NYS Rare Disease Coalition

NYS Rare Disease Coalition Contact information, map and directions, contact form, opening hours, services, ratings, photos, videos and announcements from NYS Rare Disease Coalition, Baldwinsville, NY.

Collaboration page for individuals in the rare disease community to learn about Rare Disease Advisory Councils (RDAC) through the National Organization of Rare Disorders (NORD).

Please take a moment to send a quick email!
10/02/2024

Please take a moment to send a quick email!

NORD is a registered 501(c)(3) charity organization. Please note that NORD provides this information for the benefit of the rare disease community. NORD is not a medical provider or health care facility and thus can neither diagnose any disease or disorder nor endorse or recommend any specific medic...

09/27/2024
I am looking for individuals in NYS who either have a rare disease or a loved one with a rare disease to join the NYS Ra...
09/27/2024

I am looking for individuals in NYS who either have a rare disease or a loved one with a rare disease to join the NYS Rare Disease Advisory Council with me!

If you are interested please email Carol Sheridan at csheridan@raredisease.org

06/19/2024

Welcome to the NYS Rare Disease Coalition. The mission of this group is to advance advocacy and work towards legislative changes in NYS.

In addition, we will work closely with our fellow rare disease community members outside of NYS to increase or start Rare Disease Coalitions in their states!

Address

Baldwinsville, NY

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm
Saturday 9am - 5pm
Sunday 9am - 5pm

Telephone

+13156578151

Website

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