ALK Positive

Improving the life expectancy and quality of life for ALK-positive cancer patients worldwide.

08/28/2025

When John was diagnosed with ALK-positive lung cancer, he was given 60 days to live. Instead, he and his wife, Denise, created nearly 10 years filled with courage, advocacy, and love.

After his passing, Denise found a way to carry John’s love forward through the ALK Youth Scholarship, honoring his passion for learning and his generous spirit.

She reminds us: “Get all of your affairs in order… take the trips, take the chances, make every memory possible. Live, Laugh, Love and Never Give Up.”

Your legacy can be just as powerful. With our partner FreeWill, creating a will is simple, free, and a meaningful way to ensure your love and values carry on.

👉 Start your free will today: https://www.freewill.com/alkpositiveinc
Connect with us to explore your legacy: email katie.delaney@alkpositive.org

08/27/2025

We are honored to be part of the latest IASLC Lung Cancer Considered Podcast highlighting the 2025 ALK+ Summit.

In this episode, hosts Dr. Stephen Liu and Dr. Narjust Florez speak with ALK Positive board members Summer Farmen, Nancee Pronsati, and Kirk Smith about the Summit experience, the importance of patient advocacy, and how events like this bring the lung cancer community together.

We are grateful to the International Association for the Study of Lung Cancer (IASLC) for shining a light on the voices of patients and caregivers and for amplifying the impact of our work.

🎧 Listen here: https://soundcloud.com/lungcancerconsidered/iaslc-alk-positive-summit/s-RCEZkNLsAeS?utm_source=clipboard%26utm_medium=text%26utm_campaign=social_sharing%26si=8dd15d92a0b549dfb51177af7d5adbec

08/26/2025

Meet Oncogene Cancer Research ✨

Co-founded by our board member Yvonne Diaz and fellow advocate Jan Clark, this patient charity is driven by one mission: improving outcomes for people living with lung cancer.
Both Yvonne and Jan saw firsthand that while targeted therapies can work well, resistance eventually develops. Their vision is to accelerate research across all the oncogene-driven lung cancers.

Read more about their inspiring story here 👉 https://alkpositive.org/blog/introducing-oncogene-cancer-research/?cn-reloaded=1

08/15/2025

For ALK-positive patients who have progressed after targeted therapy, a new clinical trial at Moffitt Cancer Center in Tampa, FL offers renewed hope. This Phase 1 study explores an enhanced form of Tumor-Infiltrating Lymphocyte (TIL) therapy—empowering a patient’s own immune cells with a genetic boost to better recognize and fight cancer.

The trial is open to patients who have:
· NSCLC driven by ALK, EGFR, ROS1, or HER2 mutations
· Safely accessible tumor for TIL harvest by surgical resection or excisional biopsy, expected to yield at least 1.5 cm³ of viable tissue
· Disease progression after standard treatments (including targeted therapies)
· Ability to undergo surgical tumor resection

For more information, visit https://alkpositive.org/blog/clinical-trial-spotlight-tumor-infiltrating-lymphocyte-therapy-for-alk-positive-nsclc-at-moffitt-cancer-center/

08/13/2025

Rick from San José, CA, was on a family trip to Hawaii with his wife and kids when he first noticed the flu-like symptoms that would turn out to be ALK+ lung cancer.

That was 11 years ago, and he has since faced multiple disease progressions and treatment changes. In 2023, he entered a clinical trial for NVL-655, which is now in Phase 3—and he’s still going strong with minimal side effects.

He says, “The most important thing is to always focus on what’s important: your family and friends. Creating wonderful memories by living each day to the fullest. If you work to maintain a positive attitude, you can always push forward.”

Read his story for more inspiration—including tips for scanxiety and insight on clinical trial participation: https://alkpositive.org/blog/patient-spotlight-rick-meyer/

08/07/2025

10+ years.
That’s how long the ALK-positive cancer survivors we celebrated at this year’s ALK+ Summit have been living with this disease.

