Stormy Brooklyn's NICU Journey

07/27/2025

Could all my prayer warriors and manifestation warriors, please send up prayers and good vibes for our little munchkin. She's been going thru it for the past month and she's finally hit the worst of it. We are in Baltimore with no idea of discharge. This has been a nightmare for all family members and close friends. We just pray God blesses the doctors with the wisdom to guide them to heal her correctly, a speedy recovery and a quick return home!! 🙏🏾🙏🏾🙏🏾🙏🏾🙏🏾🙏🏾❤️❤️❤️❤️❤️❤️

12/27/2024

Hey everyone! So since I've been home I've gotten to celebrate Halloween, Thanksgiving and Christmas so far! I love the holidays! It's so much excitement and joy and bright colors!! I told my mommy and daddy to upload all of my most recent pics....so here they are!! Please enjoy!!!!🥰🥰🥰🥰🎁🎁🎄🎄🎄🎉🎉🎊🎊🎊🦃🦃🦃🦃🦃🦃🎃🎃🎃🎃🎃🎃

08/09/2024

Hey everyone!! While my mommy and daddy have been surviving at work I've been making great strides!! I'm 4lb 13.3oz!!

First I'm officially on low flow oxygen 1 liter meaning I'm one step closer to going to room air which is what I need to go home!! I have been at 100% all day so far so they're weaning my oxygen amount down to see how I do!!

Second my head ultrasound has come back normal and still clear! So now I don't have to get those yucky head ultrasounds except once every 2 weeks now!! Yay me!!

My eyes are still ok so far no intervention is needed which is great! Just waiting and watching....no pun intended 🤣🤣🤣

My feeding tube feeds have been condensed down to 30min/42ml! Everyone is very proud of me because I've not had really bad acid reflux and no spit ups! This is also another great step towards me going home.

The biggest news yet......I finally took a bottle! Yesterday I took 4ml which I kinda struggled with and got tired but now that I've found my sweet spot as far as oxygen goes, I took 10ml today! Everyone was extremely impressed!! And no events, or oxygen drops the whole time!

Yesterday night I loved my night nurse so much I stayed up most of the night sucking my pacifier and playing with her! My mommy and daddy think the nurse has very similar characteristics to my mom mom who passed. I wish I could've met her but if she's like my nurse then I know she was a great person!!

Welp that's all the excitement for now. Well kinda, my mommy and daddy have a tentative discharge date for me but don't wanna say just yet so stay tuned!! 😉😉😉

Love Stormy ❤️

08/03/2024

08/03/2024

Hi everyone!! Sorry it's been a minute! I've been super busy growing and being cute and my mommy and daddy have been busy with work. Yuck! Anyway, I've been doing really good!

First I'm up to 2kg which is 4lb! Today I'm 4lb 8.2oz! This is a huge accomplishment for me! Plus I'm up to eating 40ml of food every hr and a half! My nutritionist said I'm doing amazing and my levels are spot on!!

Next, I'm in a big girl crib!! No more incubator! I'm also no longer on CPAP! I'm on high flow oxygen and this makes me one step closer to coming home!

I get to start bottle and breastfeeding starting tomorrow! I'm getting to be such a big girl! Mommy and daddy are so proud and excited! I love to be talked to, sung to and read to. Mommy read me 4 books today!

I had my echocardiogram yesterday and nothing but great results! My heart is functioning great and working less hard since my lungs are improving! Plus I kinda tried to fist fight the technician and throw gel everywhere! I didn't want that machine to touch me!

My eye exam is Tuesday and unfortunately it looks like I may be back to stage 2 on my ROP. Mommy says no need to worry nothing a little prayer and love won't fix.

You know what else prayer will fix, my ultrasound results. It seems as if my ventricles have had a tad bit of an increase 😳. The doctors don't seem concerned but mommy and daddy aren't happy so we're asking our prayer warriors as mommy calls you guys to rally in full force to rebuke this with prayer, love, and positivity! I know everything is gonna be just fine but I don't like seeing my parents stressed! I'll be home soon thank goodness!! Mommy still reiterates how much I am loved by everyone!! 🥰🥰

Love Stormy ❤️

07/25/2024

Hi everyone! I've been doing really well! They finally upgraded me to big girl feeding so now I get 36ml every 2hrs! I've handled it well with no spit ups or events. I also was up to 3lb 15oz but today I'm 3lb 14.9oz. That's ok because I'm still a chunker!! My mommy started back to work and it's hard on her mentally! She really misses me! My nurse said mommy calls every 3hrs almost but she's trying to wein back! I told the nurse to tell mommy and daddy I love them and I'm proud of mommy for doing what she thinks is best for all of us!! Plus I get the weekend with both of my parents!!! And my nurses and providers have been giving me extra loves and snuggles since mommy's been gone so it's a win win!! Hopefully I'll gain weight for tomorrow and keep the good news coming! Please continue to pray and keep the love and positive thoughts coming!!

