Spina Bifida Association of California

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Spina Bifida Association of California

Contact information, map and directions, contact form, opening hours, services, ratings, photos, videos and announcements from Spina Bifida Association of California, 2000 Duke Street, Suite 300, Fort Myer, VA.

The Spina Bifida Association of California (SBA of CA) is an organization dedicated to building a better and brighter future for all people impacted by Spina Bifida.

01/21/2026

Why I Walk-N-Roll 💙 — Chloe C.

For Chloe, Walk-N-Roll is about more than one event—it’s about access to care for adults with Spina Bifida.

Too many adults with Spina Bifida face serious barriers to health care. Many are forced to delay care, travel long distances, or go without care entirely because providers who treat adults with Spina Bifida are difficult to find. These gaps can lead to preventable, life-threatening health outcomes.

That’s why the Spina Bifida Association is building a searchable national database of adult health care providers—and why volunteers are essential to making this work possible.

If Chloe’s “why” moves you, take action today:
👉 Visit the volunteer page for more information and fill out the form in the
“Be the Bridge: Help Connect Adults with Spina Bifida to Care” section.

🔗 https://vist.ly/4npx9

Together, we can turn Walk-N-Roll momentum into real, life-saving access to care. 💙

01/20/2026

⏰ Happening in 2 Days!
Community Information Session
January Reset: Establish Habits for Healthy Living

If you’ve been meaning to reset routines, build better habits, or reconnect with your motivation—this is your moment.

📅 Thursday, January 22, 2026
🕖 7 PM ET | 6 PM CT | 5 PM MT | 4 PM PT

This session digs into a simple but powerful question: What is your why?
We’ll go beyond surface-level goals and focus on the mindset that helps you push through tough moments, build resilience, and surprise yourself with what you can do.

You’ll walk away with:
✔️ Tools to identify motivation that actually lasts
✔️ Strategies for balancing independence with asking for help
✔️ Practical planning tips to support follow-through—especially for those navigating executive function challenges
✔️ A framework for daily, weekly, and monthly planning that builds confidence over time

🎤 Featuring Dan McCoy, MS
Paralympic gold medalist, fitness professional, and Spina Bifida advocate

💻 Register here: https://vist.ly/4njgx
⚠️ Advance registration required to receive access details

👉 Save your spot now—don’t miss it.

01/19/2026

💬 You’re Invited to the Spina Bifida Adult Chat — The First of 2026!

Join Donna Jones for an engaging and welcoming adult chat designed for adults (18+) living with Spina Bifida. This is a relaxed, supportive space to connect with others, share experiences, ask questions, and build community.

Whether you’re a regular or joining for the first time, we’d love to have you with us for meaningful conversation and connection.

🗓 Sunday, January 25, 2026
🕒 3–6 PM Eastern
📍 Via Zoom
👥 Hosted by Donna Jones

📧 To receive the Zoom link, please email sbadultchat@gmail.com
We hope you’ll join us!

01/15/2026

Happening Today 💙 Be the Bridge: Help Identify Adult Health Care Providers

Access to quality adult health care for people with Spina Bifida starts with community action—and we need volunteers.

Join the Spina Bifida Association tonight for a live Community Information Session to learn how you can help identify adult health care providers committed to caring for adults with Spina Bifida.

🗓 Today — January 15
🕖 7 PM ET | 6 PM CT | 5 PM MT | 4 PM PT
📌 Register: https://vist.ly/4mvy4

During this session, you’ll:
✔️ Learn how community feedback shaped SBA’s national access-to-care efforts
✔️ Hear how data and partnerships are expanding care options
✔️ Discover a new volunteer outreach program and how you can get involved
✔️ Have the chance to ask questions live

Whether you’re an adult with Spina Bifida, a caregiver, advocate, or ally, your voice matters.
👉 Join us tonight and help be the bridge to better care.

01/14/2026

Each year, Walk-N-Roll for Spina Bifida brings the Spina Bifida community together for an inclusive event centered on connection, support, and celebration.

Hosted by the Spina Bifida Association, Walk-N-Roll advances SBA’s mission to build a better and brighter future for all those impacted by Spina Bifida through advocacy, research, networking, resources, and clinical care. It’s a space where individuals with Spina Bifida, families, caregivers, advocates, and supporters come together.

Each Walk-N-Roll is a family-friendly experience featuring interactive activities, community resources, and meaningful opportunities to connect with others who share similar journeys.

