04/13/2026
Sorry, I haven’t really given any updates. Jensen is just doing so good with the Blina backpack! He never ran any fever or had any reactions. He has truly been back to his old ways (even the bad ways). 😂 he has started back in Speech Therapy and has been going to physical therapy. We stay completely busy. Mom has therapy every other Monday. Jensen goes to New Orleans every Tuesday and Friday, physical therapy on Wednesdays, and we are moving speech from Thursdays to Wednesdays so we can have a rest day, hopefully!  I can’t put into words how amazing it has been to see Jensen playing and having a good time for a whole month! It has been wonderful. I was sitting here updating our calendar that I use to keep up with his medications, refills, and his many many appointments, as well as the other kids’ events going on. And it hit me that we finish Blina next Friday. Now I’m sitting here in tears because I don’t wanna start back chemo. 😢💔 it’s just not fair. Children should have something like Blina the whole time. I don’t understand why research hasn’t progressed more and why kids are still being pumped full of this poison that was originally meant for adults. Soon we will start back on all of these chemo meds and have to deal with alopecia, mouth sores, nausea, and all the things we’ve despised this whole journey. He is essentially going through the very first terrible phase all over again because we’re now in the time frame where relapse is most likely. It sucks completely to watch your child go through this, but it is pure torture to see them go through it, recover, and then go through it again. Pure torture!!!!
Keep praying please. God is listening!