Ÿ๐Ÿ๐ž๐ง๐ฌ-๐’๐œ๐ฅ๐ž๐ซ๐จ๐๐ž๐ซ๐ฆ๐š and include ๐˜ž๐˜ช๐˜ฏ๐˜ต๐˜ฆ๐˜ณ'๐˜ด ๐˜Œ๐˜ฏ๐˜ฅ and your first and last name in the notes.

๐’๐ญ๐ž๐ฉ ๐Ÿ‘: ๐“๐ข๐œ๐ค๐ž๐ญ๐ฌ: Tickets will be emailed within 24 hours of payment confirmation.

๐๐ซ๐ž๐Ÿ๐ž๐ซ ๐ญ๐จ ๐ฉ๐š๐ฒ ๐›๐ฒ ๐œ๐š๐ฌ๐ก ๐จ๐ซ ๐œ๐ก๐ž๐œ๐ค?
Email Theresa Schofield Slayton at ๐œ๐จ๐ง๐ญ๐š๐œ๐ญ@๐๐ž๐ ๐จ๐ฌ๐๐ข๐ฌ๐ž๐š๐ฌ๐ž.๐จ๐ซ๐  to set up cash or check payment for tickets.

๐–๐ก๐ž๐ซ๐ž: 1202 North Main Avenue, Scranton, PA
๐–๐ก๐ž๐ง: Sunday, March 1, 2026
๐“๐ข๐ฆ๐ž: 1 PM to 5 PM

๐™‡๐™š๐™ฉโ€™๐™จ ๐™ฅ๐™–๐™˜๐™  ๐™ฉ๐™๐™š ๐™ง๐™ค๐™ค๐™ข ๐™›๐™ค๐™ง ๐™๐˜ผ๐™๐™€!

How many times have you said to a friend, โ€œ๐‘พ๐’† ๐’”๐’‰๐’๐’–๐’๐’… ๐’…๐’ ๐’”๐’๐’Ž๐’†๐’•๐’‰๐’Š๐’๐’ˆโ€? Make this that something. (Bonus: no cleaning before...
02/05/2026

How many times have you said to a friend, โ€œ๐‘พ๐’† ๐’”๐’‰๐’๐’–๐’๐’… ๐’…๐’ ๐’”๐’๐’Ž๐’†๐’•๐’‰๐’Š๐’๐’ˆโ€? Make this that something. (Bonus: no cleaning before or after).

Rare Disease Day is Saturday, February 28.

Weโ€™re keeping the momentum going the next day at ๐–๐ข๐ง๐ญ๐ž๐ซโ€™๐ฌ ๐„๐ง๐ and yes, weโ€™re having dessert first. ๐Ÿฐ

๐–๐ก๐ž๐ง: Sunday, March 1, 2026 from 1โ€“5 p.m.
๐–๐ก๐ž๐ซ๐ž: Sidel's Restaurant
๐€๐๐๐ซ๐ž๐ฌ๐ฌ: 1202 North Main Avenue, Scranton 18508

Bring a friend and help us ๐’‘๐’‚๐’„๐’Œ ๐’•๐’‰๐’† ๐’“๐’๐’๐’Ž ๐’‡๐’๐’“ ๐’“๐’‚๐’“๐’† in support of our mission.

๐“๐ข๐œ๐ค๐ž๐ญ๐ฌ: $๐Ÿ“๐ŸŽ (advance purchase required)
https://www.degosdisease.org/events/winters-end

Share this with friends you always mean to make plans with. Thatโ€™s how we turn โ€œ๐’˜๐’† ๐’”๐’‰๐’๐’–๐’๐’…โ€ into โ€œ๐’˜๐’† ๐’…๐’Š๐’…โ€ and show up for RARE!

February holds two truths: ๐ก๐จ๐ง๐จ๐ซ๐ข๐ง๐  ๐๐ฅ๐š๐œ๐ค ๐‡๐ข๐ฌ๐ญ๐จ๐ซ๐ฒ ๐Œ๐จ๐ง๐ญ๐ก and advancing better health for people living with rare disease....
02/04/2026

February holds two truths: ๐ก๐จ๐ง๐จ๐ซ๐ข๐ง๐  ๐๐ฅ๐š๐œ๐ค ๐‡๐ข๐ฌ๐ญ๐จ๐ซ๐ฒ ๐Œ๐จ๐ง๐ญ๐ก and advancing better health for people living with rare disease.

