National Pandas/Pans Youth Alliance

01/24/2026

Listen up to ’s AMAZING speech at the Texas Capitol on October 9th, 2025! 🗣️🗣️🗣️💚

Trent’s story is nothing short of incredible, and his resilience + commitment to advocacy are both truly outstanding.

We’re so grateful to have him in NPYA!

01/23/2026

‼️💚

📣 Missouri Families — We Need You 🔊

Missouri PANS PANDAS Coalition (MPPC) needs you to get involved today.

Progress is being made in Missouri, but real change only happens when legislators hear directly from the families they represent.

You don’t need to be an expert in policy or medicine.
You are the expert in your lived experience.

Your story matters. Your voice matters. And we’ll guide you every step of the way, always at your comfort level.

👉 Everything you need is right here:
🔗 https://aspire.care/featured/missouri-pans-pandas-updates

✅ CTA #1: Stay Connected

Help us reach you quickly and consistently when action is needed.

📝 Fill out the Missouri Contact Form:
🔗 https://aspire.care/featured/missouri-pans-pandas-contact-form/

🏛️ CTA #2: Contact Your Senator

Please reach out to your state senator, request an in-person or virtual meeting, or send a letter or email.

📌 Share:
• Your family’s story
• Why PANS/PANDAS care matters
• How lack of insurance-based care has impacted your child and family
• Ask them to support SB 1263 (Colton’s Law)

🗂️ Talking & writing points provided here:
🔗 https://aspire.care/blog/legislative-talking-writing-points/

Legislators expect to hear from constituents and your voice helps them understand what this looks like in real life.

💚 This is a marathon, not a sprint.
And change happens voice by voice, family by family.

01/13/2026

PANS/PANDAS takes so much from us and is often devastating… but does it also (begrudgingly) teach us a few lessons?

Listen to what Jillian has learned from having PANS! 🗣️

12/24/2025

Need a last minute Holiday gift AND want to support a good cause?! 🎁💚 Check out NPYA’s Art Sale!

Select featured art work is created by PANS/PANDAS survivors such as Kate Landis! Link in bio

12/21/2025

Our FIRST EVER BOOK has been OFFICIALLY PUBLISHED! Check out the link below for access - it's all about how to get into PANS/PANDAS advocacy for youth. We cover everything from awareness proclamations to state-level insurance mandates to federal research funding advocacy and much more! The first 20 to buy our book ($10.00) will get their donation matched by an anonymous donor, so hurry!

https://www.nationalpandasyouthalliance.org/store/p/how-to-advocate-a-youth-survivors-guide-to-panspandas-advocacy

12/15/2025

Huge thank you to Jillian for showing us 10 ways she accommodates her daily life during a PANS flare!

What’s one accommodation or tip that helps you get through a PANS/PANDAS flare?
Comment below and let us know ⬇️

💚 Everyone’s symptoms can look different. This is one person’s lived experience, and as always, please consult a trusted healthcare provider before trying new accommodations.

12/10/2025

Let’s go Missouri!!! 💚

12/09/2025

Listen up for Kirk’s TOP THREE lessons learned through advocating! 🗣️‼️

They might just surprise you…

Advocating isn’t only about helping others, but it teaches you a LOT about yourself along the way! And your story and voice deserve to be heard. 💚

P.S. A little guidebook to help you get started advocating may or may not be dropping in a few days… 👀🤫 Stay tuned!

11/25/2025

We wanted to explore how PANS/PANDAS and PTSD might relate to each other, so we asked our NPYA members to take a quick internal poll.

Please note: this is NOT an official study. These results only reflect the experiences of NPYA members who chose to participate and cannot be generalized to the entire PANS/PANDAS community.

That said, the responses were super interesting:
📊 Out of 14 respondents, 79% (‼️) reported having a PTSD diagnosis.

We’re excited to see how research in this area grows in the coming years. And if you’re struggling with PTSD related to PANS/PANDAS, please remember you are not alone. 🤍

Huge thanks to Jillian for creating this awesome post!