Hole In The Heart

Hole In The Heart Promoting awareness of holes in the heart & Congenital Heart Defects.

Hole in the Heart was formed to promote awareness of holes in the heart and congenital heart defects (CHDs), to create partnerships between providers and experts to increase detection of CHDs earlier in life, and to advocate best practices for the detection and diagnosis of CHDs.

⚡ Men’s 1000m Speed Skating – Fast MattersBlink and you’ll miss it! The Men’s 1000m speed skating final was won in secon...
02/20/2026

⚡ Men’s 1000m Speed Skating – Fast Matters

Blink and you’ll miss it! The Men’s 1000m speed skating final was won in seconds — because in racing, time matters.

And in congenital heart defects? Time matters too.

While some heart defects are detected at birth, others are missed. That’s why ongoing education and awareness are critical — not just in infancy, but through childhood, adolescence, and young adulthood.

Gold medals are won by fractions of a second.
Lives are strengthened by timely detection and informed advocacy. 🥇

www.HoleInTheHeartASD.org

❄️ Women’s Monobob – Strength & Solo CourageWomen’s Monobob: one athlete, one sled, full speed down the track. No co-pil...
02/20/2026

❄️ Women’s Monobob – Strength & Solo Courage

Women’s Monobob: one athlete, one sled, full speed down the track. No co-pilot. Just strength, skill, and courage.

Many CHD parents know that feeling — advocating, researching, pushing for answers. Sometimes it feels like you’re steering alone.

But here’s the truth: you are powerful. Your voice matters. Asking questions matters. Trusting your instincts matters.

Gold medal courage isn’t just on the ice track — it’s in every parent who speaks up for their child’s heart. 💛

www.HoleInTheHeartASD.org

It’s COLD ☁️ - Why not Hot Chocolate! Stop by  Delta Sigma Theta’s Keep Your Heart Warm event. TODAY 🎉 on University of ...
02/19/2026

It’s COLD ☁️ - Why not Hot Chocolate!

Stop by Delta Sigma Theta’s Keep Your Heart Warm event. TODAY 🎉 on University of New Mexico’s Main Campus in front of FRO from 12-3pm.

Support Delta Sigma Theta and Hole in the Heart in promoting awareness of congenital heart defects and healthy hearts! ❤️ Let’s warm some hearts!

# 🐘❤️ healthyhearts

❤️ Keep Your Heart Warm for Heart Month! ☕Stop by Thursday, Feb 19 from 12–3 PM for a Hot Chocolate Sale on University o...
02/17/2026

❤️ Keep Your Heart Warm for Heart Month! ☕

Stop by Thursday, Feb 19 from 12–3 PM for a Hot Chocolate Sale on University of New Mexico's Main Campus, in front of the FRO, hosted by the Eta Iota Chapter of Delta Sigma Theta Sorority, Inc.

✨ Proceeds will be donated to Hole In The Heart, supporting CHD (Congenital Heart Defect) awareness and families.

❤️ Hole In The Heart thanks Delta Sigma Theta Sorority (Insta: ) for promoting healthy hearts and awareness of congenital heart defects.

Grab a cup, support a great cause, and help keep hearts warm this February. 💕

A CHD Dad’s Tips for Taking Care of Yourself - Sam Leibenhaut, CHD Parent AdvocateWhen you have a child, it feels like p...
02/15/2026

A CHD Dad’s Tips for Taking Care of Yourself - Sam Leibenhaut, CHD Parent Advocate

When you have a child, it feels like part of your heart is outside of your body—this feeling is amplified when you have a child with CHD. As a heart parent, it can be lonely at times because it feels like no one else truly understands what it’s like. We have to think about things other parents don’t, and it changes your priorities.

My advice to other parents is to remember to take care of yourself. You might feel the pressure to take care of everything for your family, but you need help too. Lean on others and ask for help, even if you don’t feel you need it. It doesn’t have to be just for big things—let others take something off your plate.

At Hole In The Heart, we believe it’s more than the heart. We support mental health awareness and encourage patients, parents, and caregivers to put themselves on the list of care. It’s okay to seek help when it all feels too heavy to carry—you don’t have to do this alone.

Why CHD Education Saves LivesCongenital heart defects (CHD) affect nearly 1 in 100 babies, yet many families don’t learn...
02/14/2026

Why CHD Education Saves Lives

Congenital heart defects (CHD) affect nearly 1 in 100 babies, yet many families don’t learn about CHD until a diagnosis. Education matters because timely detection can save lives.

