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Attending the Scheels Opening event… No, not open yet, but soon!! (August 29th)
05/08/2026

Attending the Scheels Opening event… No, not open yet, but soon!! (August 29th)

05/08/2026

One of the greatest misunderstandings in dementia care is this:

We assume that when memory changes, personhood disappears.

It doesn’t.

The ability to communicate may change. The ability to organize thoughts may change. The ability to initiate, remember, or sequence may change.

But the person is still there.

Still sensing, still feeling, still responding to tone, rhythm, presence, dignity, and relationship.

Too often, our systems begin to treat people living with dementia as tasks to complete, risks to manage, or behaviors to reduce. And the moment that happens, we stop seeing the human being underneath the diagnosis.

I’ve said this before, and I’ll keep saying it:

A diagnosis of dementia should never become permission to diminish someone’s humanity.

This is where I believe our industry still has work to do—not just “person-centered care” written into policy manuals; not just activities calendars; not just compliance modules.

Real personhood means we continue looking for the person even when communication changes.

It means understanding that a man who no longer remembers your name may still feel pride when asked for help. That a woman who struggles with language may still experience beauty, embarrassment, loneliness, joy, frustration, purpose, humor, and love.

It means we stop asking: “What can they still do?” … and begin asking: “How do we help them still feel like themselves?”

Because sometimes the deepest form of care is not correction, orientation, or task completion.

Sometimes it is simply protecting someone’s sense of self in a world that slowly keeps trying to take pieces of it away.

That changes everything about how we approach dementia care, family support, communication, engagement, and even the pace at which we move through the day.

The person they were before the disease is the person they deserve to be with the disease. ❤️

05/06/2026

We don’t talk enough about what happens when “getting it right” conflicts with a person’s right to choose.

We talk about “getting the placement right the first time.” And I believe in that deeply.

But not at the expense of a person’s autonomy.

Because sometimes… what we believe is right and what a person is ready for are not the same thing.

They may choose more independence than we would recommend. They may choose the setting that feels like life—even if we can see the risks ahead.

And here’s where I take a stand:

Our role is not to override that decision in the name of “getting it right” or “appropriate placement.”

Our role is to make sure it’s an informed decision—to lay out the realities; to talk honestly about the trade-offs; to prepare for what may come next.

And then—to respect the choice.

Because “getting it right” isn’t just about clinical fit or longevity of placement. It’s about alignment—between needs, yes, but also values, identity, readiness, and what matters most to that person in this moment.

If we remove autonomy from the equation, we may get a longer stay…

…but a longer stay is not the same thing as the right decision.

05/04/2026

There’s a version of referral work that I’ve never been able to step into.

The one where the conversation starts with what’s open. Where speed becomes the measure of success. Where, quietly or not, the goal becomes filling a bed.

I understand where it comes from. The pressure is real. The timelines are real. The need is often urgent.

But if I’m being honest… I’ve never practiced that way.

Not in eight years of owning an agency.
Not in the 25+ years I’ve spent in this field.

Because the moment the work becomes about the space, we risk losing sight of the person.

And this work—at its core—has never been about placement for me.

It’s about understanding how someone is experiencing their world now. What steadies them. What overwhelms them. What still feels like them in the middle of all the change.

That kind of understanding doesn’t come from a quick intake. It doesn’t come from matching a checklist to availability.

It comes from slowing down enough to actually see.

And I know—that’s not always how the system around us is built. It rewards speed. It rewards movement. It rewards filled units.

But I also know this:

I’ve never measured success by whether a bed was filled. I’ve measured it by whether the placement held.

My reputation has not been built on how quickly I can move someone. It’s been built on getting it right—on helping families make decisions they can live with, on placements that hold over time.

There is a version of this work that is transactional.

And there is a version that is deeply relational.

I’m clear on which one I stand in.

Not because it’s easier.
But because it matters.

For those of you doing this work—especially in the hard, time-sensitive moments—how are you holding that line?

