SPS is BS

SPS is BS A page in support and helping of people with the 1 in a million rare Stiff Persons Syndrome. We are He was 57 when dx, died at 62 from SPS.

We are trying to raise awareness and help for those whom suffer with Stiff Person Syndrome (SPS) by guidance in our closed group which is affiliated with this page. We are trying to raise awareness for clinical trials, genetic testing and helping those afflicted by this syndrome and such reasons. We need to raise awareness so we can have people be properly diagnosed and treated as well as find out

more information about SPS, the causes, genetic factors and what can help more. There is a genetic link as my father had SPS and died from it and I myself was diagnosed in 2015. I was 26 when symptoms started, 32 when dx with SPS. We need more knowledge, education and research to help everyone we are able to! Thank you for being a part of this amazing group of people!

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Belfast, ME
04915

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+12075056299

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