CHD can affect individuals at every stage of life, from infancy through adolescence and young adulthood. Ongoing education helps families understand that heart health does not end after the newborn period and that questions and concerns are valid at any age.

Parents and caregivers are essential advocates. If you have any concern—big or small—reach out to your child’s doctor. Asking questions and speaking up helps ensure concerns are addressed.

We encourage parents and caregivers to keep "Building Their Parental Toolbox." After all, as long as there are hearts, there will be CHD.

Visit Hole In The Heart social media and www.HoleInTheHeartASD.org for ongoing CHD education and programs—because awareness saves lives.

Interested in supporting our cause? Visit https://holeintheheartasd.org/ways-to-help/ for the many ways you can support Hole In The Heart.


• 🔎 Medical resources:
• CDC: Congenital Heart Defects — Signs & Symptoms
• American Academy of Pediatrics: Heart Screening Questions for Parents

Advocating for Your Child at Any Age - Kathy, CHD Parent AdvocateWe didn’t receive a diagnosis for our daughter’s mitral...
02/13/2026

Advocating for Your Child at Any Age - Kathy, CHD Parent Advocate

We didn’t receive a diagnosis for our daughter’s mitral valve prolapse until she was in kindergarten. Our pediatrician knew something wasn’t quite right, but a heart condition wasn’t initially suspected. She had been born eight weeks prematurely after a difficult pregnancy, so many of our early concerns were attributed to her challenging start in life.

We finally received answers after a trip to Riley Children’s Hospital. Her heart had begun making a distinct “clucking” sound, and our local hospital couldn’t determine the cause, so they referred us to the children’s hospital. I could hear the noise from nearly six feet away and went straight to the emergency room—instinctively knowing that this wasn’t a sound a heart should make. Once we met with a pediatric cardiologist, he immediately recognized the issue and diagnosed her with mitral valve prolapse.

Receiving a diagnosis—and a clear plan for care—was an enormous relief. Since then, we’ve been fortunate to have access to exceptional healthcare providers, and today our daughter lives a healthy, active life.

🧰 Building Your Parental Toolbox - Day 7TRUST YOUR PARENT INSTINCTSIf something doesn’t feel right, it deserves attentio...
02/13/2026

🧰 Building Your Parental Toolbox - Day 7

TRUST YOUR PARENT INSTINCTS

If something doesn’t feel right, it deserves attention.

🛠 Tool to add to your parental toolbox:
Document concerns, ask questions, request follow-up, and seek second opinions when symptoms persist. Parental instincts are a powerful tool in timely detection.

💛 Help protect the next heartbeat. Donate $14 to support timely detection.

Interested in supporting our cause? Visit https://holeintheheartasd.org/ways-to-help/ for the many ways you can support Hole In The Heart.

Educational awareness only. No matter how big or small your concerns are, it’s always a good idea to talk them over with your child's doctor.


• 🔎 Medical resources:
• AAP: When to Advocate for Further Evaluation
• HealthyChildren.org: Trusting Parental Concerns


CHD and Pregnancy: A Call for Special Care for the Mom - Chantel Bieri-Tapia, CHD Patient Advocate & New MomGrowing up w...
02/12/2026

CHD and Pregnancy: A Call for Special Care for the Mom - Chantel Bieri-Tapia, CHD Patient Advocate & New Mom

Growing up with congenital heart disease (CHD), I was never given a clear answer about whether I could have children—only that it would depend on how my heart was doing at the time. When I decided to try to get pregnant, careful monitoring was essential. I worked closely with my cardiologist, completed testing, and was cleared to move forward, knowing pregnancy would come with added considerations.

Because of prior surgical complications and a history of blood clots, I needed to be on blood thinners. It took a year to conceive due to PCOS (polycystic o***y syndrome, a hormonal condition that can make ovulation and pregnancy more difficult). Along the way, I experienced heart palpitations that required additional monitoring—another reminder that pregnancy with CHD can be complex and closely managed.

Once pregnant, I started blood thinners right away. They weren’t easy, but I knew the goal was protecting both me and my baby. During pregnancy, I experienced bleeding and later delivered six weeks early due to a placental abruption—something we didn’t know until after delivery. My son spent two weeks in the NICU, and during that time, stress and separation increased my heart palpitations. More monitoring confirmed my heart was stable, and once he came home, both my anxiety and symptoms eased.