๐‘๐š๐ซ๐ž ๐ƒ๐ข๐ฌ๐ž๐š๐ฌ๐ž ๐ƒ๐š๐ฒ ๐ข๐ฌ ๐…๐ž๐›๐ซ๐ฎ๐š๐ซ๐ฒ ๐Ÿ๐Ÿ–. It's an opportunity to reflect on what it means to be truly heard in a medical visit, especially for Black patients facing complex symptoms and long diagnostic journeys.

If youโ€™re comfortable, add a comment. One sentence is perfect:
๐–๐ก๐š๐ญ ๐๐จ ๐ฒ๐จ๐ฎ ๐ฐ๐ข๐ฌ๐ก ๐œ๐ฅ๐ข๐ง๐ข๐œ๐ข๐š๐ง๐ฌ ๐ฎ๐ง๐๐ž๐ซ๐ฌ๐ญ๐จ๐จ๐?

Winter doesnโ€™t end on its own. We help turn the page together.Join us for ๐‘พ๐’Š๐’๐’•๐’†๐’“โ€™๐’” ๐‘ฌ๐’๐’…, a Rare Disease Day fundraiser su...
01/23/2026

Winter doesnโ€™t end on its own. We help turn the page together.

Join us for ๐‘พ๐’Š๐’๐’•๐’†๐’“โ€™๐’” ๐‘ฌ๐’๐’…, a Rare Disease Day fundraiser supporting the ๐ƒ๐ž๐ ๐จ๐ฌ ๐ƒ๐ข๐ฌ๐ž๐š๐ฌ๐ž ๐…๐จ๐ฎ๐ง๐๐š๐ญ๐ข๐จ๐ง.

Held during Rare Disease Day weekend, it brings our community together for awareness and research.

๐Ÿ“… ๐’๐ฎ๐ง๐๐š๐ฒ, ๐Œ๐š๐ซ๐œ๐ก ๐Ÿ, ๐Ÿ๐ŸŽ๐Ÿ๐Ÿ”
๐Ÿ• ๐Ÿ ๐๐Œ โ€“ ๐Ÿ“ ๐๐Œ
๐Ÿ“ ๐’๐ข๐๐ž๐ฅโ€™๐ฌ ๐‘๐ž๐ฌ๐ญ๐š๐ฎ๐ซ๐š๐ง๐ญ ๐ข๐ง ๐’๐œ๐ซ๐š๐ง๐ญ๐จ๐ง, ๐๐€
๐ŸŽŸ๏ธ $๐Ÿ“๐ŸŽ ๐ญ๐ข๐œ๐ค๐ž๐ญ ๐๐จ๐ง๐š๐ญ๐ข๐จ๐ง. ๐˜›๐˜ช๐˜ค๐˜ฌ๐˜ฆ๐˜ต๐˜ด ๐˜ฎ๐˜ถ๐˜ด๐˜ต ๐˜ฃ๐˜ฆ ๐˜ฑ๐˜ถ๐˜ณ๐˜ค๐˜ฉ๐˜ข๐˜ด๐˜ฆ๐˜ฅ ๐˜ช๐˜ฏ ๐˜ข๐˜ฅ๐˜ท๐˜ข๐˜ฏ๐˜ค๐˜ฆ, ๐˜ด๐˜ฐ ๐˜ฅ๐˜ฐ๐˜ฏโ€™๐˜ต ๐˜ธ๐˜ข๐˜ช๐˜ต!
๐Ÿ”— https://www.degosdisease.org/events/winters-end

Come for the food, live music and community and stay for a brief talk from ๐“๐ก๐ž๐ซ๐ž๐ฌ๐š, sharing her personal journey with Degos Disease.

And yesโ€ฆweโ€™re having ๐๐ž๐ฌ๐ฌ๐ž๐ซ๐ญ ๐›๐ž๐Ÿ๐จ๐ซ๐ž ๐๐ข๐ง๐ง๐ž๐ซ in honor of Adam. ๐Ÿฐ

Your ticket supports research and awareness and helps families feel seen, supported and less isolated.

Share this with a friend and help us pack the room for rare disease awareness.

"๐‘พ๐’‰๐’‚๐’• ๐’‚๐’“๐’† ๐’š๐’๐’– ๐’…๐’๐’Š๐’๐’ˆ ๐’‡๐’๐’“ ๐’๐’•๐’‰๐’†๐’“๐’”?" -๐ƒ๐ซ. ๐Œ๐š๐ซ๐ญ๐ข๐ง ๐‹๐ฎ๐ญ๐ก๐ž๐ซ ๐Š๐ข๐ง๐ , ๐‰๐ซ.He taught us that every person deserves dignity, compassio...
01/19/2026

"๐‘พ๐’‰๐’‚๐’• ๐’‚๐’“๐’† ๐’š๐’๐’– ๐’…๐’๐’Š๐’๐’ˆ ๐’‡๐’๐’“ ๐’๐’•๐’‰๐’†๐’“๐’”?" -๐ƒ๐ซ. ๐Œ๐š๐ซ๐ญ๐ข๐ง ๐‹๐ฎ๐ญ๐ก๐ž๐ซ ๐Š๐ข๐ง๐ , ๐‰๐ซ.

