04/02/2026
This is so important to read. I've seen this myself. The unfortunate thing is that so many Lyme patients are so desperate for information, especially given how long we've been gaslit...please, do some of your own research before believing everything you hear. Check resources, question the information, use your judgement. I know it's hard, and really it makes me furious to see how much of this is happening, but be diligent.
Lyme disease is becoming a trending topic online.
Unfortunately, that also means an explosion of misinformation.
Right now social media, influencers, mainstream media, and even some medical voices are flooding the internet with content about Lyme disease. Some of it is helpful. Much of it is not.
We are seeing everything from:
• miracle cure claims
• statements that Lyme disease isn’t real
• oversimplified treatment advice
• influencers creating content for clicks
• doctors suddenly positioning themselves as experts despite historically dismissing patients
At the same time, pharmaceutical companies are moving forward with new vaccines that represent a massive financial opportunity. When that much money enters a space, messaging and narratives often shift quickly.
For patients who are already navigating a complex illness, this environment can be overwhelming.
Not every voice speaking about Lyme disease is informed.
Not every viral post is accurate.
And not every “expert” has experience treating chronic tick-borne illness.
If you live with Lyme disease, protecting your nervous system and your mental health matters.
Be thoughtful about where you get information.
Follow sources that prioritize patient outcomes, scientific curiosity, and honesty about what we still do not know.
The Lyme community deserves clarity, compassion, and integrity.
Not rage bait.
We deserve better than to be monetized, turned into click bait, and stripped of our humanity for the almighty dollars of large corporations.
The Lyme community has been used as pawns long enough.
