ALK Positive

ALK Positive Improving the life expectancy and quality of life for ALK-positive cancer patients worldwide.

Thanks for the idea, 💛Cancer doesn’t always look how people expect.Here’s Juli on her wedding day, with her kids, with ...
01/31/2026

Thanks for the idea, 💛

Cancer doesn’t always look how people expect.
Here’s Juli on her wedding day, with her kids, with her besties, even hanging with Hollywood types — smiling and fully living life.

And yep, still stage 4 lung cancer.
Just a reminder that we don’t see everything someone is carrying.

Kindness matters. Always.

13 years after a stage IV ALK+ lung cancer diagnosis at age 15, Jake Legasse is not just living, but thriving—and even r...
01/27/2026

13 years after a stage IV ALK+ lung cancer diagnosis at age 15, Jake Legasse is not just living, but thriving—and even running marathons.

"Living with this 'setback' doesn’t mean you can’t live your life to your fullest potential," he says.

Read more about how Jake thinks about mindset and copes with uncertainty, and what advice he would give to other young and newly diagnosed people with ALK+ cancer. https://alkpositive.org/blog/patient-spotlight-jake-legasse/

01/22/2026

In this clip from Cancer Nurses Today, Ken Culver shares how nurses support people living with lung cancer every day — helping them navigate complex treatments, manage side effects, and make informed decisions.

For us, advocacy means strengthening those conversations. We’ve developed tools - like our decision aid and zip-code-based clinical trial finder - to help people with ALK clarify their priorities, plan ahead, and engage in shared decision-making with their team.

We are here to make sure our community is not left to figure it out alone.

✨ Together, we did something extraordinary. ✨Because of you—our community, donors, partners, and advocates—we raised ove...
01/16/2026

✨ Together, we did something extraordinary. ✨

Because of you—our community, donors, partners, and advocates—we raised over $3.5 MILLION in 2025 to support ALK-positive patients and families around the world.

Every dollar represents hope.
Every gift fuels research, second opinions, education, and connection.
Every act of generosity brings us closer to better outcomes—and a cure.

From the bottom of our hearts: thank you for believing, showing up, and standing with us. 💙
We are stronger together, and 2026 is just getting started.

🌟 Watch Our First ALKtALK of 2026!Join world-renowned thoracic oncologist Dr. Alice Shaw, the “Queen of ALK,” as she sha...
01/15/2026

🌟 Watch Our First ALKtALK of 2026!

Join world-renowned thoracic oncologist Dr. Alice Shaw, the “Queen of ALK,” as she shares the latest in ALK-positive lung cancer research and what it could mean for future treatment.

🎥 Catch the full replay, including a live Q&A where the community asked Dr. Shaw their most pressing questions. https://youtu.be/Au-DrJ4WAq0?si=YxC-Ka64ushkGQjs

Whether you’re newly diagnosed, in treatment, or supporting a loved one, stay informed, connected, and empowered with insights that continue to shape outcomes for patients.

📌 Presented by ALK Positive
🔔 Subscribe to our YouTube channel for future ALKtALK recordings and community conversations.

01/14/2026

What does progress look like for the ALK-positive community?

During , Ken Culver, our Executive Director and Director, Research & Clinical Affairs, shared with Lung Cancers Today how we actively advocate for people living with ALK+ lung cancer.

By bringing a strong scientific rationale, real-world patient insight, and a clear understanding of unmet need to industry and research partners, ALK Positive Inc. helps ensure our community is taken seriously and included.

Advocacy here means pushing for more clinical trials, more treatment options, and a future where patients have choices — not just hope.

Let’s keep pushing for more advances for all.

🎉 SOLD OUT! 🎉In-person tickets for the 2026 ALK+ Summit in DC are officially gone — and we’re beyond thrilled with this ...
01/13/2026

🎉 SOLD OUT! 🎉
In-person tickets for the 2026 ALK+ Summit in DC are officially gone — and we’re beyond thrilled with this response.

Still want to join us?
✔️ Add your name to the in-person waitlist
✔️ Register to attend live virtually from anywhere

Virtual attendees can participate in live Q&As, chat rooms, interactive activities, and prize opportunities — and be first to hear when session recordings are available.