He taught us that every person deserves dignity, compassion and the chance to be seen and supported. We hold that belief close and stand with the people who face rare disease every day.

As part of this community, you help expand access to care, strengthen support for families and push for research that brings hope within reach.

MLK Day is not a day off. It is a moment to look toward one another and choose to help. We continue working toward a more equitable and caring world for the scleroderma community.

If you feel moved to honor Dr. Kingโ€™s legacy, ๐ฉ๐ฅ๐ž๐š๐ฌ๐ž ๐ฌ๐ก๐š๐ซ๐ž ๐ญ๐ก๐ข๐ฌ ๐ฉ๐จ๐ฌ๐ญ and help us raise more awareness about rare disease.

๐–๐š๐ง๐ญ ๐ญ๐จ ๐ฆ๐š๐ค๐ž ๐š ๐ซ๐ž๐š๐ฅ ๐๐ข๐Ÿ๐Ÿ๐ž๐ซ๐ž๐ง๐œ๐ž ๐ข๐ง ๐ญ๐ก๐ž ๐Ÿ๐ฎ๐ญ๐ฎ๐ซ๐ž ๐จ๐Ÿ ๐ก๐ž๐š๐ฅ๐ญ๐ก๐œ๐š๐ซ๐ž?Whether youโ€™re living with scleroderma or caring for someone ...
01/13/2026

๐–๐š๐ง๐ญ ๐ญ๐จ ๐ฆ๐š๐ค๐ž ๐š ๐ซ๐ž๐š๐ฅ ๐๐ข๐Ÿ๐Ÿ๐ž๐ซ๐ž๐ง๐œ๐ž ๐ข๐ง ๐ญ๐ก๐ž ๐Ÿ๐ฎ๐ญ๐ฎ๐ซ๐ž ๐จ๐Ÿ ๐ก๐ž๐š๐ฅ๐ญ๐ก๐œ๐š๐ซ๐ž?

Whether youโ€™re living with scleroderma or caring for someone who is, your story can teach future doctors and nurses what textbooks cannot.

๐˜๐จ๐ฎ๐ซ ๐ฏ๐จ๐ข๐œ๐ž. ๐“๐ก๐ž๐ข๐ซ ๐ž๐๐ฎ๐œ๐š๐ญ๐ข๐จ๐ง. ๐๐ž๐ญ๐ญ๐ž๐ซ ๐œ๐š๐ซ๐ž. Join one of our upcoming virtual teaching sessions to turn your journey into a lesson that helps students provide more compassionate care.

Choose a Session:
โ€ข ๐“๐ฎ๐ž๐ฌ๐๐š๐ฒ, ๐…๐ž๐›๐ซ๐ฎ๐š๐ซ๐ฒ ๐Ÿ๐Ÿ’ (5 โ€“ 8:30 p.m. EST)
โ€ข ๐–๐ž๐๐ง๐ž๐ฌ๐๐š๐ฒ, ๐€๐ฉ๐ซ๐ข๐ฅ ๐Ÿ– (5 โ€“ 8:30 p.m. EST)

Two Ways to Register:
1. ๐…๐จ๐ฅ๐ฅ๐จ๐ฐ ๐ญ๐ก๐ž ๐ฅ๐ข๐ง๐ค: tinyurl.com/nvureyv2
2. ๐’๐œ๐š๐ง ๐ญ๐ก๐ž ๐๐‘ ๐œ๐จ๐๐ž on the right side of posted flyer.

๐‹๐ž๐š๐ซ๐ง ๐ฆ๐จ๐ซ๐ž about the ๐ˆ๐๐„ ๐๐ซ๐จ๐ ๐ซ๐š๐ฆ at steffens-scleroderma.org/ipe

Help us spread the word!
โ€ข ๐’๐ก๐š๐ซ๐ž ๐ฐ๐ข๐ญ๐ก ๐š ๐Ÿ๐ซ๐ข๐ž๐ง๐ who has a story to tell.
โ€ข ๐‘๐ž๐ฉ๐จ๐ฌ๐ญ and invite others to widen the circle where ๐“๐ก๐ž ๐๐š๐ญ๐ข๐ž๐ง๐ญ ๐ˆ๐ฌ ๐ญ๐ก๐ž ๐„๐๐ฎ๐œ๐š๐ญ๐จ๐ซ!

