Wisconsin Bleeding Disorders Network

02/15/2022

Rare bleeding disorder expert, Dr. Diane Nugent is back! This virtual session is only open to individuals with an ultra-rare Platelet Deficiency (such as Glanzmann's Thrombasthenia), as well as their caregivers and immediate family.

Those who have previously registered for the One Drop program are currently signed up to attend and no further action is needed.
Qualifying individuals are encouraged to register at: https://nspiration.foundation/one-drop

Serving rare bleeding disorders since 2012.

02/12/2022

Who is ready to get together?
Our first event is on the books for March 10th!

12/21/2021

The first generation of people with hemophilia to live past 50 are aging in a world that doesn’t know what to do with them. “I wasn’t expecting to be alive past 12, then 15, then 35-ish, and now I’m a fluffy 50 and having to deal with a system that’s not ready for me,” said Bobby Wiseman...

09/23/2021

From our friend at Network for Good:

Financial Assistance Grants for people with chronic conditions

All,

We have been contacted by the Colburn-Keenan Foundation, who've asked us to reach out to you to let you know of funds they still have available for 2021, see below.

Individual Financial Assistance Grant program where individuals and families can apply to us for financial assistance, up to $2,000, to meet their urgent medical, basic survival, and quality of life needs. Due to the large award amounts, this application is quite lengthy and we do require supporting documentation.

Emergency Assistance Grant program where individuals and families can apply to us for financial assistance, up to $500, to cover an unexpected bill such as a car repair, appliance repair, high electric bill, etc. The requested bill must be included with the application and the $500 must cover the majority of the bill with an explanation as to how the difference will be paid.

If want to go ahead and apply for these grants, send me an email and I will pass on the application.



Best wishes



Paul Wheatley
mail@networkforgood.com
Director of Development and Communications

nSpiration Foundation

Nspiration

89 E Washington St
Hanson, MA 02341

09/09/2021

Statement from CSL:

CSL Behring has been responsible for all commercial, medical, and related distribution and product support activities for Stimate® which is owned and manufactured by Ferring Pharmaceuticals, Inc. (Ferring). We are writing to inform you that the Stimate distribution agreement between CSL Behring and Ferring has ended.
For all questions relating to Stimate, please contact Ferring at 1-‌888-‌FERRING (1-888-337-7464) – option #2 or Email: MedQueriesUS@‌ferring.‌com.
Our commitment to patient care and the bleeding disorder community remains a key priority and guiding principle for CSL Behring. We encourage patients to contact their pharmacy regarding their individual prescription and, if necessary, contact their physician about their treatment plan.

10/02/2020

CSL Behring provided a statement to NHF nand HFA regarding the recall of Stimate® (desmopressin) nasal spray.

08/29/2020

Have you ever been to a holiday dinner with two tables? One table is designated for “the adults” and the other is for “the kids.” Growing up, this was the case at many family gatherings. I felt offended when I, as a teenager in high school, was stuck at the children’s table with my much-yo...

08/13/2020

The recall has been expanded to the consumer level.

Ferring has extended the recall of Stimate to the consumer level.

08/05/2020

Estimate recall information:

CSL Behring and Ferring Pharmaceuticals have announced a recall of lots of Stimate®.

04/16/2020

03/27/2020

SAVE THE DATE!

Trivia Night has successfully rescheduled and will now take place on August 8, 2020.

Thankful to have Michelle from the VFW Post to work with. She is the best!