Tim’s Heart Failure Journey

Tim’s Heart Failure Journey Follow along to get updates and get involved on Tim’s journey of battling Heart Failure.

Annnnnnd we’re home! It’s been a long week y’all. But he’s feeling much better overall and is so excited to not be coope...
07/10/2025

Annnnnnd we’re home! It’s been a long week y’all. But he’s feeling much better overall and is so excited to not be cooped up in the hospital anymore.

Thanks to those who were able visit him while he was there ❤️ and thanks to those who share kind words and prayers, it means a lot to us!

I’m sure we’ll keep you guys updated with his at home progress on the new antibiotic treatment.

Double day big update since I was too exhausted yesterday…- Cultures came back and was positive for staph infection-His ...
07/07/2025

Double day big update since I was too exhausted yesterday…

- Cultures came back and was positive for staph infection

-His MAPs have been pretty consistently in the 50s, which prompted the Dr to order large amounts of IV fluids on the 4th

-Starting the 5th he started feeling even worse, having difficulties breathing, pretty much heart failure symptoms all over again with significant weight in his lungs

-I thought it strange that they weren’t giving diuretics with it, but it seemed by design, that is until a couple of the other nurses were confused and concerned as well that diuretics were not given, and therefore causing the buildup of fluid in his lungs and organs. On the 5th they started giving him the diuretics to relieve the fluids and as of today -the 6th, he’s definitely better, but not perfect. Still having some difficulties breathing and being put on oxygen.

- Yesterday was also very difficult due to another very scary event. For those of you who closely follow Tim’s story, you may remember when we were at UW medicine after his first open heart surgery, he had an event of memory loss that lasted a couple of days.

Well, it happened again yesterday. I was at home playing a video game with him for a couple of hours in the morning. He went silent for a few minutes which prompted me to ask him what he was working on in the game. To which he responded slowly… “Where am I?, What am I doing here?, How long have it been here?“ And so on.

After just a couple minutes of answering his questions and him continuing to repeat himself, not understanding my answers, I called him on the phone as to not lose communication with him so I can get off the game. I kept talking to him and trying to keep him calm as I was packing my stuff up to rush to the hospital.

I don’t think I could ever find exactly the right words to explain how terrifying it is. Hearing the fear in his voice. It’s so unreal and scary and the worst part is I can’t fix it. I coached him into pressing the call light to get his nurse in the room and asked him to hand the phone to the nurse so I can explain to her what happened.

Unfortunately it takes me over an hour to get to the hospital now from where we live. But I’m so grateful that by the time I got there, he was doing much better at recalling information. I found out when I got there, that after I got off the phone with the nurse, they rushed him to a head CT, which came back clear. A good sign. But, I was also informed he has some facial drooping.

The Dr believes he had what’s called a TIA (Transient Ischemic Attack) - basically a mini stroke (I attached a pic with more info on it). It may have been what happened last time too, we just didn’t notice any facial drooping that time.

At this time this is all I know. He’s just tired and been resting a lot the last couple of days.

Thank you all who have been there for us, we truly appreciate you all.

07/05/2025

Today was obviously unexpected that Tim would be in the hospital. But, luckily prior to even knowing that was his outcome, we decided we were just going to stay home with our doggies this year.

So as I’m rushing home from the hospital to beat the fireworks for the dogs, I had to stop to record this gorgeous sunset on the way up our mountain 🌅.

We’re wishing you all a wonderful Fourth, and thank you for all the well wishes over the last few days!

Also, had to bring my stuff for the hospital version of a his and hers set up so we can play Fallout together! 😝 Peep th...
07/04/2025

Also, had to bring my stuff for the hospital version of a his and hers set up so we can play Fallout together! 😝

Peep the laundry cart as my desk lol

We’re still waiting on cultures to come back to determine exactly what kind of infection he has. Either way, any infecti...
07/04/2025

We’re still waiting on cultures to come back to determine exactly what kind of infection he has. Either way, any infection he has is extremely dangerous for him, the driveline gives the bacteria direct access to his heart.

So they’ve been treating him with broad spectrum IV antibiotics since yesterday. And we were given a plan of action. They expect he’ll be in the hospital until mid to late next week continuing IV and monitoring here. Before he gets to leave they will be installing a new PICC line (basically a semi permanent IV that has a pump attached to it) so he can take 5-6 weeks additional of the bagged antibiotics.

After that, they’ll be putting him on lifetime antibiotics (for as long as he’s on LVAD) to lower his chances of these sporadic infections he’s gotten over the last year and a half.

Dr Micheal Meyer, who performed his two open heart surgeries, gave us a visit today too! Side note, he is such a genuinely nice person, so informative and caring, we are so happy to have him as Tim’s surgeon. He had a long conversation with us about next steps to get on the transplant list and difficulties of losing weight post surgery. It was good to hear his opinion lined up with ours on a lot of things including diet (we were not too happy with advice weve been following from the nutritionalist). He gave us a new positivity, and we’re looking forward to our upcoming challenges/goals.

