Spina Bifida Association of Georgia-Tennessee

Home
United States
Arlington, VA
Spina Bifida Association of Georgia-Tennessee

Since 1976, dedicated to enhancing the lives of all those affected by Spina Bifida in GA and TN.

Spina Bifida Association of Georgia-Tennessee (SBAGTN) works to support individuals with Spina Bifida as they reach their goals and pursue a fulfilling lifestyle. As a group of parents, dedicated professionals, and adults as well as children with Spina Bifida, we work collectively to promote the prevention of Spina Bifida while raising awareness of those affected with this birth defect. Furthermore, SBAGTN is working to support families and individuals with Spina Bifida, and we seek to provide information and education throughout the states of Georgia and Tennessee.

01/08/2026

Be the Bridge: Help Identify Adult Health Care Providers

Access to quality adult health care for people with Spina Bifida doesn’t happen without community involvement—and volunteers play a critical role.

Join the Spina Bifida Association on Thursday, January 15, 2026, to learn how you can help identify adult health care providers who are willing and prepared to care for adults with Spina Bifida.

📅 Thursday, January 15, 2026
🕖 7 PM ET | 6 PM CT | 5 PM MT | 4 PM PT
📌 Register: https://vist.ly/4m45h

During this live session, SBA will:

Share how community feedback from the 2018 survey sparked today’s national access-to-care strategy

Explain how data, partnerships, and a South Florida pilot program helped shape this work

Introduce a new volunteer outreach initiative and outline clear, actionable ways to get involved

Answer questions about what volunteering looks like and how your efforts can make a nationwide impact

If you’re an adult with Spina Bifida, a caregiver, advocate, or ally—your participation matters. Be part of the solution and help expand access to adult health care across the country.

01/06/2026

Kick off the new year with healthy habits 💪

Join our Community Information Session: January Reset – Establish Habits for Healthy Living with Paralympic gold medalist Dan McCoy, MS.

🗓 Jan 22 | 7 PM ET/ 6 PM CT / 5 PM MT / 4 PM PT

🔗 Register here: https://vist.ly/4kprd

12/31/2025

✨ Thank You to Our 2025 Walk-N-Roll Fundraisers! ✨

A special shout-out to the amazing supporters who raised $1,000 or more—your dedication and leadership make a huge impact! 💙

Every fundraiser counts. Whether you raised $1, $100, or $1,000+, your efforts fuel the Spina Bifida Association’s mission and strengthen our community. Together, you’re making a real difference—thank you for stepping up! 🙌

12/30/2025

COMMUNITY INFORMATION SESSION
Be the Bridge: Help Identify Adult Health Care Providers

📅 Thursday, January 15, 2026
🕖 7 PM ET | 6 PM CT | 5 PM MT | 4 PM PT
📌 Register: https://vist.ly/4k4ge

The Spina Bifida Association (SBA) invites YOU to take part in a national volunteer initiative focused on expanding access to quality adult health care for people with Spina Bifida.

During this live session on January 15, we will:

Trace the journey from SBA’s 2018 community survey to today’s comprehensive, multi-pronged access-to-care strategy

Share how momentum has grown through data, strategic partnerships, and real-world testing in a South Florida pilot program

Introduce SBA’s new volunteer outreach program and explain how you can play a vital role in expanding care nationwide

Answer your questions about this important volunteer opportunity

This session will outline SBA’s plan to improve health care access for adults with Spina Bifida and provide clear, actionable steps for adults, caregivers, and families to get involved in national efforts.

12/25/2025

Warm holiday wishes from the Spina Bifida Association! 🎄💙

We’re grateful for our incredible community—individuals and families, providers, caregivers, supporters, and volunteers—who make connection, progress, and impact possible all year long.

