10/30/2024
TW AND CW:
Hospital setting, blood, bags of blood, IV lines, port in chest/ central line/ blood transfusion, disease process
It's been a bit since I have updated, and I apologize. I did have my blood transfusion and my iron infusion. I have a couple of pictures that I can post.
Many of you may have seen, that Skyla Long and I have started a hobby/side shop and making some cool stuff that was helping to take my mind off of the daily battle that can consume me if I let it. So, if you haven't yet, go check out Up Close and Personalized and see what we're building! It's a very soft launch, and slower than we wanted, but we have to balance that with the reality of chronic illness and its unknowns. But, it's there to bless others with all customizable pieces, amazing resin art, custom art and paintings, custom vinyl in all forms, even iron-on, handmade jewelry, and we will be bringing in an awesome woodworker whose rings and custom cut wood pieces are gorgeous! He and I will be making custom river tables as well, where he does the wood part, and I do the resin. Guys, it is so beautiful when those mediums combine! Plus, he's an amazing human whose talent deserves to be out there!
But, I digress...
It's so hard to know you were once a part of something so big, like my music family, and then to realize from afar that... while you may be missed, life goes on really without you. No one is here forever, and no one should ever feel that kind of pain of not being a part of the one thing that kept you going for so long. Yet here I sit, seeing videos of the Halloween parties with the bands I was such a big part of, chosen family, sharing love and music, healing. And I feel so disconnected from them, and that right in this moment. I need it like I need air. The music. The songs, covers and my own, all stuck in my head and heart, where I used to scream and sing them out loud to share my story with others. A story of light. A story of love. A story of a warrior, me. Tara. I say I'm not defined by my diagnoses, but it doesn't mean there aren't days where those very things consume me. Like it's eating me alive. Today is one of those days. And frankly, I have pushed away so many people that love me dearly, bc I'm afraid to devastate them when I'm no longer the Tara they know, and following that, when I'm no longer here at all one day. Like a ticking time bomb. But, all that gets me is alone. And if I've ever needed them, it's now. I have to get back to living. I have to. In front of a mic. Telling my story. Sharing my light.
I "met" someone yesterday by a complete stroke of luck, universe, and God colliding to create a perfect moment for a perfect connection. She and I talked for almost 2 hours, only about 30 minutes of it being for the actual reason of the call. But I think the reason was exactly what it turned into, the rest was just the icing on the cake of miraculous intentions. I don't want to @ her in case she'd rather stay in the background, but she just kept telling me how inspiring I am, how beautiful my story is, and how amazing that I am trying to help her when I'm fighting this battle myself. But sweet new friend, that IS ME. That's how I'm blessed. It's how I'm made. Blessing others is my healing. That talk reminded me that I have to stop pushing people away who love me, bc they might need MY STORY to survive their own. I need life again. I need those opportunities to share my heart through songs and stories again. She thinks I blessed her. No, friend, you blessed me.
And to every person reading this... YOU are wanted. YOU are needed. YOU are worthy of love in all forms. YOU are missed terribly, and I would do anything to feel your loving arms around me.
I love you Fight Song family. I have an update, and I'll share that next. This one is just letting you know that I'm not truly ok, but calls like yesterday remind me that I am here for a reason. A purpose. Maybe not in the same way as before. But definitely still here.
I love you. Thank you for loving me too.