United By Lyme

11/18/2025

https://unitedbylyme.com/good-morning-body-today-i-hear-you/

Good morning body. I forgot about you and I'm so sorry. Today, I will remember you. I will invite movement and joy back into my body. I will touch you,...

11/18/2025

Keep dreaming in color. Keep dreaming about the healthy you, the you that you'll be when this is all over. You are still you, though it may not feel like it, you are.

11/18/2025

11/17/2025

In honor of this post, I can say, I went through something really strange and awful and it altered me forever.

11/17/2025

This is worth celebrating!!!!

After more than 50 years, the CDC has finally recognized what Lyme patients have been saying for decades: persistent symptoms after Lyme infection are real, medically significant, and now officially part of the federal framework for Infection-Associated Chronic Conditions and Illnesses (IACCIs).

In its new Emerging Infectious Diseases supplement, the CDC states:

“Suspected mechanisms include continued immune stimulation from antigens or continued infection in a sequestered body site that cannot be sampled… autoimmune responses, microbiome dysbiosis, persistent tissue damage, disordered coagulation, and disrupted nerve signaling.“

“Chronic sequalae considered IACCIs include various combinations of infection-associated organ damage, autoimmune conditions, and persistent unexplained systemic symptoms, such as debilitating fatigue, postexertional malaise, cognitive impairment, musculoskeletal pain, and sleep disorders.“

For anyone living with chronic Lyme symptoms, this acknowledgment is monumental.

This moment is also deeply connected to Col. Nicole Malachowski, who served as the sole patient representative on the National Academies of Sciences, Engineering, and Medicine committee that produced the landmark Lyme IACCI report — the same report cited by the CDC in this publication.

Her leadership helped push the science forward, ensure the patient voice was heard, and open the door to federal recognition of chronic Lyme.

We spoke with Col. Malachowski about this historic shift during Episode 538 of Tick Boot Camp, recorded live at NYFW Project Lab Coat — the first fashion-week runway dedicated to Lyme awareness and research.

This is history.
This is progress.
This is just the beginning.

🎧 Episode 538: NYFW Project Lab Coat – Col. Nicole Malachowski on Lyme IACI and the National Academies Report on Chronic Lyme Disease

🔗 Listen on Tick Boot Camp: https://tickbootcamp.com/episode-540-nyfw-project-lab-coat-col-nicole-malachowski-on-lyme-iaci-and-the-national-academies-report-on-chronic-lyme-disease/

CDC Article: https://wwwnc.cdc.gov/eid/article/31/14/25-1187_article

11/17/2025

Even for those who aren't battling a chronic illness, the short, cloudy days of winter can be challenging. Now is a good time to start thinking about how to combat the mental and emotional stress of winter. What do you do to keep your spirits up during those cloudy, dreary days? Are you taking vitamin D? Do you have a favorite book series you can read? A warm, cuddly blanket to snuggle in front of a movie? One winter I bought myself a bouquet of flowers each week to bring a smile to my heart. What are your tricks?

11/17/2025

Sometimes healing means just sitting with yourself, accepting who you are and being proud of how far you have come.
~Lawney



Healing Hearts
Live Love Laugh

11/17/2025

Don't forget to go to Center for Lyme Action and sign the letter to your representative to reauthorize the Tick Act and cosponsor 5 tick-borne disease bills.

A 501(c)4 dedicated to growing federal funding and developing policy solutions for Lyme & tick-borne diseases.

11/14/2025

https://unitedbylyme.com/i-miss-the-me-i-used-to-be/

"I miss the me I used to be." When I logged on to my Facebook group this morning and started scrolling through your comments, this is the first one I...