12/24/2025

🎉 Happy Holidays from the Walk-N-Roll team! 🎄

Thank you for being part of our incredible community and for supporting individuals and families impacted by Spina Bifida. Wishing you a joyful season and a bright new year! 💙

12/18/2025

Don’t Miss Out! December Social Circles – This Upcoming Sunday ❄️💙

Join us for our final Social Circles gathering of the year this upcoming Sunday! Come enjoy warm conversation, community, and meaningful connection with others in the Spina Bifida community.

📅 Sunday, December 21, 2025 | 🕝 2:30–4:30 PM
📍 Panera Bread
📌 2534 Powell Ave, Nashville, TN 37204

Everyone is responsible for their own food and drink.
All are welcome — whether you’re living with Spina Bifida or supporting someone who is!

👉 RSVP Here: https://vist.ly/4j4gs

We hope to see you there!

12/18/2025

Together, we achieved something remarkable 💙

Because of our incredible Walk-N-Roll community, $288,000 was raised and 2,855 participants united for one powerful mission.

From Walk-N-Roll events to Walk-N-Roll Your Way across the country, this season was fueled by community, commitment, and heart.

Relive the energy and excitement—this is what impact looks like.

👉 Stay tuned for 2026 Walk-N-Roll dates and Ambassador opportunities.

12/18/2025

JOIN US TONIGHT
Community Information Session: Bladder Cancer in People with Spina Bifida

📅 Thursday, December 18, 2025
🕖 7 PM ET | 6 PM CT | 5 PM MT | 4 PM PT
📌 Register: https://vist.ly/4izwb

Join us tonight for an important conversation about bladder cancer in adults with Spina Bifida. This session will cover diagnosis and treatment, unique risk factors, available treatment options, and considerations around screening.

This program is open to adults with Spina Bifida, caregivers, advocates, and clinicians.

🎤 Speakers
Mary Dobson, MA, BA, AEA – Spina Bifida advocate, counselor, and bladder cancer survivor
Jonathan Routh, MD – Pediatric urologist at Duke and national leader in Spina Bifida research

This is a valuable opportunity to learn from both lived experience and clinical expertise about a critical—and often overlooked—health issue in the Spina Bifida community.

12/12/2025

Reminder: Spina Bifida Adult Chat – Holiday Edition! ❄️💬

The holiday season is here, and we’d love for you to join us this Sunday for an afternoon of cheer, connection, and community with fellow adults (18+) living with Spina Bifida. Feel free to come in your coziest festive pajamas or anything that makes the season bright! ✨

Bring your favorite winter drink or treat, settle in, and enjoy a relaxed space to share stories, laugh, and celebrate together.

🗓 This Sunday, December 14, 2025
🕒 3–6 PM Eastern
📍 Via Zoom
👥 Hosted by Will Dickey & Donna Jones

📧 To get your Zoom link, email sbadultchat@gmail.com

We can’t wait to celebrate with you!

12/11/2025

Don’t Miss Out! December Social Circles – December 21 ❄️💙

Join us for our final Social Circles gathering of the year! Come enjoy warm conversation, community, and meaningful connection with others in the Spina Bifida community.

📅 Sunday, December 21, 2025 | 🕝 2:30–4:30 PM
📍 Panera Bread
📌 2534 Powell Ave, Nashville, TN 37204

Everyone is responsible for their own food and drink.
All are welcome — whether you’re living with Spina Bifida or supporting someone who is!

👉 RSVP Here: https://vist.ly/4i7pp

We hope to see you there!

12/10/2025

📝 Reminder!

Please take a moment to complete the 2025 Walk-N-Roll Participant Survey by
December 15, 2025.

Your feedback helps us make next year even better!
🔗https://vist.ly/4hyj3

Address

2000 Duke Street, Suite 300
Arlington, VA
22314

Opening Hours

9am - 5pm

Telephone

+12029443285

Website

https://www.spinabifidaassociation.org/chapter/sbagatn/

Alerts

Be the first to know and let us send you an email when Spina Bifida Association of Georgia-Tennessee posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Contact The Practice

Send a message to Spina Bifida Association of Georgia-Tennessee:

Want your practice to be the top-listed Clinic in Arlington?