05/01/2026

Recently, my 25-year career was summed up in a single word: “locator.” It wasn’t said with curiosity or even neutrality—it was said in a way that made it clear the work had already been defined, reduced, and dismissed. As if referral work is transactional. As if it requires little more than a list, a few phone calls, and a signed lease. As if the families we walk alongside are simply placements waiting to happen.

And I remember thinking, quietly but very clearly… we’ve lost the plot.

Because the best people in this work are not ‘locating’ anything. They’re holding complexity that most people would rather not sit in. They’re sitting with families in the middle of fear, urgency, guilt, and exhaustion, helping them make decisions they never imagined they would have to make. They’re translating clinical language into something a daughter can actually understand, helping a spouse make sense of what “care needs” really look like at 2am, and turning a list of available options into something that actually fits a human life. That kind of work doesn’t happen quickly, and it certainly isn’t surface-level.

It also doesn’t happen without experience. The people who do this understand state regulations, levels of care, patterns of progression, and the subtle differences between what is promised and what is actually delivered. They know when something feels off, even if it looks good on paper. And maybe most importantly, they stay long enough to understand the person at the center of the decision—not just the diagnosis, not just the budget, but the rhythms of how that person has lived their life.

So when the work starts to feel like “placing,” something important has already been lost. Because at its best, this work slows things down when everything in the system is pushing for speed. It asks better questions instead of offering faster answers. It protects a family’s right to choose, rather than quietly steering them toward what’s easiest or most convenient. It stands in the gap when transitions happen too quickly, and it advocates when something doesn’t sit right—even when that advocacy isn’t the most comfortable or convenient path.

There is also a Code of Ethics behind the work—the family always has the right to choose and has the final say. And we do what is right, even when it costs us. Not because it’s idealistic, but because without that, the entire foundation of trust collapses—and trust is the only thing that makes this work possible in the first place.

I’m proud of this work—not the version that gets labeled or misunderstood, but the version that shows up in the hard moments, when families need steadiness more than they need speed. And I know I’m not the only one who feels that way.

So maybe it’s time we stop accepting language that shrinks the role into something it was never meant to be. Because this has never been about locating.

It’s about standing with families in the middle of uncertainty and helping them find their footing again.

04/29/2026

There’s a contradiction in our field that’s hard to ignore once you see it.

In every other part of society, we’ve become more aware—more careful—with how we speak about people. Language that diminishes someone’s identity, reduces them to a stereotype, or strips away their humanity isn’t just frowned upon… it has consequences. We understand that words carry weight. That they shape how people are seen, treated, and ultimately, how they experience the world.

And yet, in dementia care, we still hear it.

“Runner.”
“Escapee.”
“Demented.”
“Combative.”
“Like a child.”

Said casually. Documented clinically. Repeated without pause.

Somewhere along the way, the diagnosis became permission.
Permission to simplify.
Permission to label.
Permission to speak about someone instead of to them—or even for them.

But dementia does not remove personhood. It does not lower the bar for dignity. It does not give us language exemptions.

If anything, it asks more of us.

Because when someone can no longer advocate for themselves in the same way, our words become part of their environment. They shape how teams respond. They influence tone, approach, even touch. A person described as “combative” will be met very differently than a person described as “frightened” or “protective.”

Same moment. Different lens. Different outcome.

So maybe this is where we begin to shift it.

Not by calling people out. But by calling each other up.

What if instead of:
“Runner” → we said “looking for something familiar”
“Combative” → “protecting themselves”
“Noncompliant” → “not yet feeling safe”
“Demented” → we just… used their name

Small language shifts. Big relational impact.

Because the person they were before the disease is still the person they deserve to be with the disease.

And how we speak about them—especially when they can’t correct us—says everything about the kind of care we actually provide.

Curious how others are thinking about this… What words have you intentionally let go of? And what have you replaced them with?

04/27/2026

I walked into a community recently and heard, “We’ve got a sitter with her today—she’s a runner.”

