The Johns Hopkins Scleroderma Center

04/07/2025

Congrats Dr. Wigley!

Congratulations, Dr. Fredrick M. Wigley, Physician of the Year!

Dr. Wigley’s skill and compassion inspires his colleagues and has made a difference in the quality of life of countless patients with scleroderma. “He does all of this work with a spirit of kindness and generosity that is unmatched,” said a colleague.

Learn more about Dr. Wigley’s work here: https://www.hopkinsmedicine.org/clinical-awards/2024-awardees/physician-of-the-year -wigley

07/15/2024

JOIN US for our August Virtual Education Session with Dr Laura Hummers!

WHEN: Saturday, 10th August at 10:30 AM AEST
WHERE: Online via Google Meet
COST: It's FREE!
TOPIC: Scleroderma and Pregnancy

Dr Laura Hummers is an Associate Professor of Medicine in the Division of Rheumatology at John Hopkins in New York. She graduated from the University of Rochester School of Medicine and trained in internal medicine at Thomas Jefferson University.

Dr Hummers then pursued her rheumatology fellowship at Johns Hopkins University, and has been on the faculty working at the Johns Hopkins Scleroderma Center since 2003 where she has been Co-Director of the Center along with Fredrick Wigley.

She received her ScM degree through the Graduate Training Program in Clinical Investigation from the Bloomberg School of Public Health in 2010. Dr. Hummers also serves as Clinical Director for the Division of Rheumatology.

This event is not to be missed!

See you there!

Registration link in the comments.

03/20/2024

KU Medical Center and TMA host the 2024 Regional Conference for Myositis Patients.

This virtual, half-day conference features sessions covering cancer in myositis, speech and swallowing issues, pulmonological and rheumatological complications, physiotherapy treatment and exercise, as well as break-out rooms by diagnosis for research updates and physical therapy considerations.

This event is at no cost to the myositis community, register today at the link below.

https://us02web.zoom.us/meeting/register/tZUlceCoqTIjGtFZuSPKcUvoTg97uaFL1umK

03/19/2024

Did you know? Affecting approximately 50 million Americans, autoimmune disease is more prevalent than cancer and heart disease.

It's time to make autoimmune disease a national priority 👊

Learn more at https://autoimmune.org/autoimmune-awareness-month/.

03/01/2024

Mark your calendars for this year's International Annual Patient Conference in Baltimore!

Connect with myositis peers, explore treatment options, and embrace living your best life. Meet experts, organizations, and innovators dedicated to advancing myositis care.

Registration opens in early April, but while you’re waiting, you can explore the tentative event schedule on our website today!

https://www.myositis.org/myositis-library/annual-patient-conference/

03/01/2024

March is Autoimmune Awareness Month! Myositis is one of more than 100 known autoimmune diseases affecting approximately 50 million Americans. Follow theAutoimmune Association for more information about all types of autoimmune disease all month long.

03/01/2024

We hope you join us in March for our All Seated class. This is an interactive yoga class with instructions, demonstration, and feedback from the instructors. It is not recorded since we ask our students to have their videos on so we can offer options based on what we see. Hope to see you there!

02/29/2024

🚨 IT'S OFFICIALLY RARE DISEASE DAY ACROSS THE GLOBE 🚨

Join us in marking Rare Disease Day 2024 now that it's finally here! Let's unite in solidarity with the millions worldwide living with rare diseases. 🌍 Spread awareness, share stories, and show support for them.

Together, we can make a lasting impact and shine a light on these often overlooked!

Let's make today count by raising awareness and advocating for those who need it most. Every voice matters in the fight for understanding and support.

Visit our website to find out more:https://www.rarediseaseday.org/

02/16/2024

We are not naive to the numerous challenges rare and medically complex patients face, and we want to start making some changes. We know how difficult it can be navigating healthcare when you don’t fit into any of the existing boxes.

Join us this Rare Disease Day as we begin to discuss the specific obstacles, we experience in trying to access the care that we need and prepare for a conversation about how we can use our voices and stories to create change.

Additionally, we have heard our west coast members and will be offering a second session at 6:00 PM PST as well. Attendees can choose to register for one or both. The conversation will be centered around the same topic, just offered twice to accommodate different time zones. Hope to see you there!

Register at bit.ly/complexpatients
Questions? Email info@oley.org