Lilliana's Journey

Lilliana's Journey Lilliana Sofias journey as she battles brain cancer an Li-Fraumeni Syndrome We appreciate the support Suddenly our world was turned upside-down.

On Wednesday, September 14th, 2022, our healthy baby, Lilliana Sofia Rocha, went in for a routine check-up, smiling at the doctors and nurses. Lilli’s pediatrician noticed her head had grown significantly since her last appointment. We were sent to the local hospital for testing and then transferred to CHOP (Children's Hospital of Philadelphia). One week after her initial appointment, Lilliana had surgery to remove a brain tumor; a CHOROID PLEXUS CARCINOMA, grade 4 of 4. This is a very rare and aggressive form of cancer. Due to complications during her 14+ hour surgery, Lilliana lost a lot of blood and spent weeks in critical condition. By the grace of god, and with prayers from her army, Lilliana's condition bettered, and she grew stable. Genetic testing revealed a mutation in her TP-53 genome, meaning Lilliana has Li-Fraumeni Syndrome. This means her body is susceptible to the growth of tumors and does not have the tools needed to fight those growths off. After 6 months of chemotherapy, on July 27th, 2023, Lilliana's brain has been labeled with the term N.E.D. or No Evidence of Disease. While this is a beautiful step in the right direction, her TP-53 mutation will continue to have us all on our toes. Lilliana will continue to receive full body scans and MRIs to combat any new cancerous growth throughout her body. At a recent Neuro-Opthamology appointment in August of 2023, we learned that Lilliana has irreversible Homonymous Hemianopia, a brain injury from her tumor. This means that she is blind on the left side of both her eyes. We have been faithfully by Lilli's side daily and are doing everything in our power to give this little girl a fighting chance. Please join this page if you wish to see updates on our warrior princess' journey. Lilliana is in for the fight of her life. Her fight is our fight. Thank you for joining Lilliana’s army.

01/23/2026

💛🩶
Someone who had terminal cancer once said, " Don't be sad for me, we all come to this world to be tourists, enjoy life, go sightseeing, do good deeds, and I just so happen to be leaving earlier than others". Today is Cancer Survivor Day. Can I ask a favor? Just a few of you will do it. If you know someone as I do, who fought a battle against cancer and passed away, or someone who is still struggling, or know a brave survivor; copy and paste this to your status to show support.❤###FOR ALL WHO FIGHT THE BATTLE❤❤❤

🎄we are still collecting toys today & tomorrow at the location mentioned on flyer, or by making arrangements with Lillia...
12/20/2025

🎄we are still collecting toys today & tomorrow at the location mentioned on flyer, or by making arrangements with Lilliana grandma Margaret or mommy Amanda.
New Unwrapped Toys collected are to donate to oncology baby’s, children and teens at CHOP & Ronald McDonald House in Philadelphia. To everyone that has already dropped off and donated, from the bottom of our hearts we thank you!!! Not everyone understands… when you do, you do

If anyone wants to contribute, support and join this cause and is not local to the drop off location feel free to reach out to us- message here or private, THANK YOU 🥰

Again in Lilli, our family and all the recipients of your LOVE and Donations a HUGE thank you 💛

“Together we make a difference” … It’s that time of year where we are collecting new unwrapped toys, books, gift cards, ...
12/12/2025

“Together we make a difference” …
It’s that time of year where we are collecting new unwrapped toys, books, gift cards, etc for children affected by cancer.
We are asking anyone that would like to join Lilliana's army brightening their days & showing them we care.

We have a couple drop off locations (addresses on attached flyer): Pinho's Bakery & Deli in Roselle
Stunning Medical Spa in Union
Valença Restaurant in Elizabeth (box is at the take out area)
or contact Amanda (Lilli’s Mommy) Margaret (lilli’s Grandma) to plan a pick up or drop off.

