Spina Bifida Association of Georgia-Tennessee

03/16/2026

📣 From Awareness to Action: Turning Your Voice into Legislative Change

Want to make real change happen? Join us to learn how to turn awareness into action. This session will cover how to stay informed on key legislative issues, build relationships with decision-makers, mobilize stakeholders, and drive advocacy that works.

Featuring real examples from the Spina Bifida Association of New York State, you’ll leave with practical tools and a clear roadmap to strengthen your own advocacy efforts.

🗓 March 31, 2026
⏰ 7 PM ET / 6 PM CT / 5 PM MT / 4 PM PT

Register: https://vist.ly/4u2uw

03/13/2026

Check out what's happening at SBA in our latest newsletter 👇

One of our main priorities for Congress during Teal on the Hill is increasing funding for the National Spina Bifida Program at the CDC. We’re asking lawmakers to raise its budget from $7.5 million to $11 million so this essential program can continue supporting people living with Spina Bifida. We ...

03/12/2026

💬 Spina Bifida Adult Chat — Happening Next Sunday!

Our March Spina Bifida Adult Chat is happening next Sunday! Join us for a welcoming, relaxed space for adults (18+) living with Spina Bifida to connect, share experiences, and build community.

If you’ve been thinking about joining—this is your sign. We’d love to have you in the conversation.

🗓 Sunday, March 22, 2026
🕒 3–6 PM Eastern
📍 Via Zoom
👥 Hosted by Donna Jones & Will Dickey

📧 Email sbadultchat@gmail.com to get your Zoom link.

03/11/2026

Because of our incredible partners, 2026 Teal on the Hill was more than a day on Capitol Hill — it was a powerful reminder of what’s possible when advocacy and partnership come together.

Your support helped amplify the voices of individuals and families living with Spina Bifida, ensuring lawmakers heard directly from the community about the policies that impact their health, independence, and future.

We are deeply grateful to our 2026 Teal on the Hill sponsors:
Coloplast
Wellspect
Smith+Nephew
Hollister Incorporated

03/05/2026

💬 Spina Bifida Adult Chat — March Gathering

Join us for our March Spina Bifida Adult Chat! This welcoming, relaxed space is for adults (18+) living with Spina Bifida to connect, share experiences, and build community in a supportive environment.

Whether you’re a regular or joining for the first time, we’d love to have you join the conversation.

🗓 Sunday, March 22, 2026
🕒 3–6 PM Eastern
📍 Via Zoom
👥 Hosted by Donna Jones & Will Dickey

📧 Email sbadultchat@gmail.com to receive your Zoom link.

02/24/2026

🎥 A Discussion About Grieving Through the Lens of Spina Bifida

Join this honest, heartfelt conversation with adults living with Spina Bifida as they talk about grief not only from losing loved ones, but also the losses tied to life with Spina Bifida.

Watch here: https://vist.ly/4sr5z

🧠 Topics discussed include:
• Grief after the death of a loved one
• Grief related to living with Spina Bifida
• The impact of culture and identity on grieving
• Stories of resilience, connection, and community

Whether you’re part of the Spina Bifida community or an ally looking to learn more, this is a thoughtful and validating discussion worth your time.

SB-YOU is online programming for, about, and by, adults with Spina Bifida. This is a community of adults discussing issues of importance for those living wit...

02/21/2026

Important Update: Sunday’s Zoom Chat Has Been Canceled

Due to unforeseen circumstances, Sunday's Spina Bifida Adult Chat has been canceled. Thank you for your understanding and we look forward to seeing you all again next month.

02/20/2026

💬 This Sunday: Spina Bifida Adult Chat

Join us this Sunday for a welcoming Adult Chat created for adults (18+) living with Spina Bifida. This relaxed, supportive space is a chance to connect with others, share experiences, ask questions, and build community.

Whether you’re a regular or joining for the first time, you’re always welcome.

🗓 This Sunday, February 22, 2026
🕒 3–6 PM Eastern
📍 Via Zoom
👥 Hosted by Donna Jones & Will Dickey

📧 Email sbadultchat@gmail.com
to receive the Zoom link.

We hope to see you there!

02/13/2026

💬 Looking for Connection? Join Our Spina Bifida Adult Chat

Adult Chat is a welcoming, judgment-free space for adults (18+) living with Spina Bifida to connect, share experiences, and support one another. Whether you want to listen, talk, or just be in community, you belong here.

Join us for meaningful conversation and connection in a relaxed virtual setting.

🗓 Sunday, February 22, 2026
🕒 3–6 PM Eastern
📍 Via Zoom
👥 Hosted by Donna Jones & Will Dickey

📧 Email sbadultchat@gmail.com
to receive the Zoom link.

We’d love to see you there!

02/09/2026

Community Information Session: Coping with Change

Concerned about changes to your health, access to medical care, or coverage?

📅 February 17
Join Julie Yindra, Linda Long, Libby Powers, Matt Davis, and Gaby Bonano Sanchez—all adults living with Spina Bifida—for an empowering conversation focused on staying prepared and adapting with confidence.

💬 Real-world strategies
💡 Practical tips
💙 Insights from lived experience

This session is built by adults with Spina Bifida, for adults with Spina Bifida, and designed to help you navigate today’s evolving healthcare landscape with clarity and confidence.

🔗 Register here: https://vist.ly/4qvfj

✨ Don’t miss this important conversation.

02/06/2026

💬 You’re Invited to the Spina Bifida Adult Chat!

Join us for a welcoming Adult Chat created for adults (18+) living with Spina Bifida. This relaxed, supportive space is a chance to connect with others, share experiences, ask questions, and build community.

Whether you’re a familiar face or joining us for the first time, we’d love to have you for meaningful conversation and connection.

🗓 Sunday, February 22, 2026
🕒 3–6 PM Eastern
📍 Via Zoom
👥 Hosted by Donna Jones & Will Dickey

📧 To receive the Zoom link, please email sbadultchat@gmail.com

We hope you’ll join!

01/28/2026

Because of your support during Walk-N-Roll, families aren’t navigating care and policy alone. They’re informed, empowered, and advocating for a better and brighter future for the Spina Bifida community.

Teal on the Hill turns passion into progress—and Walk-N-Roll supporters make it possible. . Join us March 1 - 3 as we elevate family voices and push for change that matters.

👉 Register today: https://vist.ly/4pfxi. If you’d like to attend meetings with members of Congress Tuesday, March 3, 2026, you must register by Thursday, February 12, 2026.