Adrenal Insufficiency United

04/30/2026

Adrenal Insufficiency United wants to thank Bubbl'r for their donation to our 2026 Summit on Adrenal Insufficiency.

We had a lot of fun with it and really enjoyed the drinks!!!

Thank you!!



https://www.facebook.com/drinkbubblr

04/28/2026

And that our friends is a wrap on AIU 2026 Summit on Adrenal Insufficiency!!

In the next few weeks we will start sharing the videos of sessions from our packed line-up of highly qualified speakers on all kinds of topics related to adrenal insufficiency.

And while we are so glad to be offer a virtual component to the Summit, there is nothing that compares to bringing us all together, to being with others who just "get it", to look into someone's eyes and know you are being heard. We are already getting lots of questions about where and when we will come together again, and we promise to keep you posted here, and on our website.

A special shout out to our founders, Jennifer and Kirsten and this great idea they had 15 years ago. There are many with great ideas, but you two brought it to fruition and is why we are here today. We celebrated in Minneapolis and will continue to reccognize this achievement throughout the year.

Thank you all for being part of our 15 years!!

04/20/2026

AIU's conference starts April 23rd. Don't miss it.
We have 171 Virtual Attendees as of tonight! Plus about 150 in person. This is a conference not to be missed. You can still sign up for our Virtual option until end of day on the 20th. It's a sliding scale so pay whatever you can afford.

Register for our conference! DATES: April 23 – 25 Sunday the 26th is an optional family fun dayLOCATION: Minneapolis MNVENUE: Double Tree by Hilton Minneapolis Airport Adrenal Insufficiency United feels that the health, safety, and well-being of our members are of utmost importance. We recognize t...

04/17/2026

We are now less than a week away from AIU's 2026 Summit on Adrenal Insufficiency!! You can still register to join us virtually for 2 1/2 days of full programming. https://aiunited.org/registration/

AIU has been featuring sponsors and speakers for the last few months, and there are still more!! Today, we highlight Carey Smith, who is part of our caregiver support sessions.

Carey's background is as varied as his writing. He has worked in finance, taught fitness classes, studied in seminary, and trained in family counseling. He credits his compassion and empathy to both the hardships and kindness he’s experienced—surviving years of being bullied, yet learning firsthand that no matter how bad things get, you can still make it through.

His most recent book, Magnetic Love: What It Looks Like at the End, is a tribute to his late wife and the extraordinary love they shared. More than a memoir, it’s an unflinching account of her battle with CRPS, the systemic failures of a medical system that too often dismisses pain patients, and the strength it takes to care for someone you love in the face of those challenges. It’s a story his wife wanted told—to raise awareness about CRPS and the countless patients who struggle to be believed.

When he isn’t writing, Carey enjoys teaching, uplifting others, and yes—cranking up everything from heavy metal to Christian music. He believes kindness, laughter, and making people feel valued are among life’s greatest joys. Through his books, Carey hopes to inspire readers to face challenges with courage, love without reservation, and never underestimate the impact of empathy.

04/15/2026

Last day to register for AIU 2026 Summit to attend in person!! We are closing registration for in-person 4/15 and virtual on 4/20 - so do not delay!! For the virtual you will have access to all sessions!!

To register please visit, https://aiunited.org/registration/

Next up for our speaker spotlight is board member, Constance Leon. Constance is the leader of our group on Cortisol Dogs and has a lot of experience with teaching her own dogs to detect low cortisol

In 2015, I was diagnosed with Secondary Adrenal Insufficiency. I couldn't get my life or body under control and had to leave the job I loved as a Chief Information Officer for the government and take early retirement.

I was fortunate enough to end up at the National Institute of Health (NIH), where they also found Panhypopituitarism by way of Empty Sella Syndrome, Diabetes Insipidus and a host of autoimmune diseases.

Confronted with a body I had yet learned to maneuver through life, I did what I always do, I trained a dog. My father trained dogs. His father trained dogs. So, I trained dogs for myself and for others. I trained dogs as pets, as companion animals, as Service Dogs, to work with the visually impaired, the Deaf, the physically impaired, children and the elderly.

Who knew there was such a thing as teaching a dog to detect low cortisol? Not I, but Nala did.

04/10/2026

We are less than 2 weeks away from AIU's 2026 Summit on Adrenal Insufficiency!!

AIU brings people together to meet others with shared life experiences, difficult diagnostic journeys, and similar obstacles to receiving proper care. There is no replacement for bringing people together, and we hope to see you in Minneapolis 4/23-4/25. But if you cannot make it....

We have also brought in https://livewirenow.com for our virtual option this year. If you cannot be with us in Minneapolis, this is the next-best thing. You will have access to all sessions, there will be discussion groups, and recordings of all sessions will be available after (please note that discussion groups will not be recorded due to privacy concerns)!!

***Virtual attendees will also be able to interact with each other and ask questions of our speakers.

***Virtual registration is on a sliding scale, pay what you are able to, and get all this value!! All money paid will go into future programming for our members at AIU.

Registration is quick and easy at https://aiunited.org/registration/

Our full slate of speakers (which is stacked!!) is here, https://aiunited.org/speakers/

This is an event you do not want to miss out on!! We hope to see you there (either in person or virtually)!