Thank you in advance to these amazing businesses for their continued support.
Anyone that is not “local” or prefers to order online can have it delivered directly (contact us for address- ex: Amazon prime free delivery is a great option)

Gifts will be delivered to CHOP & Ronald McDonald in Philly, since these are the locations that we know first hand and that continue to take care of Lilli 💛

Thank you in advance for all the love & prayers you continue sending Lilliana’s way & the care & support for pediatric cancer 💛

Lilliana's Journey

Pinho's Bakery
Valença Restaurant

Giving blood 🩸 saves lives!!!We are at the Portuguese club in Long Branch, with the Red Cross collecting blood until 2pm...
09/14/2025

Giving blood 🩸 saves lives!!!
We are at the Portuguese club in Long Branch, with the Red Cross collecting blood until 2pm. The schedule was full but unfortunately already have a couple no shows. If you are local, have the time and would like to stop by and donate🩸come on over. Address is 191 Broadway, Long Branch, parking and entrance is in the rear. Thank you to all those who always support, to those who donated and to anyone who donates today or any day, together we make a difference 💛💪🏼💛
Oh and to any Snoopy lovers, today you receive a snoopy exclusive t-shirt as a thank you for donating.

In Lilliana’s name, all the blood recipients and their families 🩸❤️ THANK YOU!!!

Let’s pay it forward together! Have you donated blood lately? Have you ever donated? If you haven’t, please know its com...
09/10/2025

Let’s pay it forward together!
Have you donated blood lately?
Have you ever donated? If you haven’t, please know its completely safe and doesn’t hurt any more then drawing blood 🩸
This Sunday the Red Cross will be at the LBPC - Long Branch Portuguese Club collecting our donations of life… Do you know that every pint of blood can save up to three lives??? - we never know who’s life we are saving but its such a great feeling to make a difference in our community!
We do it in honor of our warrior
Lilliana Sofia thinking of ALL the times she’s needed blood and it was available to her… who will you be thinking about when you’ve donating??
Can you imagine needing blood & it not be available??? God forbid someone we love/anyone is in need of a blood transfusion and their blood type is unavailable 😰 Let’s pay it forward and help the RED CROSS sign up & Join us this Sunday!


https://toddleroftheyear.org/2025/lilliana-a0d3DOUBLE VOTES TODAY. PLEASE CLICK & VOTE FOR OUR WARRIOR GIRL ITS EASY & F...
09/07/2025

https://toddleroftheyear.org/2025/lilliana-a0d3
DOUBLE VOTES TODAY. PLEASE CLICK & VOTE FOR OUR WARRIOR GIRL ITS EASY & FREE!!!
Hello Lilliana’s army, friends & family, wishing you all a wonderful Sunday! PLEASE remember to VOTE every day, & TODAY IS DOUBLE VOTES 1=2
Please help us get Our Miracle girl Lilliana back to #1
Thank you so much for all your support we truly appreciate it 💛









Lilliana Is A Warrior! Diagnosed With Brain Cancer At 6 Months, She Is Defying All Odds. She Is Now 3 And Keeps Fighting Everyday!

https://toddleroftheyear.org/2025/lilliana-a0d3DOUBLE VOTES TODAY. PLEASE CLICK & VOTE FOR OUR WARRIOR GIRL ITS EASY & F...
09/07/2025

https://toddleroftheyear.org/2025/lilliana-a0d3
DOUBLE VOTES TODAY. PLEASE CLICK & VOTE FOR OUR WARRIOR GIRL ITS EASY & FREE!!!
Hello Lilliana’s army, friends & family, wishing you all a wonderful Sunday! PLEASE remember to VOTE every day, & TODAY IS DOUBLE VOTES 1=2
Please help us get Our Miracle girl back to #1
Thank you so much for all your support we truly appreciate it 💛









Lilliana Is A Warrior! Diagnosed With Brain Cancer At 6 Months, She Is Defying All Odds. She Is Now 3 And Keeps Fighting Everyday!

