Adrenal Insufficiency United

03/08/2026

On International Women's Day, AIU is taking a moment to highlight another phenomenal female physcian and speaker who will be joining us in Minneapolis April 23-25.

Dr Naila Goldenberg, MD is a board Certified Endocrinologist with the focus on Adrenal Insufficiency. She has helped multiple patients with different versions of adrenal Insufficiency and has more than 30 (currently 37) patients on Cortisol pump. Her research was presented at Endocrine Society and published in peer reviewed scientific journals. Dr. Goldenberg leads the Tristate Endocrinology Club in Cincinnati area. She practices Functional Medicine and has been the principal owner of Functional Endocrinology since 2017. In her free time she enjoys painting, spending time with family, cats, dogs and chickens.

Dr. Goldenberg will be speaking on using the pump as a treatment for adrenal insufficiency, How stress affects AI. Tips and Tricks, and about the role of functional medicine even for those with adrenal insufficiency. You do not want to miss this!!

Register now at https://aiunited.org/aiu_events/ - we look forward to seeing you in April!!

03/07/2026

Results are in!!

Before we get to our Summit on Adrenal Insufficieny in April (https://aiunited.org/aiu_events/), AIU Director, Kerri Engebrecht, will be attending NCCN's (National Comprehensive Cancer Network) National Conference. In 2025, Kerri had a mission of building awareness on immunotherapy as a cause of adrenal insufficiency. Working with Dr. Afreen Shariff, Duke University and Citrus Oncology, they developed a survey. Here are the results!!

NCCN's Conference is an event for about 1500 oncologists from throughout the country. This poster wil be at our table along with other resources that Dr. Shariff has suggested be at our table. Kerri is hoping to bring back information for all of you from this event, while also educating them on living with adrenal insufficiency.

If you are someone with adrenal insufficiency due to immunotherapy, this is probably the fastest growing cause of adrenal insufficiency. Please know you are not alone in this, and that AIU will continue to work on this moving forward. Here is a link to a podcast that Dr. Shariff did on this exact topic and the urgency of recongizing adrenal insufficiency in those going through immunotherapy, https://creators.spotify.com/pod/profile/afreen-shariff/episodes/Episode-25-Adrenal-Insufficiency--What-patients-need-to-know-e2lom75

03/06/2026

Just a friendly reminder that in most of the United States we will spring forward our clocks this Sunday, losing an hour. Please pay attention to your body's needs with this change. It can throw off your body's circadian rhythm, which we know is already complciated by having adrenal insufficiency.

Talk to your endo, if you have concerns about how to take your meds with this change.

03/06/2026

We are just weeks away from the 2026 AIU Summit on Adrenal Insufficiency.

Since 2017 AIU has routinely brought together patients and caregivers, along with physicians, industry leaders, and advocates, to spend time diving into life with adrenal insufficiency. Patients and caregivers have the opportunity to meet with others with shared life-experience while learning from experts in the adrenal insufficiency field. Physicians and industry leaders, meet with patients and caregivers in a nonclinical setting to hear what living with adrenal insufficiency is like.

AIU is excited to offer both in-person and virtual registration NOW. You can register, see our speaker list, agenda, sponsors, and more here, https://aiunited.org/registration/

Julia is a designer, entrepreneur, and healthcare executive bringing both professional expertise and lived experience with a rare medical condition to the life sciences. She’s a graduate of the NASDAQ Entrepreneurship Program and Johnson & Johnson’s JLABS Incubator, and a PPDC award recipient from the Children’s Hospital of Philadelphia.

As Founder and Chief Strategy Officer of SOLUtion Medical, Julia is advancing safer, easier drug delivery for treatments that require mixing at the point of care. She also holds an M.S. in Industrial Design from Jefferson University and serves as a reviewer for PCORI’s Healthcare Horizon Scanning System, evaluating emerging healthcare innovations.

03/04/2026

Thank you to NORD for sharing and supporting AIU Summit!!

https://rarediseases.org/event/aiu-summit/

The AIU Summit is a national educational and support conference bringing together patients, caregivers, and healthcare professionals to learn about adrenal

03/03/2026

We can finally say that the AIU Summit on Adrenal Insufficiency 2026 will happen next month!!

AIU has both in-person and virtual registration open now!! For more information on speakers and agenda or to register, please visit https://aiunited.org/registration/

Our next featured speaker is none other than our own board member, medical liaison, Jason Dunn. Jason brings a depth of knowledge on living with adrenal insufficiency to his "AI and Tactical Training" session, along with live injection trainings throughout the conference.

