Seizure Tracker

01/08/2026

For caregivers, confidence matters, especially when it comes to seizures.

Mark tracks his daughter’s seizures so her data is secure, accessible, and ready to be analyzed for patterns that may help tailor her treatment. Having reliable seizure records means better conversations, clearer insights, and more informed care decisions.

Your story could empower someone else.

Share how tracking helps you and join the conversation:
https://bit.ly/4ou1P7A

01/07/2026

A new study published in Epilepsia examined seizure forecasting using Seizure Tracker e-diary data to see whether advanced models could reliably predict seizures.

Researchers found that none of the five tested machine learning models performed better than a simple moving average approach, often called the “Napkin method,” for predicting seizure risk over the next 24 hours.

This study highlights why rigorous evaluation matters when developing seizure forecasting tools and the important role patient-reported data plays in advancing epilepsy research.

Study link: https://bit.ly/4q5jl2R

01/06/2026

Managing seizures often involves a team, and the Seizure Tracker Valet system helps keep everyone connected.

With Seizure Tracker Valet access, you can share a secure “Valet key” with caregivers, medical providers, or school staff. Each person receives only the tools you allow, whether that’s recording events, reviewing data, or generating reports.

You stay in control, and your support network stays informed.

Learn more: https://bit.ly/4p3rqUg

12/30/2025

As we head into a new year, it’s a great time to commit to a habit that truly supports your health.

Tracking seizures, medications, and daily factors with Seizure Tracker can reveal meaningful patterns and help your care team make informed decisions.

Make 2026 the year you take control of your epilepsy data.

Start tracking today: https://bit.ly/4j6eYS5

12/29/2025

Hormones can play a powerful role in seizure activity.

Seizure Tracker helps individuals living with epilepsy record and compare seizure patterns alongside their menstrual cycles, birth control, and pregnancy.

By tracking these details, you and your care team can recognize important patterns, adjust treatments, and plan care more confidently, through every stage of life.

Learn more: https://bit.ly/3LcjtOy

12/24/2025

As the year comes to a close, we’re reflecting on the strength and compassion that define this community. Whether you track daily, care for a loved one, support patients, or contribute to research and innovation, your efforts make a difference.

Thank you for showing up for each other in big and small ways.
Wishing you and your loved ones a peaceful, safe, and hopeful holiday season.

💜 With gratitude,
The Seizure Tracker Team

12/22/2025

A publication in Epilepsy Research analyzed data from 30,813 Seizure Tracker users, reporting on seven SUDEP risk factors and confirming a significantly elevated rate of GTC seizures in this cohort, the strongest evidence-based SUDEP risk marker.

This demonstrates the value of patient-reported data in supporting large-scale research and improving SUDEP risk evaluation efforts.

Study link: https://bit.ly/3KJuoPu

12/18/2025

Did you know that 80% of people with epilepsy have at least one identifiable seizure cycle?

Seizure Tracker’s reporting tools, including the “Time of Day” chart and daily seizure count graphs, can help you recognize patterns in your seizure timing, such as 24-hour rhythms or weekly cycles.

These patterns may help you and your doctor explore chronotherapy, an approach that times medication doses to when seizures are most likely to occur.

Learn more about identifying seizure cycles and how tracking can support more informed treatment decisions: https://bit.ly/47lCpS5

12/17/2025

“It’s nice to create reports that show long-term changes.”
— Michael W.

For Michael, tracking seizures over time helps reveal long-term patterns, making it easier to understand what’s changing, what’s working, and what to share with his care team.

Your story could empower someone else.
Share how tracking helps you and join the conversation:
👉 https://bit.ly/4ou1P7A

12/16/2025

Do you track ketone or glucose levels as part of your diet therapy plan?

The Keto-Mojo + Seizure Tracker integration lets you automatically send ketone and glucose readings from your Keto-Mojo meter directly into your Seizure Tracker account.

This makes it easier to:
• Consolidate ketone and glucose data in one place
• Compare diet therapy trends to seizure activity
• Share accurate information with your care team
• Monitor your Glucose Ketone Index (GKI) via the Keto-Mojo app

Real-time data can help support more informed decisions about diet therapy and seizure management.

Learn more: https://bit.ly/4rOUKAx

12/15/2025

Do you struggle with insurance coverage for your seizure medicine? Did you know that all states (USA) have some form of insurance department or commission? These state based agencies can help you dispute insurance company denials. Here is a success story of a family struggling to get specialized medicine that was helping reduce their son's seizures.

A little-known provision in the Affordable Care Act allows patients to ask state-run panels to review decisions made by health insurance providers.

12/11/2025

A new study using Seizure Tracker data shows that people living with both epileptic seizures (ES) and functional seizures (FS) have unique needs that aren’t fully captured in current quality-of-life tools.

People with ES + FS rated 38 different life areas as “critically important,” nearly three times more than people with epilepsy alone. These included:

💜 mental health and suicidal thoughts
💜 challenges with hospital or ER visits
💜 daily functioning, energy, and memory
💜 medication side effects

This research highlights why it is important to listen to people’s lived experiences and develop care tools that reflect what truly affects quality of life.

Read more about the study here: https://bit.ly/3KmMDuc