Join the waitlist or register virtually here>> https://secure.qgiv.com/for/2026alksummit/event/alksummit2026/

***Please note that we do not allow ticket transfers. If anyone offers to transfer or sell you a Summit ticket, this is not legitimate.

If spots open, we will offer them to individuals on our official waitlist. If your plans change and you can no longer attend, please let us know so we can release your spot to the next person on the waitlist.

If you have any questions, please reach out to us directly at summit@alkpositive.org.***

01/13/2026

Meet Sara J. 💙

Sara facilitates our Multilingual Chat / Charla Multilingüe Healing Arts group, a welcoming space for patients and caregivers from around the world to connect, share, and support one another — especially for those whose first language may not be English.

Diagnosed with stage IV ALK-positive lung cancer in 2024, Sara found the ALK-positive community during an overwhelming time and quickly learned how powerful connection and understanding can be.

✨ What makes the Multilingual Chat / Charla Multilingüe special: Language is not a barrier to belonging. This group creates access to support, knowledge, and hope in a way that feels safe and inclusive.

🤍 For anyone feeling unsure about joining: “There’s no pressure to speak or share. You’re welcome to just listen, say hello, or participate in whatever way feels right for you.”

📅 Next session: January 13, 2026 at 3:00 PM ET

🔗 Link in bio

👑 Dr. Alice Shaw returns to ALKtALK this Sunday!A world-renowned leader in ALK-positive lung cancer research and a longt...
01/09/2026

👑 Dr. Alice Shaw returns to ALKtALK this Sunday!

A world-renowned leader in ALK-positive lung cancer research and a longtime champion of our community, Alice Shaw has helped shape today’s ALK-targeted therapies and continues to push the field forward. 🩺

📅 Sunday, January 11, 2026�Dr. Shaw joins ALKtALK to share the latest ALK-positive research, including insights into an emerging MTAP deletion clinical trial and what it may mean for future treatment strategies.

💬 Live Q&A to follow�
📺 Recording will be available on the ALK Positive YouTube channel

We’re honored that ALK Positive’s generous grant to support Dr. Alice Shaw’s pioneering research at Dana-Farber Cancer I...
01/09/2026

We’re honored that ALK Positive’s generous grant to support Dr. Alice Shaw’s pioneering research at Dana-Farber Cancer Institute is featured in Dana-Farber Impact Magazine. Our funding helps advance her work on methylthioadenosine phosphorylase (MTAP) loss in ALK-positive lung cancer — research that could unlock new strategies to improve outcomes for patients worldwide.

Thank you to our donors, advocates, and partners. Together, we turn urgency into action.

📖 Read more: https://alkpositive.org/blog/alk-positive-grants-support-dr-alice-shaws-pioneering-alk-positive-lung-cancer-research/

📣 We’re down to the final 18 in-person tickets for the 2026 ALK+ Summit!Once in-person registration is full, new registr...
01/07/2026

📣 We’re down to the final 18 in-person tickets for the 2026 ALK+ Summit!

Once in-person registration is full, new registrants will be placed on a waitlist, which we will work through as spots become available, while continuing to welcome attendees to join us virtually.

Virtual attendance is free and includes live access to sessions, real-time Q&As, interactive elements, and prize opportunities — no matter where you’re joining from.

We hope you’ll join us > https://secure.qgiv.com/for/2026alksummit/event/alksummit2026/

Heading to the 2026 ALK+ Summit? ✈️You can save on travel and support the ALK+ community at the same time.When you book ...
01/06/2026

Heading to the 2026 ALK+ Summit? ✈️
You can save on travel and support the ALK+ community at the same time.

When you book your flight through Health Care Fares, you get access to discounted airfare — and they donate $10 back to ALK Positive to fuel research, education, and patient support.

Small choices create big impact.
Let your trip to D.C. give back.

👉 Book here: https://healthcarefares.com/en

Address

6595 Roswell Road, Suite G2310
Atlanta, GA
30328

Website

https://secure.qgiv.com/for/am-ml/

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