Adrenal Insufficiency United

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Astoria, OR
Adrenal Insufficiency United

We are a group of concerned family members who are striving to bring everyone of any age or disorder

Anyone and everyone affected by Adrenal Insufficiency is welcome in this group. We will work to compile resources from all organizations working with those with Adrenal Insufficiency and make them available to all. Only by working together will we be able to make the policy changes needed to treat Adrenal Insufficiency properly in the field. Preventing further complications and death from Adrenal Crisis is our mission. Adrenal Insufficiency United is here to help educate and create awareness for Adrenal Insufficiency.....it's not a support page in the sense that we pose questions and talk back and forth like our support group. DISCLAIMER: Adrenal Insufficiency United is an organization of concerned family members, friends and affected adults. We are not a medical organization, and information contained in this website or on our pages is only intended to provide resources for those affected with Adrenal Insufficiency. No information on our website or pages is to be taken as medical advice. Please consult with your physician before making any changes to your medical regimes. Links to other websites, doctors, and resources are done as a service to those seeking additional information and support. We do not endorse or recommend any specific organizations or doctors and are simply listing then as resources for individuals to research on their own. AIU is not responsible for the content of other publications or websites reached from our links.

01/14/2026

AI 101 Stress Dosing continued. Please note that some people may refer to this by other terms, we often see sick-day dosing or up-dosing.

It is important to understand this for your personal condition and to discuss it with your endocrinologist for yourself. It is an important part of effectively and safely managing life with adrenal insufficiency.

All of these pages and more will soon be available to be printed and shared with loved ones, emplyers, etc...

01/13/2026

Adrenal Insufficiency United is so excited to announce that we have opened registration for our April 2026 Summit on Adrenal Insufficiency in Minneapolis, MN. We are also committing to a virtual optiona nd that registration will be available soon, as we are finalizng details.

There have been questions on stipends. AIU is still awaiting some final funding requests that will determine how many we can help and how much. There is a form on the registration to fill out if that is something that you need in order to attend. Filling it out is no guarantee of assistance.

We have a great slate of speakers on alsmost any topic related to adrenal insufficiency that you can think of. We will be sharing more of those details in the next few weeks so that you can know what to expect. We will also be thanking all sponsors who are making this a reality.

We know how alienating have a misunderstood condition liek adrenal insufficiency can be. Our intent is to bring in experts and give you facts. In addition we want to bring you together with others in our community, to meet face-to-face, to share your stories.

If you have any questions, please let us know.

https://aiunited.org/registration/

01/11/2026

Happy New Year!
Conference Registration is Live!
Read our first newsletter of the year to learn about our conference, meet our sponsors & executive director, and see our latest news. Then register for the conference and help us celebrate AIU's 15th birthday. https://mailchi.mp/24a92c07b9d3/cbx1t8xex7-4905443

01/09/2026

Friday is when Adrenal Insufficiency United tries to share useful tools for you. Today, we want to take a minute to highlight our store. We switch some of the clothing items periodically, but safety items are always there to help you and your loved ones be prepared for emergencies.

Can you think of any thing you would like to see?

Visit our store here - https://united4rare.com/collections/adrenal-insufficiency-united

01/07/2026

Next up in AI 101 -- Stress dosing. This is a complciated subject and will be the focus of the next couple of weeks.

Stress dosing can be a very individual thing and it is important that you talk with your own doctor (specifically your endocrinologist) about exactly when or how you should be stress dosing. While there are general recommendations, people have different lifestyles, comorbities, etc...

01/06/2026

Adrenal Insufficiency United are offering a free workshop this Thursday to introduce you to the Five Principles of Self-Advocacy.

Lauren Kopsick has shared this module with our group before and we have decided to share it one. more time before we kick-off our year long advocacy sessions that get a little more specific.

Please join us this Thursday January 8th 2026 at Noon ET/ 9am PT.

Scar the QR code to register!!

This is a live Zoom event and will not be recorded.

12/31/2025

In our recent needs assessment, the most commonly asked for resource was basic information on adrenal insufficiency. Members wanted this not only for themselves, but for family, friends, employers, schools, and even members of their medical team.

AIU has put together more information on what one can think of as Adrenal Insufficiency 101. More information can also be found on our website, where we will be adding more to this page soon!! https://aiunited.org/information-adrenal-insufficiency/

Today we focus on aldosterone, another hormone that the adrenal glands are responsible for. It is also made in the adrenal cortex. Because this issue is from damage to the actual adrenal glands, it is most common in those with primary adrenal insufficiency, though those with secondary/tertiary should talk with the docotrs about this too, especially if they have problems with blood pressure, and balancing electrolytes. Typically this is determined by testing both aldosterone and renin blood levels.

12/29/2025

In the recent needs assessment from Adrenal Insufficiency United, this was loud and clear. People with adrenal insufficiency or caring for someone with adrenal insufficiency are very concerned with emergency responses from EMS to ERs.

In our response to this, and continuing our ongoing effort in this area, AIU will start a working group in 2026 to outreach to ERs, EMSs, and local/state politicians to bring awareness to adrenal insufficiency and the need for proper and efficient emergency care.

If you are interested in being part of this, please request to join this FB group - https://www.facebook.com/groups/1325947497835868

I will add people to this group next week, as I start rolling out information to be shared. I want this to be a coordinated effort.
If you have questions, please comment here.

12/26/2025

Fridays AIU is giving you practical tooks to use! Here is a list of questions to consider if new to adrenal insufficiency and looking for an endocrinologist, or if you are unhappy with yours and looking for a new one.

Are there any questions you would add?

12/24/2025

In our recent needs assessment, the most commonly asked for resource was basic information on adrenal insufficiency. Members wanted this not only for themselves, but for family, friends, employers, schools, and even members of their medical team.

AIU has put together more information on what one can think of as Adrenal Insufficiency 101. More information can also be found on our website, where we will be adding more to this page soon!! https://aiunited.org/information-adrenal-insufficiency/

Next up in this series we are looking at what cortisol is. It should also be mentioned that it produced in the cortex (outer layer) of the adrenal glands which sit on top of the kidneys.

Another common request was for more awareness, please share this, and the rest of our ongoign series with friends, family, employers, schools, and even doctors.

12/23/2025

In the midst of the holday season, AIU wanted to be sure to wish you all a safe, happy and healthy celebration!!

Remember to be prepared and to take care of yourself!!

12/22/2025

Adrenal Insufficiency United is working to bring you proactical tips to help manage your adrenal insufficiency. Here are some questions to ask your endocrinologist, if you already have a diagnosis.

Next week we will have questions to ask if you are looking for an endocrinologist or yet to reiceve a daignosis of adrenal insufficiency.

Address

92178 LEWIS AND CLARK Road
Astoria, OR
97103

Website

http://aiunited.org/

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