01/15/2026
NEW IN 2026! We're excited to introduce The Sturge-Weber Foundation Gaming Lounge, a new, relaxed, and welcoming virtual space for kids and teens ages 12 and up who are living with Sturge-Weber syndrome and related conditions. This monthly Zoom hangout is designed to give participants a chance to unwind, connect, and have fun together.
Participants are invited to bring their favorite game, whether it's a video game, mobile game, tabletop game, or online activity, and spend time playing, chatting, and hanging out with peers who truly understand their journey. It's a chance to make friends who "get it" and to take a break from school, medical appointments, and everyday stress. It's just a space to be themselves.
There will also be optional time for conversation and connection, including sharing what life with SWS is like, talking about challenges at school or home, and offering support to one another in a comfortable, judgment-free environment.
This is not a competitive event. It's about building confidence, fostering connection, and creating community. Whether participants want to play, watch, chat, or simply listen, everyone is welcome. If your child has ever felt alone because of their diagnosis, this is a place where they can feel understood and included. Let's game, connect, and grow—together.
Click here to register: https://app.theauxilia.com/registrationEvent/1a22cee3-7ff5-4584-9d87-e23be9fda84c