This experience taught me to expect the unexpected—but also showed me what’s possible. With careful planning, monitoring, and support, people with CHD can navigate pregnancy and build families. I hope my story offers perspective and hope to parents raising children with CHD: full lives, and even future families, are possible. ❤️

🧰 Building Your Parental Toolbox - Day 6TEENS & YOUNG ADULTSCongenital heart defects are lifelong conditions.🛠 Tool to a...
02/12/2026

🧰 Building Your Parental Toolbox - Day 6

TEENS & YOUNG ADULTS

Congenital heart defects are lifelong conditions.

🛠 Tool to add to your parental toolbox:
Pay attention to fainting, chest pain, dizziness, shortness of breath, or exercise intolerance in teens and young adults. These symptoms should never be ignored.

💛 Help protect the next heartbeat. Donate $14 to support timely detection.

Interested in supporting our cause? Visit https://holeintheheartasd.org/ways-to-help/ for the many ways you can support Hole In The Heart.

Educational awareness only. Be sure to discuss any concerns with your teen’s doctor, and if you have a young adult, encourage them to bring up any issues with their own doctor.


• 🔎 Medical resources:
• Adult Congenital Heart Association (ACHA)
• CDC: Congenital Heart Defects Across the Lifespan

CHD, Strokes and Timely Detection - Veronica Griego, Recent CHD Patient AdvocateIn October 2024, I had a stroke and late...
02/11/2026

CHD, Strokes and Timely Detection - Veronica Griego, Recent CHD Patient Advocate

In October 2024, I had a stroke and later learned I have a PFO (Patent Foramen Ovale), an opening between the left and right atriums of the heart that didn’t close after birth. Before the stroke, I’d experienced two TIAs (transient ischemic attacks) while pregnant with my son, but 23 years ago nothing was detected. My cardiologist said I was one in a million—though now they’re finding similar cases in many young adults.

By April 2025, I underwent heart surgery to close the PFO—and I’m so glad I did. If I’d stayed on medication alone, I could have faced a more severe stroke because my blood was shunting between the atriums.

Two months post-surgery, I’m feeling much better, with my energy back to where it used to be.

Why this matters ⬇️

Timely detection and appropriate treatment can be lifesaving.

🧠 Stroke Facts
(1) Stroke can happen at any age and is increasingly being seen in younger adults.
(2) TIAs are often warning signs of a future stroke and should never be ignored.
(3) Structural heart conditions, like a PFO, can increase stroke risk by allowing blood clots to travel to the brain.

❤️ CHD & PFO Facts
(1) A PFO is a type of congenital heart defect (CHD) present at birth.
(2) About 1 in 4 adults has a PFO—most never know unless complications arise.
(3) PFOs are linked to a higher risk of unexplained (cryptogenic) stroke, especially in younger adults.

--
Medical Resources:
(1) American Heart Association (AHA): Stroke & PFO Education
(2) Centers for Disease Control and Prevention (CDC): Stroke Facts & Prevention
(3) National Institutes of Health (NIH) / National Heart, Lung, and Blood Institute: Congenital Heart Defects
(4) Mayo Clinic: Patent Foramen Ovale (PFO) Overview

🧰 Building Your Parental Toolbox - Day 5ALLERGIES & RECURRENT INFECTIONSFrequent illness isn’t always “just part of chil...
02/11/2026

🧰 Building Your Parental Toolbox - Day 5

ALLERGIES & RECURRENT INFECTIONS

Frequent illness isn’t always “just part of childhood.”

🛠 Tool to add to your parental toolbox:
Pay attention to repeated respiratory infections, chronic cough, frequent ear infections, or persistent allergy-like symptoms — especially before age 5 years. Some heart conditions affect lung circulation, which can contribute to frequent respiratory symptoms.

TUNE IN to the PEDx Podcast to hear Dr. Bill Stein, a pediatric cardiothoracic surgeon, share more insights on this topic: https://www.podomatic.com/podcasts/melissaemason/episodes/2022-02-09T13_23_24-08_00

💛 Help protect the next heartbeat. Donate $14 to support timely detection.

Interested in supporting our cause? Visit https://holeintheheartasd.org/ways-to-help/ for the many ways you can support Hole In The Heart.

Educational awareness only. Make sure to talk to your child's doctor about any concerns you have.


• 🔎 Medical resources:
• AAP: When Frequent Infections Signal an Underlying Condition
• CDC: Recurrent Respiratory Infections in Young Children

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Albuquerque, NM

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