Together, we can teach the heart of medicine.

Rare is everywhere. It's just often invisible.Over ๐Ÿ‘๐ŸŽ๐ŸŽ ๐Œ๐ˆ๐‹๐‹๐ˆ๐Ž๐ people worldwide live with a rare disease. If all those p...
01/11/2026

Rare is everywhere. It's just often invisible.

Over ๐Ÿ‘๐ŸŽ๐ŸŽ ๐Œ๐ˆ๐‹๐‹๐ˆ๐Ž๐ people worldwide live with a rare disease.

If all those people lived in one place, it would be the 3rd largest country in the world. Despite these numbers, many in our community feel isolated and face conditions that are often undiagnosed or misunderstood.

We stand with and advocate for those affected by ๐Ÿ”,๐ŸŽ๐ŸŽ๐ŸŽ+ ๐ซ๐š๐ซ๐ž ๐๐ข๐ฌ๐ž๐š๐ฌ๐ž๐ฌ. We believe every person deserves:

โœ“ Faster, more equitable diagnosis
โœ“ Breakthrough treatments
โœ“ Care that sees the whole person
โœ“ Real social opportunities and inclusion

The theme for ๐‘๐š๐ซ๐ž ๐ƒ๐ข๐ฌ๐ž๐š๐ฌ๐ž ๐ƒ๐š๐ฒ ๐Ÿ๐ŸŽ๐Ÿ๐Ÿ” is ๐‘ด๐’๐’“๐’† ๐‘ป๐’‰๐’‚๐’ ๐’€๐’๐’– ๐‘ช๐’‚๐’ ๐‘ฐ๐’Ž๐’‚๐’ˆ๐’Š๐’๐’†. The strength of these rare individuals and families truly is just that.

Rare Disease Day is ๐…๐ž๐›๐ซ๐ฎ๐š๐ซ๐ฒ ๐Ÿ๐Ÿ”. Will you help us turn ๐’“๐’‚๐’“๐’† into ๐’‚๐’˜๐’‚๐’“๐’†?

๐Ÿ“Œ ๐’๐ก๐š๐ซ๐ž ๐ญ๐ก๐ข๐ฌ ๐ฉ๐จ๐ฌ๐ญ to show your support.
๐Ÿ“Œ ๐“๐š๐  ๐ฌ๐จ๐ฆ๐ž๐จ๐ง๐ž who inspires you with their resilience.
๐Ÿ“Œ ๐•๐ข๐ฌ๐ข๐ญ ๐จ๐ฎ๐ซ ๐ฐ๐ž๐›๐ฌ๐ข๐ญ๐ž to learn how we're fighting for a cure.

https://www.steffens-scleroderma.org/

๐Ÿ’๐Ÿ— ๐๐š๐ฒ๐ฌ ๐ญ๐จ ๐ ๐จ!February 28 is the rarest day of the year, and itโ€™s our moment to stand with all people living with rare d...
01/09/2026

๐Ÿ’๐Ÿ— ๐๐š๐ฒ๐ฌ ๐ญ๐จ ๐ ๐จ!

February 28 is the rarest day of the year, and itโ€™s our moment to stand with all people living with rare diseases.

๐‘๐š๐ซ๐ž ๐ƒ๐ข๐ฌ๐ž๐š๐ฌ๐ž ๐ƒ๐š๐ฒ isnโ€™t just a date on the calendar. Itโ€™s a chance to learn, connect and show up for one another.

๐‰๐จ๐ข๐ง ๐ญ๐ก๐ž ๐ฃ๐จ๐ฎ๐ซ๐ง๐ž๐ฒ. ๐‚๐ž๐ฅ๐ž๐›๐ซ๐š๐ญ๐ž ๐ซ๐š๐ซ๐ž ๐ฌ๐ญ๐ซ๐ž๐ง๐ ๐ญ๐ก.

Every story we share shines more light on a community that deserves to be seen.

