Seizure Tracker

11/13/2025

Built in a Hospital Waiting Room. Shared Around the World.

While their son Evan was in the hospital for treatment in 2007, Robert and Lisa Moss continued developing what would become Seizure Tracker — a tool to help families record and understand seizures more clearly.

They launched it right from the waiting room, and within days, families across the epilepsy community began using it — offering feedback and helping shape new features.

That moment sparked a movement in data-driven care and collaboration that continues to this day.

Watch Part 2 of Robert’s story on Seizing Life by CURE Epilepsy and watch the full interview here: https://bit.ly/4qrS9M4

11/12/2025

"My son has the NeuroPace RNS System for Epilepsy. Seizure Tracker is unique because it allows me to log my son’s seizure activity and share it with his care providers.” — Lisa S

For Lisa, Seizure Tracker helps bridge the gap between home and clinical care, providing a simple and consistent way to share her son’s seizure information with his medical team.

This , we’re celebrating real stories like Lisa’s — proof that tracking isn’t just about data; it’s about connection, confidence, and care.

💜 Your story could empower someone else.

Share how tracking helps you and join the conversation: https://seizuretracker.com/SeizureSuccess/Why_Track_Survey/

11/11/2025

With the Seizure Tracker mobile app (Apple, Android, or Alexa), you can record seizure activity the moment it happens. Track timing, medication, triggers, and recovery details. Then sync the data to your account so it appears in your reports and graphs.

That means better data for you and clearer insights for your care team.

Learn more: https://bit.ly/4oz3f0v

11/06/2025

📣 Your voice matters. Your story inspires.

This National Epilepsy Awareness Month, we’re inviting our community to share why they track.

How has Seizure Tracker helped you or someone you love better understand seizures, improve communication with doctors, or feel more empowered?

Share your story today → https://bit.ly/4ou1P7A

11/05/2025

This National Epilepsy Awareness Month, we honor the importance of awareness and also encourage understanding.

With Seizure Tracker, people living with epilepsy and their caregivers can log seizures, identify patterns, and use real data to make informed care decisions.

Awareness starts the conversation; understanding your data helps you take action.

Learn more about tracking and data-driven epilepsy care: https://seizuretracker.com

11/04/2025

"Living with epilepsy for the last 25 years has been a daily burden. Identifying triggers and trying to manage them is overwhelming. However, tracking my seizures and my management strategies is EASY and REWARDING with Seizure Tracker. Inputting and exporting data for myself and my doctors is simple yet unlimited — there’s always space to include every detail that matters. It allowed me to verify which management strategies made a difference, and I have been able to reduce my seizure frequency by 50%. I can’t thank the people at Seizure Tracker enough (although I try)."
— Jill Kaufman

For Jill, tracking transformed frustration into empowerment. By consistently logging her data, she discovered what truly impacts her health — and found a way to take back control.

This , we’re celebrating real stories like Jill’s, proof that understanding your own patterns can change everything. Your story could empower someone else. Share how tracking helps you and join the conversation: https://bit.ly/4ou1P7A

10/30/2025

Managing epilepsy at school takes teamwork, and the right tools make all the difference.

With Seizure Tracker’s Dynamic Seizure Action Plan (DSAP) and reporting tools, you can easily share your child’s seizure information and care plan with their school team.

New Tip: Try pre-reporting for the school year. Create a Seizure Tracker report for a future date range and share the report link with your child’s school. This allows staff to reference real-time seizure data all year long without needing a new update after each seizure.

When everyone is informed, students can focus on learning, and families can feel confident in their care. 💜

Learn more about using Seizure Tracker for school:
https://bit.ly/4nrAUYw

10/28/2025

When their son Evan’s seizures began doubling each month, Robert and Lisa Moss realized they needed a clearer way to track and understand what was happening. What started as a personal project became Seizure Tracker—a data-driven platform now used by families, clinicians, and researchers worldwide.

Watch Part 1 of Robert’s story, featured on Seizing Life® by CURE Epilepsy, and learn how a family’s need for understanding sparked a movement in epilepsy care.

Full episode: https://bit.ly/4qrS9M4

10/21/2025

Seizures often follow biological rhythms, daily, weekly, or monthly patterns that can be uncovered through consistent tracking.

With Seizure Tracker, patients, caregivers, and clinicians can visualize these seizure cycles, revealing trends that may support chronotherapy — the practice of adjusting treatment timing to align with a person’s unique seizure rhythms.

When timing and data come together, care can become more personalized, predictable, and effective. Learn more about identifying seizure cycles and how chronotherapy can improve care: https://bit.ly/47lCpS5

10/15/2025

While SUDEP (Sudden Unexpected Death in Epilepsy) is a difficult topic to think about, understanding it can save lives. Awareness helps alert families, caregivers, and people living with epilepsy to situations where SUDEP risk increases.

On our SUDEP Awareness page, you can see charts that illustrate what SUDEP risk looks like among people using seizure diaries. These charts reflect real, measurable risk factors tracked by the Seizure Tracker community. By logging seizures and patterns, people are helping researchers and clinicians better understand risk, and helping themselves and others take action to reduce it.

Discuss your individual risk with your doctor and explore steps you can take to stay safe. You can also download a printable list of questions to bring to your next appointment. Learn more here: https://bit.ly/4nM89Xr

02/12/2025

We are excited to participate in "Seizure Action Plan Awareness Week." Check out the Seizure Tracker Dynamic Seizure Action Plan and/or visit https://seizureactionplans.org/ to learn more about creating your own plan.

Use the Seizure Tracker Dynamic Seizure Action Plan (DSAP) to enhance your seizure care by effectively communicating your needs with others, including your physician care team, family members, co-workers and school staff.

12/06/2024

FACT: Every 12 minutes, a baby is diagnosed with IS worldwide.

Don't wait—if you notice these signs in your baby, seek medical attention now! Learn more and recognize the signs to protect your child's brain.

Learn more at infantilespasms.org.