Jason Dunn, RN, CSRN Board of Directors- Adrenal Insufficiency United (AIU) Medical Liaison- Adrenal Insufficiency United (AIU) Patient Advocate & Public Speaker- Endocrinology Endocrine Nurses Society I have been an RN in active clinical practice for 22 years, in peri-operative and interventional pain settings. I have served as a Medical Liaison on the Board of Directors for AIU since May 2023.

My passion is advocating for patients with adrenal and pituitary endocrine conditions, as I myself was diagnosed with panhypopituitarism (with secondary adrenal insufficiency) around 5 years of age. This was most likely from hydrocephalus at birth. I enjoy teaching/coaching patients on how to live their best life while managing the daily ups and downs that come with pituitary or adrenal conditions.

02/28/2026

Today is the day!!

AIU really hopes that in following us you learned more about rare disease, how adrenal insufficiency fits into the rare disease world, and what AIU is doing to support those with any form of adrenal insufficiency.

Please share today in some way what Rare Disease Day means to you!

We are glad you are part of our community and will continue to work on awareness, education, support and advocacy!!

02/27/2026

This is so exciting! We can't wait to see and learn more during our Summit on Adrenal Insufficiency in April! SOLUtion is one of our great sponsors.

02/27/2026

Rare Disease Day is just one day away.

Today we want to remind you that we have shirts, sweatshirts and hats (also emergency preparedness items) so that you can keep spreading awareness about adrenal insufficiency all year long.

Purchasing these items also help support, AIU the nonprofit that runs this page.

Here is the link to order now - https://united4rare.com/collections/adrenal-insufficiency-united?page=2 (link in bio on IG)

02/26/2026

We are just over 8 weeks away from the 2026 AIU Summit on Adrenal Insufficiency. The entire team is hard at work to bring you as much information as possible in the three days we plan to be together April 23-25, 2026. Our event is taking place at DoubleTree by Hilton Minneapolis Aiport and the Mall of America.

🖥 We are also offering a full virtual conference experience this year!! We are contracting with a professional company to ensure that this experience is top-notch.

Today we are highlighting another fantastic speaker, Dr. Mitchell Geffner.

Dr. Geffner is Professor Emeritus of Pediatrics at the Keck School of Medicine of USC; the Ron Burkle Chair in the Center for Endocrinology, Diabetes, and Metabolism at Children’s Hospital Los Angeles (CHLA); Co-director of the Congenital Adrenal Hyperplasia Center of Medical and Surgical Excellence at CHLA; and former Chief of the Divisions of Endocrinology, Diabetes, and Metabolism at both CHLA and UCLA.

He is also the director of the new Adult Women’s Turner Syndrome Clinic at Keck-USC Medical Center. Dr. Geffner is the author of 200 peer-reviewed research articles, >50 review articles, and >25 book chapters; a participant in 35 study group manuscripts; and part of >285 abstract submissions. He has delivered >550 lectures in various hospitals and scientific meetings over the course of his career.

Dr. Geffner is the pediatric endocrinology co-editor for UpToDate and co-editor of the textbook, “Pediatric Endocrinology: Principles and Practice” (McGraw-Hill). He is also a past President and past Secretary of the Pediatric Endocrine Society. Lastly, Dr. Geffner was the 2022 recipient of the International Outstanding Clinician Award from the European Society of Paediatric Endocrinology.

Please join us and learn from experts in adrenal insufficiency, connect with others with the condition and learn about advocating for your health and well-being in a variety of settings, ( link in bio) https://aiunited.org/aiu_events/

02/25/2026

⏰ The countdown is on: just 3 days until Rare Disease Day!

There’s still time to get involved! Join a local event, share your story online, or light up your home/office to show your support for the rare disease community!

🌍 This global day is about awareness, solidarity, and action. Every post shared, every event attended, and every light that shines helps make the rare visible and reminds us that we are stronger together.
Learn more about how to participate, find events near you, or access campaign materials: https://go.rarediseaseday.org/RDD

This year's worldwide theme is More than You Can Imagine, and the US's theme is More Access than You Can Imagine. Let’s make this year’s Rare Disease Day more than you can imagine. 💪

Let your imagination go, where does it take you with where the rare disease community can go if we. all work together?

02/24/2026

Rare Diseases Europe is a unique, non-profit alliance of over 1,000 rare disease patient organisations from 77 countries that work together to improve the lives of over 30 million people living with a rare disease in Europe.

They are also the worldwide oragnization for Rare Disease Day. Take a look at the video they shared about this year's campaign....

https://youtu.be/7J1oTfoIOGw