Myasthenia Gravis Society

06/18/2025

🎶 June Virtual Monthly Meet-Up 🎶
🗓 Monday, June 23, 2025
🕡 6:30 PM – 7:30 PM CST
📍 Online via Zoom

What is music therapy, and how can it support those living with Myasthenia Gravis?

Join us for an uplifting and informative session with Sydney Winders, Music Therapist, as she shares how music can be a powerful tool for healing, stress relief, and emotional well-being on your MG journey. 🎵💙

🧠 Learn.
💬 Connect.
🎧 Be inspired.

🔗 Register here: https://us02web.zoom.us/webinar/register/WN_X_6jKCfHRAerBa_aYnZ0dw #/registration

06/18/2025

📊 Saturday Stats – Day 14 of 30 Days of MG
🧠 MG and Mental Health: The Overlooked Struggle

Living with Myasthenia Gravis (MG) doesn’t just impact the body—it deeply affects mental and emotional health too. Yet, it’s a topic that’s too often left out of the conversation. Let's talk facts:

🧩 The Mental Toll of MG – By the Numbers
📉 >50% of MG patients experience symptoms of depression
📈 Nearly 60% report elevated levels of anxiety
😴 Sleep disturbances are reported in up to 82% of MG patients
Emotional stress can trigger or worsen MG symptoms—and vice versa

😔 The cycle of unpredictable symptoms, fatigue, physical limitations, and social isolation often contributes to:
• Loss of independence
• Fear of flare-ups
• Body image challenges
• Difficulty maintaining work or relationships

💡 Mental Health = Physical Health
Mental wellness is essential in managing a chronic illness like MG. Untreated depression and anxiety can make fatigue worse, reduce treatment adherence, and lower overall quality of life.

Mental health is just as important as any other part of MG care. It's okay to ask for help.
🧠 Strategies for Mental Health Support:
✔️ Talk therapy or support groups
✔️ Medication, when appropriate
✔️ Mindfulness or relaxation practices
✔️ Open conversations with your care team
✔️ Connecting with others who get it

📢 Need someone to talk to? We’re here.
📧 info@mgakc.org
🌐 www.mgakc.org

Mental Health Resources:
https://missouri988.org/
https://988lifeline.org/

📚 Sources:
https://pubmed.ncbi.nlm.nih.gov/34800167/
https://pubmed.ncbi.nlm.nih.gov/31573094/
https://pubmed.ncbi.nlm.nih.gov/36720569/
https://pubmed.ncbi.nlm.nih.gov/40104321/
https://pubmed.ncbi.nlm.nih.gov/36369246/

Let’s break the silence around mental health in MG!

04/13/2025

Muscle weakness, drooping eyelids, difficulty swallowing— symptoms can vary, but you don’t have to face them alone. 💙 The Myasthenia Gravis Association is here to support and guide you. Contact us at info@mgakc.org or visit https://mgakc.org for resources.

03/01/2025

Happy Rare Disease Day! �

Here is a fantastic blog post from our Friend, Tallulah, who has written about having ataxia and being pregnant: https://www.ataxia.org.uk/your-blog/my-rare-disease-motherhood-and-me/

This Rare Disease Day, 28th February 2025, our aim is to share your unique experiences because ataxia is 'more challenging than you can imagine'

Raise ataxia awareness by sharing your story this Rare Disease Day: https://www.ataxia.org.uk/rare-disease-day-2025/

03/01/2025

🌎💙 Today, we stand in solidarity with the rare disease community for ! Together, we raise awareness, amplify voices, and advocate for better care and research. Every story matters. Every voice counts. 💪✨

For more information: rarediseaseday.org
info@mgakc.org
www.mgakc.org

03/01/2025

01/28/2025

Are you newly diagnosed with Myasthenia Gravis?

We would love to connect with you to provide you with resources and support!
Contact US: info@mgakc.org

01/28/2025

MARK THE DATE!
The Myasthenia Gravis Foundation of Michigan has scheduled the MG-MI Regional Health Summit & Resource Fair on Saturday, May 3, 2025. This event will be held at the Memorial Healthcare Institute for Neuroscience in Owosso, MI.

Current plans include educational presentations by neurologists, and resources on wellness and current MG treatments. There will also be demonstrations from the Wellness Center including electrophysiology, Pilates, balance, massage, and speech/swallowing.

Registration information will be available soon. If you or a loved one would like to know more about “living your best life with MG,” you’ll want to attend this program.

https://mg-mi.org/

01/28/2025

IT'S TONIGHT! MG-MI VIRTUAL SUPPORT GROUP MEETING
If you want to find out more about MG and how to live your best life, you’ll want to join MG-MI’s virtual and in-person support meetings. All are welcome no matter where you live. There’s no charge. Go to https://mg-mi.org/upcoming-events/ for details.