ALK Positive

Improving the life expectancy and quality of life for ALK-positive cancer patients worldwide.

10/24/2025

ALKtALK This Sunday!

Join Dr. Angel Qin, thoracic oncologist at the University of Michigan and ALK Positive Inc. Scientific Advisory Board member, for the latest on the Gilteritinib trials. Join to be informed and empowered.

💡 What’s new?
💬 What it could mean for you
Live Q&A

📅 THIS Sunday, 7 PM ET
Learn More: https://alkpositive.org/alktalk/

10/22/2025

ALK patients around the world are advocating for better, longer lives for all of us.

ALK Positive Canada VP Katie Hulan shared with us how the organization got started, and their goals to improve patient equity and outcomes, build community and educate, and drive research forward.

“I do believe that the work we are doing with ALK Positive Canada will ripple to other countries, just as other countries’ work ripples to ours,” she says. “It’s the momentum from around the world that breaks down barriers and leads to new innovative approaches… Let’s all keep going!

Thank you to ALK Positive Canada for all you do! Read more: https://alkpositive.org/blog/introducing-alk-positive-canada/

10/15/2025

What if we could stop cancer before it comes back?

Minimal Residual Disease (MRD), the hidden cancer cells that survive treatment, can lead to relapse. That’s why ALK Positive became the first organization to invest in Break Through Cancer’s Powered 2 Cure ALK+ TeamLab, dedicating $2 million over four years to accelerate discoveries that could eliminate MRD once and for all.

This groundbreaking collaboration brings together world-class researchers to better detect and understand MRD and ultimately prevent recurrence.

🧬 Join the conversation on October 21 with Drs. Alice Shaw, Amir Jazaeri, and Jacqueline Garcia on the Breaking Through webinar to hear about how Break Through Cancer investigators are tackling MRD and how your support is fueling research that could change what’s possible for ALK-positive patients.

🎥 Register now: https://us06web.zoom.us/webinar/register/WN_L_25iGojS9mBNzIkRyZcSA #/registration

10/13/2025

🌟 Save the Date: 2026 ALK+ Summit 🌟

July 24–26, 2026 | Washington, D.C.

Get ready to reunite, learn, and be inspired as our global ALK-positive community gathers once again, this time in downtown Washington, D.C.

Hotel and registration information will be announced later this year, and we are already working to make it The Best. Summit. Ever! ✨

📬 Be sure to sign up for our newsletter to stay up to date on the latest announcements: https://mailchi.mp/alkpositive/stayconnected

10/10/2025

What would you do with more time? 💙

During Lung Cancer Awareness Month, we’re raising $2 million for ALK-positive research — because every discovery brings more birthdays, more adventures, and more ordinary, beautiful celebrations.

🎥 Watch the replay of our latest ALKtALK to learn more about this year’s Lung Cancer Awareness Month campaign and how you can get involved. https://youtu.be/Kv3TgL1TQn4?si=H-pn_jYedueeEUq0

Together, we can show the power of research and hope in action.
✨ Learn more and join us: https://secure.qgiv.com/event/lcam25

10/09/2025

💙 Today is National Donor-Advised Fund (DAF) Day!

Across the country, donors are turning their generosity into immediate impact, and you can too.

By recommending a grant to ALK Positive through your DAF, you’ll accelerate life-extending research and sustain programs that bring hope, healing, and community to ALK-positive patients everywhere.

We’re using DAF Day to kick off our bold $2 million goal for Lung Cancer Awareness Month (LCAM) this November - and your support today helps us get a head start.

Make your DAF gift now: https://thegivingblock.com/donate/alk-positive/

10/03/2025

Lung Cancer Awareness Month is just around the corner - and we're kicking things off this Sunday with inspiration, impact, and community.

Join us on ALKtALK as we celebrate the progress we’ve made together and share the exciting opportunities still to come. Marc Muskavitch, ALK Positive multi-medical committee member and patient, will present a research update highlighting the important work of our medical committees. Along with members of our philanthropy team, Marc will share what we’ve accomplished thanks to your support — and how you can help raise awareness and build momentum this November.