Love Stormy ❤️

07/21/2024

Hi everyone! I'm feeling so much better after my shots!! Now I'm awake, alert and enjoying all the snuggles and play time with my nurses, mommy and daddy!

Yesterday daddy came back and got to hold me for the first time without my tube and CPAP! I discovered his face and omg daddy has facial hair!! I was stunned!! Daddy also played peek a boo with me and I thought it was the funniest thing ever and realized my daddy is magical! My mommy just stared at us!! I'm not sure why. But anyway I'm doing great now! I'm also 3lb 10.2oz!

Keep the positivity, love and support coming!

Love Stormy ❤️

07/19/2024

Hey everyone! So the past few days have been good! Mommy has been holding me and loving me all the time now! However, mommy and daddy plus my respiratory therapy team and nurses are butting heads with my providers because they want to wean me off my oxygen support as quickly as possible which is not the most beneficial for me! Slow and steady right?!

Anyway, I also got my 2 month shots yesterday and I haven't been feeling the greatest since. I had a fever early this morning that was treated with tylenol and is now under control and I've been super lethargic and not very responsive. I've scared everyone a few times by having a few events because I've been sleeping so heavy. Because of this, they finally decided to listen to mommy that something was wrong and upped my RAM pressure to 7 where I should have stayed and they are doing blood work to check my red blood cell count plus an Xray. I even had to get deep suctioned to check for a blockage. Yuck!!

I'm beginning to come around slowly but if I don't feel better they may do a septic workup to make sure I'm not getting sick. Please pray and send positive vibes that I feel better soon and there's nothing wrong, and pray for my parents because they're definitely stressed right now. 🙏🏾🙏🏾🙏🏾🙏🏾🙏🏾🙏🏾

Love Stormy ❤️

07/16/2024

Today is another good day!! I did so well on my CPAP yesterday that they moved me to what's called a RAM CPAP. It doesn't blow air in my face and I can squish my face into mommy's chest now! We got the best news yet that I went from ROP stage 2 to stage 1, meaning my eyes are normal! It could change but so far awesome news! My mommy said it's all thanks to everyone's prayers and God himself. I don't know what that means yet but it sounds good!! I'm a lot more alert today and mommy was even able to rock me to sleep. I get to come out more and interact now!! Just keep praying for me, my mommy and my daddy and all positive thoughts only!!

Love Stormy ❤️

07/15/2024

Thanks for being a top engager and making it on to my weekly engagement list! 🎉 Robert Shrieves, Jay Hinton, Amanda Nebel Lawrence, Tashala Nicole, Oma Ann Meade

07/15/2024

Just in case anyone wants to help out this my registry mommy created! They need everything because I'm so early to the party!!

https://www.amazon.com/baby-reg/rochelle-brown-august-2024-newchurch/21MQBSP1C6WAD

https://www.target.com/gift-registry/gift/stormybrooklyn

http://api-shein.shein.com/h5/sharejump/appjump?link=Vxe7DHvS6pF&localcountry=US&url_from=GM7535488834467262464

Love Stormy ❤️

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07/15/2024

So yesterday mommy and daddy took some time for themselves which although mommy felt guilty, they definitely deserved! They got a call around 3 letting them know that I've been doing so well the past few days that they are weeing me down on my CPAP pressure from an 8, which is the highest to a 7!! Mommy said I'm doing amazing since I've only had this thing on 72hrs.

Well mommy just got word that because I'm still doing way better than they expected....I'm going to a CPAP pressure of 6 today!!! The lowest is 5 before they try me with no oxygen support!!!

Mommy and daddy are very proud and mommy has been released to go back to work because I still need stuff for my room since it looks like I'm trying to check myself out of the NICU sooner than my due date as anticipated but we shall see!! Thank you all so much for your continued love, prayers and support! Mommy tells me all the time how much I'm loved!!

Love Stormy ❤️