💬 Comment below with where you Walk-N-Roll and follow National Walk-N-Roll for Spina Bifida

01/13/2026

Community Information Session
January Reset: Establish Habits for Healthy Living

📅 Thursday, January 22, 2026
🕖 7 PM ET | 6 PM CT | 5 PM MT | 4 PM PT

This session digs into a simple but powerful question: What is your why?
Together, we’ll look beyond surface-level goals and focus on the mindset that helps you push through tough moments, build resilience, and surprise yourself with what you can do.

We’ll talk about:

Identifying the motivation that fuels lasting change

Balancing independence with knowing when to ask for help

Practical strategies to support follow-through—especially for those who struggle with executive function

Planning daily, weekly, and monthly activities to build consistency and confidence

🎤 Speaker: Dan McCoy, MS
Paralympic gold medalist, fitness professional, and Spina Bifida advocate

Whether you’re looking to reset routines, strengthen habits, or reconnect with your motivation, this session offers tools and encouragement to help you move forward.

📌Register today: https://vist.ly/4mp3t

This session is free to attend, but advance registration is required to receive access information.

01/08/2026

Be the Bridge: Help Identify Adult Health Care Providers

Access to quality adult health care for people with Spina Bifida doesn’t happen without community involvement—and volunteers play a critical role.

Join the Spina Bifida Association on Thursday, January 15, 2026, to learn how you can help identify adult health care providers who are willing and prepared to care for adults with Spina Bifida.

📅 Thursday, January 15, 2026
🕖 7 PM ET | 6 PM CT | 5 PM MT | 4 PM PT
📌 Register: https://vist.ly/4m45j

During this live session, SBA will:

Share how community feedback from the 2018 survey sparked today’s national access-to-care strategy

Explain how data, partnerships, and a South Florida pilot program helped shape this work

Introduce a new volunteer outreach initiative and outline clear, actionable ways to get involved

Answer questions about what volunteering looks like and how your efforts can make a nationwide impact

If you’re an adult with Spina Bifida, a caregiver, advocate, or ally—your participation matters. Be part of the solution and help expand access to adult health care across the country.

01/06/2026

Kick off the new year with healthy habits 💪

Join our Community Information Session: January Reset – Establish Habits for Healthy Living with Paralympic gold medalist Dan McCoy, MS.

🗓 Jan 22 | 7 PM ET/ 6 PM CT / 5 PM MT / 4 PM PT

🔗 Register here: https://vist.ly/4kprf

12/31/2025

✨ Thank You to Our 2025 Walk-N-Roll Fundraisers! ✨

A special shout-out to the amazing supporters who raised $1,000 or more—your dedication and leadership make a huge impact! 💙

Every fundraiser counts. Whether you raised $1, $100, or $1,000+, your efforts fuel the Spina Bifida Association’s mission and strengthen our community. Together, you’re making a real difference—thank you for stepping up! 🙌

12/30/2025

COMMUNITY INFORMATION SESSION
Be the Bridge: Help Identify Adult Health Care Providers

📅 Thursday, January 15, 2026
🕖 7 PM ET | 6 PM CT | 5 PM MT | 4 PM PT
📌 Register: https://vist.ly/4k4gc

The Spina Bifida Association (SBA) invites YOU to take part in a national volunteer initiative focused on expanding access to quality adult health care for people with Spina Bifida.

During this live session on January 15, we will:

Trace the journey from SBA’s 2018 community survey to today’s comprehensive, multi-pronged access-to-care strategy

Share how momentum has grown through data, strategic partnerships, and real-world testing in a South Florida pilot program

Introduce SBA’s new volunteer outreach program and explain how you can play a vital role in expanding care nationwide

Answer your questions about this important volunteer opportunity

This session will outline SBA’s plan to improve health care access for adults with Spina Bifida and provide clear, actionable steps for adults, caregivers, and families to get involved in national efforts.

12/25/2025

Warm holiday wishes from the Spina Bifida Association! 🎄💙

We’re grateful for our incredible community—individuals and families, providers, caregivers, supporters, and volunteers—who make connection, progress, and impact possible all year long.

12/24/2025

🎉 Happy Holidays from the Walk-N-Roll team! 🎄

Thank you for being part of our incredible community and for supporting individuals and families impacted by Spina Bifida. Wishing you a joyful season and a bright new year! 💙

Address

2000 Duke Street, Suite 300
Fort Myer, VA
22314

Website

http://www.spinabifidaassociation.org/

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