No one paused. Because nothing about that sentence sounds unusual anymore.

But if we slow it down…

An adult now needs a “sitter.”
A human being has been reduced to a category: “runner.”
And the plan—without anyone saying it out loud—is containment.

That’s not a language issue.
That’s a care issue.

Because the words we use don’t just describe what’s happening. They set the direction for what happens next.

▪️When someone becomes a “behavior,” we focus on managing.
▪️When someone is “non-compliant,” we prepare to push.
▪️When someone is a “runner,” we plan to stop movement.

Same person.
Different words.
Very different care.

And then there’s the softer side of it—the language that sounds kind, even affectionate.

“The little library.”

“Our sweet ladies.” ..or even worse… “Grandmas & Grandpas”

“What a cute little activity.”

It doesn’t sound harmful. But it does something subtle—it shrinks the environment, it softens adulthood, it lowers the expectation of who this person is allowed to be.

We would never speak this way to one another. But in dementia care, we’ve normalized it.

Not because people don’t care. But because the system is fast, the language gets efficient, and no one has stopped long enough to really hear it.

And here’s the part I can’t shake: Language gives us permission.

It tells us—quietly—what’s acceptable.

If someone is “resistant,” it makes sense to push through. If someone is overwhelmed, it makes sense to slow down.

Those are not the same response. But the only thing that changed… was the word.

So if we’re serious about dignity—and I believe most people in this field are—then this is part of the work.

Not as a call-out.
But as a call to pay attention.

To pause before we label, before we document, before we explain a moment to someone else.

And ask: What am I actually saying about this person? And what is that going to allow me—or someone else—to do next?

I’m starting to dig into this more—how language shapes care in ways we’ve normalized but haven’t examined.

I don’t have a clean framework yet.

But I do know this: If we want to change care, we’re going to have to change what we’re willing to say out loud.

If you’re in this work… what’s a phrase you hear all the time that deserves a second look?

04/24/2026

Can we talk about the word “sitter” for a minute?

I hear it all the time in healthcare. “Hire a sitter.” “She needs a sitter.” “Can you sit with him?”

And I get it. It’s fast. It’s easy. It fills a shift.

But every time I hear it, something feels off.

I’m curious—since when do adults need babysitters?

The people we support are grown men and women. They’ve raised families, built lives, made decisions, carried responsibility. Now they’re living through something hard—confusion, fear, changes in their brain or body.

And we call the person with them… a sitter.

That word quietly lowers the bar.

It turns a human moment into a task.
It turns connection into supervision.
It turns skill into just… being there.

But that’s not what good care looks like.

What’s actually happening in those moments—when it’s done well—is someone paying attention. Someone noticing the shift before it becomes distress. Someone creating enough calm, enough safety, that the person can settle.

That takes skill.
That takes awareness.
That takes intention.

That’s not babysitting.

“Sitter” is a staffing term. It is not a care philosophy.

So maybe it’s time we start calling it something closer to what it really is.

Care partner.
Companion.
Support.
Presence.

Not perfect words. But better.

Because language shapes expectation. And expectation shapes behavior.

And if we want better care… we can’t keep using words that make it smaller than it is.

Curious what others are hearing and using. What words show up in your building—and what do they create?

04/23/2026

There’s a tension in acute care that we don’t talk about nearly enough—and it showed up in full force this morning.

A family asked me to meet them at the hospital and advocate. Not to disrupt. Not to interfere. Simply to stand with them and help make sense of what was unfolding around their person. I waited over an hour just to speak with the case manager. In that time, I received a call from leadership—not to understand why I was there, but to reprimand me for showing up at all. I was told there are “proper channels,” applications, fees… as if advocacy requires permission.

When I did finally sit down with the case manager and social worker, the language was immediate and absolute: “behaviors,” “violent,” “aggressive.” Repeated. Documented. Framed as fact. And yet—no psychiatric diagnosis. No specialist consult. No neurologist. No psychiatrist. Just a push toward psychiatric placement without the clinical clarity to support it.

