03/10/2023
Hello PHriends!!! It had been FORRRREVER since I have update. That’s because Chadlee is doing so well!!! But tonight is a night I feel like I need to share!!! Chadlee Ray is doing fantastic. Is he doing so well in school, and absolutely loves it. He is walking everywhere and is extremely independent. He loves to open and close doors, he is learning so much and showing signs of improvement daily. He has been working so hard on breathing like a big boy and tonight is the night I feel like we need to share…. Since our boy got his trach 1,277 days ago he has been on the vent. Tonight he is sleeping without it for the first time (now that we got the correct equipment and it’s working like it needs to, to support his needs).
Y’all, when I say it’s been a long and rough road I say that when everything I have in me! He has shown so much fight and determination that I could not be more proud, we are working hard towards getting rid of equipment one piece at a time. The vent will still be in our home for quite sometime bit we hope that our days or needing it are over.
I promise to be diligent about updating now that we are minding big steps so that each and ever one if you can see his progress!!
We love y’all and appreciate all of your love, prayers and support! Tonight I just wanted to share our exciting news!!!