It’s not just inspiring- it’s a glimpse of what’s possible when research, support, and community come together.

But stories like these shouldn’t be rare. They should be the norm.

This , you can take a powerful step toward that future. With our trusted partner , you can create your will in 20 minutes or less, completely free. You’ll also have the option to create a legacy gift to ALK Positive Inc., fueling research and hope for generations to come.

Make your will today:
👉 https://www.freewill.com/alkpositiveinc?utm_source=partner&utm_medium=eblast&utm_campaign=202508_alkpositiveinc_mawm_soft_event

Your legacy could be the reason someone else reaches that 10-year mark—and beyond.

#10+YearSurvivors

08/02/2025

Today is World ALK Lung Cancer Day 🧬🫁

18 years ago, Dr. Hiroyuki Mano’s discovery of the ALK gene rearrangement changed everything for people with a very specific form of lung cancer - known as ALK-positive. Since then, the science has advanced, treatments have evolved, and a powerful community has formed — giving hope to hundreds of thousands worldwide.

Today, we honor Dr. Mano and every researcher, advocate, patient, and caregiver who has pushed this field forward. We fund research because the next breakthrough is out there — and every step brings us closer to better treatments, longer lives, and a future where no one faces this alone.

To mark this milestone, we’re thrilled to share that the 2025 ALK+ Summit videos are now live on our YouTube channel! 🎥 Whether you joined us in San Diego or tuned in from home, now’s your chance to revisit the groundbreaking sessions, research updates, and inspiring stories that continue to move us forward.

✨ Watch the 2025 Summit videos now:
https://youtu.be/1-XOjN0K2C8?si=1_R9KoFD_H6TxJLQ

08/01/2025

Today is World Lung Cancer Day — a reminder that lung cancer can affect anyone, and that research, awareness, and patient power save lives.

For people living with ALK+ lung cancer, there is still no cure — but there is hope. Because this community refuses to wait. Together, we push for better treatments, smarter research, and answers that come faster.

Every person who raises their voice, shares their story, donates, or drives research forward is part of this progress.

This World Lung Cancer Day, stand with us — and show the world what it means to be .

07/31/2025

Tomorrow is World Lung Cancer Day 🫁

To honor this day and everyone impacted by lung cancer, we’re proud to share something special: a shirt designed by our very own Healing Arts Coordinator, Dana Querido.

This shirt was created to represent all lung cancers. We stand by all organizations pushing research, hope, and understanding forward for the entire lung cancer community. Together as ALK Positive, every step we take is a step closer to better treatments, longer lives, and a future where no one faces this alone.

🛒 Order yours today and get it in time for Lung Cancer Awareness Month this November.
Because when we raise awareness together, we rise together.

https://www.bonfire.com/lung-cancer-awareness-25/

07/30/2025

🎨 The August Healing Arts Calendar is Live!
Join us for 60-minute sessions where connection comes easy and community runs deep.

Whether you’re new or a regular, a patient or a “pALKie,” you’ll find a space that feels like an exhale.

These aren’t just creative classes. They’re moments of being seen, supported, and understood by people who truly get it.

Come to one or come to all.
We’d love to have you.

View the calendar: https://alkpositive.org/living-with-alk/healing-arts/

07/22/2025

Big news for the ALK+ community! 🧬✨

Nuvalent has just announced that the first patient has been dosed in their Phase 3 ALKAZAR trial — testing neladalkib against alectinib as a first-line treatment for ALK-positive non-small cell lung cancer (NSCLC).

Why this matters:
👉 This trial will help answer whether neladalkib could be a new option for people newly diagnosed with ALK+ lung cancer.
👉 More targeted therapies = more hope, more time, and more options for patients.

This is another reminder that progress happens because people — patients, researchers, families, advocates — push it forward every single day.

We’ll be following this closely and sharing updates as they come.

💙 To everyone raising awareness, donating, participating in trials, or showing up for the ALK+ community — you’re making these milestones possible.

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