💬 Bring your questions! A live Q&A will follow the presentations.

Don’t miss this inspiring start to LCAM 2025. Be part of the energy, the impact, and the hope we’re building together.

(This session will be recorded and uploaded to our ALK Positive, Inc. YouTube channel for those unable to attend live.)

10/02/2025

From running half-marathons to co-authoring medical guidance, Nancee Pronsati has turned her ALK-positive lung cancer diagnosis into action.

After years of being misdiagnosed and finally learning she had stage 4 ALK-positive lung cancer, Nancee didn’t just navigate treatment — she became a leader, advocate, and now a published author. As the former vice president of ALK Positive, Inc., she’s helped create a first-of-its-kind patient-written guide with clinicians to help others manage lorlatinib side effects and have real, informed conversations with their doctors.

No one should suffer in silence, feel powerless in their care, or be afraid to speak up about quality of life. Her story is proof: patients aren’t just surviving - they’re shaping the science.
Read her story in → https://www.curetoday.com/view/from-patient-to-author-emphasizing-shared-decision-making-in-nsclc

09/30/2025

From the floor of , our Director of Research & Clinical Affairs, Dr. Ken Culver, spoke with Lung Cancers Today about the latest advances in lung cancer research.

He highlighted:
🔹 The urgent need for universal biomarker testing
🔹 Why ALK+ patients must be included in major clinical trials
🔹 How new trial data could shape future treatment strategies

“Our patient community deserves to be part of these research opportunities.” – Dr. Ken Culver

👉 Watch the video & read the full article: https://www.lungcancerstoday.com/post/new-data-and-developments-in-alk-nsclc-dr-culver-shares-insights-at-iaslc-world-conference-on-lung-cancer

09/25/2025

This week, our Medical Committee & Board Member Marc Muskavitch joined colleagues at the annual LungCAN Summit.

LungCAN brings together more than 30 lung cancer advocacy organizations and industry partners with one mission: to unite and amplify the voices of the lung cancer community. 💙

It’s a unique opportunity to collaborate, share insights, and ensure our community stays connected to the latest scientific advances and breakthroughs in lung cancer care.

We’re proud to be part of this collective effort to push for earlier detection, better treatments, and increased research funding. Together, we’re stronger. 💪

09/24/2025

What a way to kick off Season 6 of ALKtALK! 🎉

We were honored to be joined by Dr. Christine M. Lovly—a renowned oncologist, researcher, and tireless advocate for ALK patients and families. 💙

She shared updates on Break Through Cancer, the importance of second opinions, and answered audience questions with both expertise and heart.

If you missed it live, you can still catch this powerful replay 👉 https://youtu.be/dVUX0-SWBCw

09/18/2025

When Colin Barton was diagnosed with stage 4 lung cancer at 57, doctors told him he might have two years to live.

But biomarker testing changed everything. It revealed an ALK+ alteration—and with it, access to targeted treatment that gave him more time and better quality of life.

That time reshaped his outlook. Colin saw the power of research, the urgency of advocacy, and the need for community. With that belief, he co-founded ALK Positive, now a global patient-led organization driving research, awareness, and support.

He says, “Even with cancer, I’m one of the lucky ones.” We want every person diagnosed to have the same luck at the best chance of life.

👉 Read Colin’s story: https://corporate.thermofisher.com/us/en/index/newsroom/Our-stories/next-generation-sequencing-targeted-cancer-therapy-colin-barton.html?fbclid=IwY2xjawM3w-lleHRuA2FlbQIxMAABHqyBNLgVig4iVVfGzK8Wcvv6Dyb3LD7VakODyfUdVrMrJGDsaFDIBjOJPnZD_aem_FYIRK3_Hg2gUbEvlW_UkdA

Address

6595 Roswell Road, Suite G2310
Atlanta, GA
30328

Website

https://www.alkpositive.org/, https://secure.qgiv.com/for/am-ml/

Alerts

Be the first to know and let us send you an email when ALK Positive posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Contact The Practice

Send a message to ALK Positive:

Shortcuts

Want your practice to be the top-listed Clinic in Atlanta?