The National Alliance to Advance Adolescent Health

11/04/2025

09/16/2025

OBJECTIVES. Research pertaining to disparities in access to health care transition preparation is limited. This study examined a broad set of individual, family, and health system characteristics to determine which are associated with disparities in receipt of health care transition preparation serv...

09/16/2025

OUT NOW: A new article from The National Alliance to Advance Adolescent Health/ Transition, in collaboration with State Health Access Data Assistance Center (SHADAC) at the University of Minnesota School of Public Health, has published a new article in the American Journal of Preventive Medicine. The study, which was funded by the Lucile Packard Foundation for Children's Health, analyzes health care gaps among adolescents and young adults across three age groups and explores how sociodemographic, health status, and health care access variables are associated with those gaps. The article highlights a higher rate of care gaps among young adults compared to adolescents and presents recommendations to help reduce lapses in care.

12/16/2024

We are beyond thrilled to have Grantmakers In Health highlight our recent efforts with Lucile Packard Foundation for Children's Health and WITH Foundation. Read "Investing in Inclusion: How Health Philanthropy Can Prioritize the Needs and Perspectives of Individuals with Disabilities" now!

One in five children in the United States has a special health care need requiring more than routine health services, and one in four adults report having a disability. As 70 million adults and 14.5 million children in the United States have a disability, the population impacted by issues in the agi...

10/03/2024

These 6 educational videos will highlight key timelines for health care transition (HCT) from pediatric to adult-focused health care, and strengthen collaboration and coordination between clinicians, specifically for youth and young adults with spina bifida.

10/03/2024

Access professional tools and resources for spina bifida care through this AAP website. Discover comprehensive and up-to-date information, guidelines, and recommendations to support healthcare providers in delivering high-quality care to individuals with spina bifida. Explore educational materials,....

05/23/2024

The National Alliance to Advance Adolescent Health / Got Transition has released two impressive new reports and three policy briefs on the significant challenges and inequities that youth and young adults with disabilities face when aging out of Medicaid, CHIP, SSI, and Title V Programs. With funding support from Lucile Packard Foundation for Children's Health and WITH, the reports are the result of a two-year effort to bring new attention to the challenges and inequities faced by this vulnerable population during such a difficult time in their lives.

The National Alliance to Advance Adolescent Health/Got Transition has released two new reports and three policy briefs on the significant challenges and inequities that youth and young adults with disabilities face when aging out of Medicaid, CHIP, SSI, and Title V Programs.

05/15/2024

ONE WEEK until our upcoming webinar, "Aging Out of Public Program Services: Barriers, Inequities, And Recommendations" with Lucile Packard Foundation for Children's Health and WITH! Register NOW and learn more about the cliff that youth w/ disabilities face when moving to adulthood in and

05/26/2022

We are excited to announce a new grant award from the Lucile Packard Foundation for Children’s Health to address the cliff that low-income youth with special health care needs (YSHCN) face as they age into adulthood and lose their child eligibility status in 4 major public programs: Medicaid, Children’s Health Insurance Program (CHIP), Supplemental Security Income (SSI) Program, and Title V Programs for Children with Special Needs. Read more in our press release!

This press release describes a new grant award from the Lucile Packard Foundation for Children’s Health (LPFCH) to to address the cliff that low-income youth with special health care needs (YSHCN) face as they age into adulthood and lose their child eligibility status in 4 major public programs: M...

04/06/2022

Young adults with intellectual and developmental disabilities (ID/DD) and their parents and/or support persons have unique needs during disasters and emergencies which require additional planning. Many look to their primary care teams to assist them in the planning for such stressful times. The National Alliance to Advance Adolescent Health, with support from the WITH, has developed an Emergency Preparedness Toolkit for Young Adults with Intellectual and Developmental Disabilities and their Primary Care Team. The toolkit includes two tip sheets to assist primary care teams and their young adult patients with ID/DD to plan for disasters and emergencies, with guidance on creating personalized disaster emergency care plans.

A toolkit with two tip sheets to assist primary care teams and their young adult patients with ID/DD to plan for disasters and emergencies. The toolkit was developed with an expert advisory group with members from the major primary care professional societies and disability advocates, and it is avai

01/18/2022

We were so excited to kick off 2022 with a newly-elected Board Chair here at The National Alliance: Real Talk with Dr. Offutt has been an advocate for teen health for many years, and we have always treasured her input as a Board member. Looking forward to working with Dr. Offutt in her new leadership role. Congrats!

01/13/2022

Two upcoming webinars from The National Alliance to Advance Adolescent Health & Got Transition will explore new tools and exciting approaches to improving health care transition.

The first webinar ("Health Care Transition Skill Building: Tools for Students, Families and the IEP Team" on January 19th at 12pm noon ET) will explore a newly created HCT checklist for use with the IEP team. The second webinar ("Designing Value-Based Payment Innovations for Pediatric-to-Adult Transitional Care: Lessons from the Field" on January 26th at 1pm ET) will provide a step-by-step approach to designing value-based payment innovations for HCT.

Register today!

Register today for two January webinars on health care transition UPCOMING WEBINARS EXPLORE NEW HEALTH CARE TRANSITION TOOLS AND APPROACHES *Webinar 1: Health Care Transition Skill Building: Tools for