07/03/2025

I felt bad kind of for a while that we haven’t posted anything on this page in quite some time. But also saw it as a positive thing - nothing major worth posting is good!

But here we are again! For a few days now he’s been dealing with increasing pain at his driveline site, along with extra leaking and bleeding compared to usual. After a phone call to his team they set him up with an appointment yesterday afternoon. During this appointment his MAP dipped really low into the high 50s, when his target is 80. And with the visuals of his dressing they determine he needed to be sent to the hospital.

I was at work and they wouldn’t let him drive so into the ambulance he went! We are currently admitted at Tacoma General Hospital again, just running a bunch of tests with no real answers yet, other than they are worried about sepsis.

He’s doing okay, just tired and in pain, but I’ll keep you guys updated as we know more.

Since you’ve heard from us last…We moved in with my mom April 5th and closed on our home sale on April 9th. As we mentio...
05/15/2024

Since you’ve heard from us last…

We moved in with my mom April 5th and closed on our home sale on April 9th. As we mentioned before, very bittersweet. But we see it as a blessing. With the proceeds we were able to pay off the majority of our debts (consolidated the rest into a personal loan), pay for doggy school, and put a down payment on a trailer.

April 24th, Tim’s 34th birthday, a pretty major one - as it’s his first we got to celebrate since he survived his surgeries. I wish we had the means to celebrate doing something new and fantastic, but we did get to go to one of our favorite restaurants with both sides of the family and one of his best friends which was really nice.

May 7th, not a great day, it marked Tim being with McKee as project engineer for about 2 and a half months. He was grateful for the position and excited to learn as much as he could to be an asset to the company . But in the long run, they decided they just didn’t have the time or means to train him for the position, and decided to let him go. So now he is figuring out his next move. Luckily he is officially receiving disability payments now, it isn’t much but it’s helpful. And he can take his time to find another even better opportunity.

May 11th, for those that don’t know already… we decided we’re living the trailer life, and closed on a loan for our next adventure! This will give us more flexibility for whatever we decide for our future. We know we want to stay in Washington at the very least until Tim is able to get a new heart. So now we figure out if we just pay to keep the trailer somewhere until then or if when financially it makes sense - find our own piece of land and build on it. Who knows, we’ll see… it seems these days it wouldn’t be wise to hold our breath on anything, but will continuously hope for the best!

Goodnight friends and family, and thank you for being there for us when we need it the most ❤️

I’m sure some remember we were working with the organization that we got Rari from to try and rehome her. We love her de...
03/31/2024

I’m sure some remember we were working with the organization that we got Rari from to try and rehome her. We love her dearly and never wanted to, but ultimately thought it was what was best for her with Tim’s health and surgeries, thinking we are selfish for holding onto her while not being able to provide the level of attention she needs being a high energy doggo.

As it turns out, working with this organization (it’s in contract that we had to) for whatever reason have been unable to help provide a new home for her.

That being said, I am grateful it never happened. With Tim’s health on the rise and new life plans on the horizon, I believe we CAN be the best doggy parents for her.

However, there is going to be a small and expensive compromise. The place we are temporarily going to live while we wait for debts to be paid and credit to be repaired, truly can’t accommodate our two very large monsters. Being in this weird limbo position we’ve decided to send these guys to Doggy School.

Here, they will be trained with professionals and boarded for a 5 week program, and we will most likely add an additional couple of weeks of just boarding. Now, these guys are so smart and know many basics, but could definitely benefit from some additional behavioral training.

So as sad as we will be not having them with us every day, we believe it’ll be well worth investment.

🐕 🐕

Sheesh guys, five weeks since we made our last post, and I’m amazed at how many changes we are experiencing in that shor...
03/27/2024

Sheesh guys, five weeks since we made our last post, and I’m amazed at how many changes we are experiencing in that short time frame. Trying to stay in order here, and prepare for 5 weeks of blabbering…

February 26th, Tim started his first day as Project Engineer for McKee. Fast forward to now, he’s definitely got some learning to do, but overall is feeling pretty proud of himself. On his down time he researches ways to be proficient at Excel and is already finding ways to make his job a little more efficient!

When they first offered him the position it was discussed he can take off early or work from home if need be due to his condition and if not feeling well.

Overall they’ve been very accommodating, but I’m proud of him, he’s only had to stay home a couple of days so far. It’s awesome to see him a little brighter than before, having work to do makes a big difference!

March 8th, we officially put our house on the market! Tim can probably confirm I’ve been acting a little cray lol. And don’t get me wrong, we have had a bit of help here and there, but I have been largely responsible for… well… just about everything. The manic and endless cleaning, packing, storing, and heavy lifting, and last minute house projects.