04/08/2026

Only a few more days to book your hotel for AIU 2026 Summit on Adrenal Insufficiency if you are joining us in Minneapolis!!

Our virtual option to join is now on a sliding scale, so it is accessible to all.

Three days of programming, with experts throughout the adrenal insufficiency community. In addition to medical professionals, there will be sessions on caregiving, IEPs/504s, nutrition and more!

Next up on our speaker spotlight, is another one of AIU's Medical Advisory Board, Christine Yedinak, DNP, MN, FNP.

Dr. Yedinak has been a nurse practitioner providing clinical care for patients with pituitary and adrenal disorders for over 20 years. As an associate professor at Oregon Health & Sciences University in Portland Oregon her research focused on outcomes of patient care She is currently an adjunct professor at Mount Marty University in Yankton, South Dakota, and director of the post-master’s endocrine certificate program.

She is past president of the Endocrine Nurses Society and the Federation of International Nurses In Endocrinology (FINE) and a past committee member of the European Society of Endocrinology.

Christine will be doing multiple sessions on "Advances in AI Therapy"

For more information on the conference, and to register for in-person or virtual attendance, please visit www.aiunited.org

04/03/2026

Can't come to the conference In Person.
Sign up for our Virtual Option where you'll still be able to ask questions of the presentors!

Thanks to our generous sponsors it's now a sliding scale from $0 to $50 pay what you can afford, then tune into the sessions you'd like to join.

See first comment to link to our website and sign up.

Post below if you're attending the conference. Let us know if we'll see you in Person or if you're joining us Virtually.

Register for our conference! DATES: April 23 – 25 Sunday the 26th is an optional family fun dayLOCATION: Minneapolis MNVENUE: Double Tree by Hilton Minneapolis Airport Adrenal Insufficiency United feels that the health, safety, and well-being of our members are of utmost importance. We recognize t...

04/03/2026

One of the biggest needs of the adrenal insufficiency community is prompt and accurate medical care, especially in an emergency.

An adrenal crisis can be deadly in 30-60 minutes. Time canNOT be wasted.

Throughout the AIU Summit April 23-25, both in Minneapolis and virtually we will have sessions on this.

🚨Danny's Dose will be present in our sponsor/partner area, with information for all

🚑Darlene Shelton from Danny's Dose will not personally be in attendance, but will present virtually about the work she is doing on emergency care for those with specialized medication.

🏥 Latasha Holt, AI mother and fierce advocate will be at the Danny's Dose table and can share the great work she is doing in the state of Louisiana and beyond!!

💉There will be live injection trainings (bring expired vials) throughout the conference, with Jason Dunn, RN.

👨‍⚕️Dr. Craig Cooley is an ER doctor and will be presenting on emergency care.

💉SOLUtion Medical will be present sharing where they are on having new ways of administering hydrocortisone.

💊Other pharmaceutical companies who are working on emergency care, or meds so that those with adrenal insufficiency are more consistently stable, including Neurocrine, Esteve, BridgeBio, Eton, and Corcept.

What sessions are you looking most forward to? Register at www.aiunited.org for in-person or to join us virtually.

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04/01/2026

This month is Adrenal Insufficiency Awareness Month.

AIU is all in on getting you accurate information about adrenal insufficiency all month long, ending with our conference April 23-25 in Minneapolis, MN! To join us in person or virtually, visit www.aiunited.org

Comments will have a photo you can save to use as you FaceBook cover photo for the month of April.

03/31/2026

We still have more speakers to highlight!! The slate of speakers for this conference is amazing.

There is still time to register for in person in Minneapolis or virtual, April 23-25. Visit www.aiunited.org for more info and to register.

Next up is Deanna Pomfret -

Professor, Nutrition and Public Health Deanna’s area of expertise is health education with a primary focus on food and nutrition, physical activity, public health and promotion. Deanna teaches full-time for the Department of Nutrition and Public Health in the School of Nursing and Health Sciences at Merrimack College.

Deanna also volunteers in the local sports and medical communities. She is a presenter at Harvard University Medical School for their endocrine clinics and homeostasis lectures. She also presents for clubs, hospitals and symposiums on the science and art of coaching specifically in the areas of nutrition and fitness.

Before becoming a teacher Deanna created Athletic Pursuits LLC a company that promoted endurance sports and the great outdoors. Since 2005 Deanna has helped adults with personalized coaching and training for general fitness and for special events like triathlons, marathons and anything her athletes dream up. Deanna has primary adrenal insufficiency and enjoys being a resource for others with similar challenges.

03/30/2026

Adrenal Insufficiency United has had a long and productive relationship with Bridge Bio. BridgeBio is very involved with the CAH community specifically and we are fortunate to have them, once again as a sponsor of our AIU 2026 Summit on Adrenal Insufficiency.

Please remembers there is still time to sign up and meet with other AIU members, specialists in adrenal insufficiency throughtout the country and our sponsors. Our sponsors are the ones often times responsible for producing the medications that we use and it is great to have so many involved in 2026.

Register at www.aiunited.org to be there in person April 23-25 in Minneapolis or to attend virtually.