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Monday 9am - 4:30pm Tuesday 9am - 4:30pm Wednesday 9am - 4:30pm Thursday 9am - 4:30pm Friday 9am - 4:30pm

The Sturge-Weber Foundation

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Aurora, CO
The Sturge-Weber Foundation

We are here to improve the quality of life and care for families with the rare disease Sturge-Weber syndrome and associated PWB and KT conditions.

What is Sturge-Weber syndrome? Sturge-Weber syndrome (SWS) is a rare disease caused by a GNAQ gene mutation that is present at birth. One in 20,000-50,000 children will be born with SWS each year. This disorder is not inherited and causes a birthmark on the face, glaucoma, epileptic seizures, and developmental disabilities. Each case of SWS is unique, with varying degrees of progressive medical issues. Research is essential so doctors may improve care and quality of life.

09/06/2025

Today is International Sturge-Weber Syndrome Awareness Day! 🌎💜 Join us and others around the globe as we raise awareness for Sturge-Weber syndrome. Like, share, and comment on this post to help us reach more people. Share a photo of yourself celebrating and tag The Sturge-Weber Foundation to show your support and tell us where you are from!
If you’re new to our community, learn more about Sturge-Weber syndrome here: https://sturge-weber.org/new-to-swf/understanding-sturge-weber.html

09/05/2025

Today is the International Day of Charity, honoring the life and legacy of Mother Teresa. Her selfless work reminds us how powerful kindness can be.

You can make an impact right now by supporting those living with Sturge-Weber syndrome. Every donation to the Sturge Weber Foundation helps provide support, education, and hope to our community. 💜

Give today: https://sturge-weber.org/donate-today.html

09/04/2025

We are all smiles seeing our Sturge Weber Community tackle back to school with such poise and energy. Oh the places you will go! We love seeing these milestones and memories made. How was everyone's first few days or weeks back? We can't wait to hear from you!

09/03/2025

Buckle up for an INCREDIBLE month! Sturge Weber Foundation is hosting 5 amazing September events:

- Patient Chat (Sept 10)
- Caregiver Chat (Sept 11)
- Be the Torch. Be the Light. (Sept 15)
- Mini Summit in Madison (Sept 19)
- Team Brielle, Rhode Island Walk (Sept 20)

Don’t miss out—visit https://sturge-weber.org/events/swf-events-calendar.html to register!

09/01/2025

This Labor Day, we honor the caretakers, doctors, nurses, scientists, and advocates who work tirelessly to support the Sturge-Weber syndrome community. Your dedication brings hope, care, and brighter tomorrows for so many families. Thank you for everything you do—today and every day. Happy Labor Day! 💜

08/28/2025

Back to school is always a thrill, and we are SO proud of our Sturge Weber warriors! 💜 Emmett started Pre K 🥰 Mackenzie is 8 and kicked off 3rd Grade (and even did the recycling announcements for her school!). Chloe started her junior year on August 5th.

Want to join the celebration? Drop a school photo or tell us your favorite subject in the comments below! 📚✨

08/27/2025

Good luck to our warriors as you start the new school year! We can’t wait to cheer your successes and see your bright smiles. Share your favorite back-to-school memory or moment with us—your strength inspires our whole community. 💜

08/21/2025

Meet Stevie, one of our brave Sturge Weber warriors! She just had her first treatment and absolutely loves her “special dotty patch.” Stevie keeps asking when she can go back to the hospital to get her patch again—her courage and spirit inspire us every day. 💜

08/20/2025

Midweek smiles and water fun! 💜 We love seeing our SWF warriors soaking up these last summer moments before school kicks off. Keep shining and splashing!

08/19/2025

Big news for families and the SWS community! 🧬 New research shows that blood markers may help us understand—and someday monitor—Sturge-Weber Syndrome and related conditions. These ‘biomarkers’ could lead to earlier detection and better treatments for brain health. Proud to support groundbreaking work that brings hope to our community!

Review the full study and other publications here: https://sturge-weber.org/for-professionals/swf-research.html

08/18/2025

Happy Monday SWF Warriors! 💜 We’re excited to share this sweet photo Cammie Poirier sent in of her amazing daughter—from newborn to graduation. What a beautiful reminder of growth and strength to kick off the week! We hope you all have a great week ahead! Back-to-school season is here, so if you have any first-day or back-to-school photos, share them with us in the comments!

08/15/2025

Happy Friday, SWF Warriors!

What’s everyone up to this weekend? We want to hear from you!

There’s nothing better than seeing smiles from our community.

Check out this big smile (and dinosaur nuggets! 🦖)

What’s bringing a smile to you today?

Address

6105 S. Main Street , #200
Aurora, CO
80016

Opening Hours

Monday	9am - 4:30pm
Tuesday	9am - 4:30pm
Wednesday	9am - 4:30pm
Thursday	9am - 4:30pm
Friday	9am - 4:30pm

Telephone

+19738954445

Website

http://www.sturge-weber.org/

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