Seizure Tracker

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Seizure Tracker

Seizure Tracker empowers people living with seizures to take control of their own healthcare.

03/06/2026

Logging your seizures consistently can make a real difference in understanding and managing epilepsy. This graphic shares five simple tips to help you keep detailed and useful records, from catching triggers to involving caregivers.

Seizure Tracker’s Diary Tools let you capture more than just the event itself. You can log medications, rescue therapies, possible triggers, daily notes, VNS settings, diet variables, and more — all in one place that makes trends easier to spot and reports easier to share with your doctor.

Explore all the Seizure Tracker Diary Tools here: https://bit.ly/4q1jjbt

03/04/2026

Thinking about a seizure service dog?

These helpful tips highlight important considerations before choosing a trainer or program, helping families make informed, confident decisions.

For those already using a seizure dog or alert device, Seizure Tracker makes it easy to record alert activity alongside seizure logs, supporting better communication and care decisions.

Learn more about our Seizure Dog & Device Alerts tool:
https://bit.ly/4bgvKvA

03/02/2026

💜 International Women with Epilepsy Day (IWWED) 💜

Women with epilepsy are leaders, innovators, mothers, students, professionals, and advocates, yet too often their unique health needs and lived experiences are overlooked.

This year's theme, "1 in 52 — Is This True?", invites us to examine what we know about the prevalence of epilepsy among women and why gender-specific research, representation, and awareness matter.

With approximately 1 in 26 people developing epilepsy in their lifetime, we must continue raising awareness about how epilepsy affects women differently, including access to care, reproductive health considerations, and social barriers.

Today, we stand in recognition and solidarity.

Learn more about International Women with Epilepsy Day: https://bit.ly/4cSPgQ1

03/02/2026

Women with epilepsy are leaders, innovators, mothers, students, professionals, and advocates, yet too often their unique health needs and lived experiences are overlooked.

This year's theme, "1 in 52 — Is This True?", invites us to examine what we know about epilepsy prevalence in women and why gender-specific research, representation, and awareness matter.

With approximately 1 in 26 people developing epilepsy in their lifetime, we must continue raising awareness about how epilepsy affects women differently, including access to care, reproductive health considerations, and social barriers.

Today, we stand in recognition and solidarity.

Learn more about International Women with Epilepsy Day: https://internationalwomenwithepilepsyday.org/

02/28/2026

Today, we recognize and the families living with rare epilepsy syndromes such as Dravet syndrome, CDKL5 deficiency disorder, SYNGAP1, Lennox-Gastaut syndrome, and others.

Rare epilepsies often face unique challenges, including smaller research populations and fewer clinical trials.

Through data-sharing partnerships and collaborations, Seizure Tracker helps support efforts to advance rare epilepsy research using real-world data.

When patients and caregivers track seizures, it improves care and can advance research.

Learn more: https://bit.ly/474gJdK

02/25/2026

Seizure Tracker + Epic = More connected care.

Seizure Tracker’s EHR Integration Initiative enables healthcare systems to access real-time seizure data directly within Epic via the Seizure Tracker dashboard. That means your tracking efforts don’t just stay on your phone; they help inform real clinical decisions.

✔ Real-time seizure data
✔ Clear visual reports
✔ Secure integration

When your care team can see what you track, conversations become clearer, and care becomes more personalized.

Learn more: https://bit.ly/3LK7acm

02/24/2026

Today is International SCN2A Awareness Day: February 24 (2/24)

Established by the SCN2A Related Autism & Epilepsy: The FamilieSCN2A Foundation, SCN2A Awareness Day highlights rare genetic disorders caused by changes in the SCN2A gene, including early-onset epilepsy, a condition that affects neuronal activity and can significantly shape daily life.

The date “2/24” was chosen because the SCN2A gene sits on the long (q) arm of chromosome 2 at position 24.3, a meaningful reminder of the science behind the disorders we’re working to better understand.

What began with families lighting candles, sharing stories, and wearing blue, green, and purple has grown into a global movement aimed at raising awareness, supporting research, and standing with the epilepsy community.

Today and every day, tracking seizures — including frequency, type, and response to treatment — is an important way for individuals and caregivers to understand epilepsy and empower their care teams. Seizure Tracker supports that effort.

Learn more about SCN2A and how the awareness movement is making an impact:
https://bit.ly/4aRBJFW

02/20/2026

Today is National Caregivers Day, and we recognize everyone who supports epilepsy care, both professional and family caregivers.

From tracking seizures at home to coordinating care in schools, clinics, and hospitals, caregivers play a vital role every step of the way.

We’re proud to support caregivers with tools that make communication and coordination easier across care teams: https://www.seizuretracker.com/

Thank you for everything you do. 💜

02/18/2026

We’re launching something new, and we’d love your help!
The Seizure Tracker “Quick Access” bracelet makes it easier for families, caregivers, and care teams to respond when a seizure happens.

With a quick tap of a phone, someone can:
✔ Log a seizure
✔ Record rescue therapies
✔ View your Dynamic Seizure Action Plan
✔ Share important information — without logging into an account

We’re looking for volunteers to test this new tool and help us refine the experience.

Interested in being one of the first to try it?

Take the survey here: https://bit.ly/4aVC3EE

Your feedback helps us build tools that truly support the epilepsy community.

02/12/2026

Your story matters. 💜

Why do you track your seizures?
Is it to spot patterns, prepare for appointments, support a loved one, or feel more in control day to day?

Seizure Tracker is conducting a short survey to better understand why people track seizures and how we can continue improving tools that support epilepsy care.

By sharing your experience, you can help shape future features and support others in the community.

Share your story here:
https://bit.ly/4ou1P7A

02/11/2026

Medication side effects can be subtle, gradual, or easy to overlook, but they matter.

Changes in memory, mood, balance, vision, sleep, or energy can all be important clues when managing seizures and medications. Tracking these side effects alongside seizure activity helps create a clearer picture of what’s really happening over time.

Seizure Tracker makes it easier to record seizure events, medications, and related side effects in one place, so you and your care team can spot patterns and have more informed conversations about treatment.

Consistent tracking helps turn day-to-day experiences into meaningful data. Learn more or start tracking: https://seizuretracker.com/INT/Help.php?m=1&t=110

02/09/2026

Are you prepared for a seizure emergency?

A Seizure Action Plan helps others know exactly what to do if a seizure happens, whether that’s family, friends, coworkers, school staff, or first responders.

The Seizure Tracker Dynamic Seizure Action Plan (DSAP) makes it easy to:

✔ Clearly document seizure types and suggested actions
✔ List daily and rescue medications
✔ Share emergency contacts and care provider information
✔ Print or securely share your plan anytime it’s needed

Having a plan can reduce uncertainty, lower anxiety, and help others respond with confidence.

Join us in recognizing Seizure Action Plan Awareness Week and take a moment to create or update your plan.

Learn more and create your DSAP: https://bit.ly/4ahjb1n

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Alexandria, VA
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http://www.SeizureTracker.com/

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