๐๐ซ๐จ๐ ๐ซ๐ž๐ฌ๐ฌ ๐ข๐ฌ ๐ฉ๐จ๐ฐ๐ž๐ซ๐ž๐ ๐›๐ฒ ๐ฉ๐š๐ซ๐ญ๐ง๐ž๐ซ๐ฌ๐ก๐ข๐ฉ.Rare disease research requires a global effort. Thatโ€™s why we are proud to partner wi...
01/09/2026

๐๐ซ๐จ๐ ๐ซ๐ž๐ฌ๐ฌ ๐ข๐ฌ ๐ฉ๐จ๐ฐ๐ž๐ซ๐ž๐ ๐›๐ฒ ๐ฉ๐š๐ซ๐ญ๐ง๐ž๐ซ๐ฌ๐ก๐ข๐ฉ.

Rare disease research requires a global effort. Thatโ€™s why we are proud to partner with a powerhouse network of universities and national institutions to drive progress forward.

From the ๐๐š๐ญ๐ข๐จ๐ง๐š๐ฅ ๐ˆ๐ง๐ฌ๐ญ๐ข๐ญ๐ฎ๐ญ๐ž๐ฌ ๐จ๐Ÿ ๐‡๐ž๐š๐ฅ๐ญ๐ก and ๐‚๐จ๐ซ๐ง๐ž๐ฅ๐ฅ to ๐๐จ๐ฌ๐ญ๐จ๐ง ๐”๐ง๐ข๐ฏ๐ž๐ซ๐ฌ๐ข๐ญ๐ฒ and ๐‚๐ฅ๐ž๐ฆ๐ฌ๐จ๐ง, we are bridging the gap between groundbreaking research and patient care.

Working together, we:

โ€ข ๐€๐œ๐œ๐ž๐ฅ๐ž๐ซ๐š๐ญ๐ž pharmaceutical breakthroughs
โ€ข ๐„๐๐ฎ๐œ๐š๐ญ๐ž the next generation of rare disease specialists
โ€ข ๐๐ซ๐จ๐ฏ๐ข๐๐ž vital resources for families and caregivers

Progress happens faster when we work together.

We invite you to explore our partner network and visit their individual pages to see how they are reshaping the landscape of rare disease research.

๐„๐ฑ๐ฉ๐ฅ๐จ๐ซ๐ž ๐จ๐ฎ๐ซ ๐œ๐จ๐ฅ๐ฅ๐š๐›๐จ๐ซ๐š๐ญ๐ข๐จ๐ง๐ฌ: https://www.steffens-scleroderma.org/collaboration

๐“๐ฐ๐จ ๐ฎ๐ฉ๐œ๐จ๐ฆ๐ข๐ง๐  ๐ ๐š๐ญ๐ก๐ž๐ซ๐ข๐ง๐ ๐ฌ. ๐Ž๐ง๐ž ๐ฌ๐ก๐š๐ซ๐ž๐ ๐œ๐จ๐ฆ๐ฆ๐ข๐ญ๐ฆ๐ž๐ง๐ญ.Join us on ๐…๐ž๐›๐ซ๐ฎ๐š๐ซ๐ฒ ๐Ÿ๐Ÿ• and ๐Œ๐š๐ซ๐œ๐ก ๐Ÿ to raise awareness of rare disease, st...
01/07/2026

๐“๐ฐ๐จ ๐ฎ๐ฉ๐œ๐จ๐ฆ๐ข๐ง๐  ๐ ๐š๐ญ๐ก๐ž๐ซ๐ข๐ง๐ ๐ฌ. ๐Ž๐ง๐ž ๐ฌ๐ก๐š๐ซ๐ž๐ ๐œ๐จ๐ฆ๐ฆ๐ข๐ญ๐ฆ๐ž๐ง๐ญ.

Join us on ๐…๐ž๐›๐ซ๐ฎ๐š๐ซ๐ฒ ๐Ÿ๐Ÿ• and ๐Œ๐š๐ซ๐œ๐ก ๐Ÿ to raise awareness of rare disease, strengthen community connections and turn awareness into meaningful support for those affected by scleroderma and related conditions.

๐„๐ฏ๐ž๐ง๐ญ ๐๐ž๐ญ๐š๐ข๐ฅ๐ฌ, ๐ฅ๐จ๐œ๐š๐ญ๐ข๐จ๐ง๐ฌ ๐š๐ง๐ ๐ฎ๐ฉ๐๐š๐ญ๐ž๐ฌ ๐ฐ๐ข๐ฅ๐ฅ ๐›๐ž ๐ฉ๐จ๐ฌ๐ญ๐ž๐ ๐จ๐ง ๐จ๐ฎ๐ซ ๐ฐ๐ž๐›๐ฌ๐ข๐ญ๐ž ๐ฌ๐จ๐จ๐ง.
https://www.steffens-scleroderma.org/events

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12203

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