Tim helps when he can, but does get a little upset for not being able to help more. The sad reality is I have to catch myself in the moment trying not to get mad that he isn’t helping to my “standards”. I feel horrible about it. But sometimes it’s hard to look at him and remember he does have limitations. Just one of those things about having heart failure and major surgeries at 33 I guess. But it’s something I’m working on.

Back to the house, we had a handful of showings and an offer by the next day! We close on April 8th. Truly bittersweet. I know this was never going to be our forever home. But the circumstances for needing to sell are a little harsh.

Today March 27th (side note, Happy Birthday to my baby sister), we have 11 more days of this being our home. We are blessed though. Or are at least seeking our silver linings. The sell of the house should help us pay off the vast majority of the mad amount of debt we’ve put ourselves into.

As I’ve mentioned before it’s hard to be vulnerable about and by no means is meant to be gloating, but I feel it’s a fair warning or something for others to think about. Did we have debt before he got sick, yes absolutely. But it was always manageable. Back when we could go to the store or go shopping and get something without needing to really think about it. We had the means to pay for it.

What you don’t expect, at least at our age, is an onset illness that turns your life upside down. What we didn’t prepare for is to basically take a nearly 96k annual pay cut. I myself by no means make enough to support us and the bills we have. In the 7 months Tim didn’t work, we have had to throw everything possible on to our available credit cards. And are now drowning in it. We have been so incredibly grateful for those of you who donated to our fund, every bit helped so incredibly much!

But alas, timing is everything, and we are looking forward to the sale of the house as a means to pay off our debts and hopefully be able to start digging away at the medical bills.

Which, back to my warning… maybe just be a warning to ourselves, is to live not within, but under your means. We never want to be in this position again. And are going to spend the next handful of years to make different choices to where if something happens to one of us, the other just isn’t going to struggle.

What would your life look like if you took a 100k pay cut? What would you do differently now, if you knew it was going to happen?

We had to push the exciting news waiting for more details. But without further delay, Tim has been given an amazing oppo...
02/21/2024

We had to push the exciting news waiting for more details. But without further delay, Tim has been given an amazing opportunity, and will begin his new journey with McKee Enterprise on Monday as their newest Project Engineer!

As much as I want to thank McKee for giving him the opportunity, I also have to give Tim a shout out because it’s not just a gift. I know he has earned the chance to prove he can do it. He is such a respectable person, kind and considerate, and I know he was stepping foot on the job site every day putting in the best work he could. I’m so happy he made such a great impression that it kept him in consideration for something like this.

He is so excited to be working again. It is just not in his soul to be sedentary! I think he will start feeling so much better and more normal once he is back to a routine. Getting the feeling he has purpose and contributing to the household.

Proud of you 💪 You got this!

We don’t go out to dinner like we used to. Ya know, considering that we are wondering every week how we’re going to affo...
02/09/2024

We don’t go out to dinner like we used to. Ya know, considering that we are wondering every week how we’re going to afford our bills. But last night felt like cause for a little reason to celebrate. So we stopped at our favorite local taco place, and it was so nice to be out and feel somewhat normal.

Things to celebrate…

- Spending a total of 3 hours on the road to and from Seattle 🙄 (if anyone knows me, Seattle gives me major anxiety)

- Biggest news, Tim had his consult with UW Medicine about next steps for transplant ❤️

-And Tim might have some really exciting news regarding employment 👀 gotta wait til next week to officially announce what it is though! 🤞🏻

-Then of course, I think we deserve to live a little 😉 It’s been a hard 6 months!

Also, we’ve been contemplating doing videos or tik toks about our lives and Tim’s journey… leave a comment below if that’s something you might be interested in watching! 👍

Been MIA for a bit. It’s been a struggle for real to keep up with everything in life, including making these posts. I’ve...
01/28/2024

Been MIA for a bit. It’s been a struggle for real to keep up with everything in life, including making these posts. I’ve been back to work now for 3 weeks, and boy did it make everything just a little more difficult.

Luckily my job has been very accommodating for me leaving to take Tim to his appointments. Since he hasn’t been given driving permission yet. That being said, we were waiting for a neurology appointment to determine if he can drive again. Due to the extreme swelling he had in his feet and legs in the hospital post surgery he had lost some feeling and damaged nerves. Originally neurology couldn’t see us until end of February, but had a last minute cancellation last week - we swiped it up real quick!

And voila! Tim can drive again!

Everyone involved is so excited by this… but he drove for the first time a few days ago to take our pup to the vet and was less than enthused. Says he was very uncomfortable (the way his gear bag was in the way), and overall caused a lot of stress. Hopefully it gets better and easier in time. A combination of his life being different and his first time driving in over 5 months I’m sure would cause anyone to panic.

In fact, it’s crazy to think that this post is marking over 6 months of Tim discovering he was sick. It’s been a crazy half year, learning about and dealing with so much. And we’re just getting started in this new life.

Thank you all for staying on this journey with us.

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Bonney Lake, WA
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