10/11/2024
Team Addison USA We grieve for you Michael, and are so very deeply sorry you lost your fight to Addison's Disease due to lack of proper treatment...Thank you for all you did for your team in Germany...May you find infinite love and peace with the Angel's in Paradise..Sending love to your family and Nadine....🫶❤️ We will continue to spread Awareness and fight for proper treatment in honor of all the soul's we have lost too soon and unfortunately, including you dear Michael Scharf....🙏🩵🙏
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Hey,
My Name is Nadine. I myself don't have Addison' disease. But my boyfriend Michael had it.
12 years ago we had a hard time figuring out whats wrong with him. We went to multiple doctors but no one could help him. At some point he suffered a collapse and was admitted to the intensive care unit. They didnt know whats going on so they just gave him everything and hoped for the best. Luckily they also gave him cortisone. He nearly died that day. A urologist who was interested in rare diseases found out a few days later that he had Addison's disease. We finally had a diagnosis after 6 months of running from one doctor to another.
He started learning all about Addison's Disease, read multiple studies and then found out about Team Addison's Global. Because of Team Addison's Global he started with running and weight lifting and was always so proud of what he can do despite the illness. And i was too. You guys helped him to be a better version of himself. And to give something back he started helping others that struggle with Addison's and give them advice on multiple discussion boards and FB Groups in Germany, cause he sadly learned himself how hard it is to be heard with such a rare disease.
It was always a fight when he needed to go to the hospital because of an Addisonian crisis and not being taken seriously. He was sometimes so angy about the ignorance of the doctors not willing to learn something about it and that people need to beg for help and need to explain themselves in such a struggling situation instead of just helping them.
On 11th September 2024, just 2 days after my birthday, he woke up at night with really bad back pain. He went to our doctors office early in the morning, because he thought it might be a crisis. She was alarmed cause his blood preasure was really high which is unusal for a crisis. She called an ambulance and let him brought to the ER. They just run a blood test and an ECG and send im home.
No treatment,nothing. Still in pain and with high blood preasure. He collapsed some hours later and had a seizure so i called the ambulance again and they took him to the hospital again. But without even examine him they told him that he can go home or into the psychiatry. So we went back home, where he collapsed again a few hours later after hours of pain and not understanding why they dont helped him at the hospital even though he was there 2 times that day. I called the ambulance again and they took him back to the hospital and I wasnt allowed to come with him. I called after an hour as they told me and at this point they where already reanimating him. They tried it for nearly 2 hours.
He passed away on 12th September because of an aortic dissection which could have been found and fixed if they just had examined him properly.
He always tried his best helping others and encouraging them to make themselves been heard and seen and to outgrow themselves even with a medical condition like Addison's disease.
Sadly at the end he wasnt been heard and seen by the doctors which makes it so much worse to know that he could still be here and so much more important that you keep on spreading awareness and raise your voices.
He was so proud of all of you ❤️
Www.teamaddison.se
