Living A POTsie Life : Raising Awareness for Dysautonomia

04/22/2023

Her sharing with colleagues is an amazing step!!!!

04/14/2023

During one of Adryanna’s appointments the other day, with one of the very few POTS trained specialists in the state of Maine or New England, we were talking about clinics and hospitals that have specialized clinics and doctors for POTS and Dysautonomia disorders….. Cleveland, the mayo clinic and places further west and south do but no local New England medical centers have these. Over the next couple of months, and I’ve already started to reach out to some of the research departments at Shriners, Mass General, Barbara Bush, etc…..and see what we need to do to get clinics, research possibilities, available up here and get some research studies going ….. the long/short goal will be to find a hospital and doctors willing to participate and then put together fundraisers to help fund the research / clinics for our warriors

she has an amazing team of doctors here thankfully, after lots of appts lol, and I think most of them will be on board once I talk to them about it, but I would love if they were the ones as “founding” doctors behind this research and they can help teach others as we go 🙏

Dysautonomia is a condition in which the autonomic nervous system (ANS) that doesn’t function as it should. Your ANS controls things like blood pressure and heart rate.