And then something small, but not small at all—a pink heart on the door. I asked what it meant. “He’s violent and aggressive. Be careful.”

That moment stayed with me.

Because what I saw wasn’t a warning system. I saw a label. A shorthand that reduces a human being—someone’s father, someone’s partner—to a risk profile. No context. No curiosity. No attempt to understand what might be driving the distress.

This is where advocacy collides with the system.

Families are trying to slow things down, to ask better questions, to understand the “why” behind what’s happening. Advocates step in to support that process. And too often, the response is resistance. Not collaboration. Not partnership. But protection of process.

We say we want patient-centered care. We say we value interdisciplinary teams. But when voices outside the system ask hard, necessary questions, they’re often treated as interference instead of insight.

Here’s the tension: discharge planning has become a place where authority can outweigh inquiry. Where speed can outrun understanding. Where those closest to the person—the family, the ones living this every day—are expected to fall in line rather than be brought in.

And yet… those are the very voices that hold the story. The patterns. The baseline. The nuance you cannot capture in a chart note.

So the question becomes—how do we advocate in spaces that don’t always welcome advocacy?

Maybe it starts here:

By continuing to show up.
By asking the questions anyway.
By reframing “behaviors” into communication.
By insisting—respectfully, persistently—that a person is more than the worst moment they’re having in a hospital room.

And by challenging, with professionalism and clarity, the idea that anyone in this system is the final authority on what’s right for a human life in transition.

Because they’re not.

Not without the family.
Not without the full picture.
Not without taking the time to actually understand.

This is the work.

And it’s not going anywhere.

04/22/2026

There’s a real tension in referral work—and honestly, it’s one of those quiet fault lines that doesn’t get talked about enough.

Families want to be close. Of course they do. Proximity feels like love in action. It makes showing up easier. It reduces guilt. It gives a sense of control in a moment that often feels anything but.

And yet… sometimes convenience becomes the loudest voice in the decision.

Not who mom was.
Not how dad has always spent his days.
Not what actually brings them to life.

Just… “we need something close.”

I find myself slowing those conversations down, not to challenge the intention—but to widen the lens.

Because when I’m asking about what they did for a living, what a good day looked like, how they spent a Saturday afternoon—it’s not small talk. It’s not me being difficult. It’s the work.

And I know how it can land sometimes.

It can feel like too many questions.
It can feel like someone is “pushy”.
It can feel like a “sales process.”

But what’s actually happening—at least for those of us who take this seriously—is something very different.

We’re trying to understand a human being before we ever suggest a place for them to live.

Not all “sales” is selling.
Not all questions are pressure.

For those of us doing true consultative work—referral partners, advisors, people who understand that this decision reshapes someone’s daily life—we’re not trying to steer you toward a community.

We’re trying to protect the outcome.

Because “fun, upbeat, active” sounds great on paper. But what does that actually mean for them?

Are we talking about someone who loves music and conversation? Or someone who prefers quiet, routine, and a familiar chair by the window?

Because those two people will experience the same community in completely different ways.

And here’s the harder question—the one I don’t think we ask often enough:

If the community is convenient for you… but doesn’t fit them… what does their day actually look like?

Are they engaged?
Are they known?
Are they finding rhythm and connection?

Or are they sitting in a beautiful building… in a convenient location… watching the hours pass?

Fit matters more than most people realize.

It shapes whether someone leaves their room.
Whether they find “their people.”
Whether they feel a sense of belonging—or spend their days waiting.

So yes—convenience matters. It’s part of the equation.

But it cannot be the lead variable.

Because at some point, we have to gently ask ourselves:

Are we choosing a place that makes it easier to visit… or a place that makes it easier for them to live?

The best outcomes don’t ignore convenience—but they don’t start there either. They start with the person. Always.

And then they build outward from there.

I’m curious—both from families and professionals—where have you seen this tension show up?

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2006 S. Bagdad #190, Leander
Austin, TX
78641

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