https://toddleroftheyear.org/2025/lilliana-a0d3Hello Lilliana’s army, friends & family, wishing you all a wonderful Satu...
09/06/2025

https://toddleroftheyear.org/2025/lilliana-a0d3
Hello Lilliana’s army, friends & family, wishing you all a wonderful Saturday! PLEASE remember to VOTE every day, & TODAY IS DOUBLE VOTES 1=2
Every vote counts as 2
Please help us get Our little BIG WARRIOR back to #1
Thank you so much for all your support we truly appreciate it 💛

https://toddleroftheyear.org/2025/lilliana-a0d3










Lilliana Is A Warrior! Diagnosed With Brain Cancer At 6 Months, She Is Defying All Odds. She Is Now 3 And Keeps Fighting Everyday!

https://toddleroftheyear.org/2025/lilliana-a0d3Have you voted for Lilliana today? Today is double votes 1=2 Every toddle...
09/04/2025

https://toddleroftheyear.org/2025/lilliana-a0d3
Have you voted for Lilliana today? Today is double votes 1=2
Every toddler is AMAZING, they are ALL WINNERS… but of course we would love to see our warrior princess reach the top in the competition.
The quarterfinals just began, and the competition is fierce. Our girl is in 9th at this time… (🤷🏻‍♀️ yeah i know i dont understand the rules either, last round there were 5 children and Lilli won 1st place. Now there are more than 15 children in the quarterfinals 🤦🏻‍♀️… how many more rounds are there 🤷🏻‍♀️ who knows 😬- but yeah its a “competition” and we are here now SOOOO - WE ARE VOTING, WE WILL continue to support our Lilli until the end… On September 11th when this round ends, only the child in 1st place will move to next round… Can we do this? Can we ALL continue giving our FREE DAILY VOTE to Lilli? YES WE CAN!!! Are there tips, tricks and $$ for voting? Of course… I saw a lot of different “toddlers” on “reels and sponsored” posts today… don’t know how that’s done and unfortunately we don’t have the $$$ /possibilities … but we have an army, a large community of friends & family & we know nothing is impossible- Lilli has taughtis that …
we may fall a “little short”, but our love, faith & belief is strong… and OUR MIRACLE GIRL LILLI, IS OUR TODDLER OF THE YEAR no matter what!!!

Thank you all in advance for your love, support, votes & sharing…
WE LOVE YOU LILLIANA 💛


Lilliana's Journey
Margaret Rocha
Amanda Dzielinski
Tiago Rocha
Jose Rocha
Melanie Rocha
LaiditaeJose Casqueira
Vote for Lilliana Sofia Rocha to chosen Toddler of the Year 2025

Lilliana Is A Warrior! Diagnosed With Brain Cancer At 6 Months, She Is Defying All Odds. She Is Now 3 And Keeps Fighting Everyday!

https://toddleroftheyear.org/2025/lilliana-a0d3THANK YOU!!! WITH ALL YOUR VOTES & SUPPORT LILLIANA HAS MADE IT TO THE QU...
08/30/2025

https://toddleroftheyear.org/2025/lilliana-a0d3

THANK YOU!!! WITH ALL YOUR VOTES & SUPPORT LILLIANA HAS MADE IT TO THE QUARTERFINALS 💛
We are so excited that our little BIG warrior is a finalist and we will continue to share her story and journey with everyone, THANK YOU!

If you have tried voting & couldn’t is because they are giving everyone a little brake while they preparing for the next round that will begin on Monday 9/1, when we will need everyone’s to vote every day again…

From the bottom of our heart thank you for bringing Lilli this far 🙏🏼💛🙏🏼 being the winner of this competition would mean the world to us, its not just a title the big $ prize would be a HUGE help with Lilliana’s medical condition and our family’s situation…

May God continue to Bless our miracle girl, our family & and each of you with great health 🙏🏼🙏🏼🙏🏼

Vote for Lilliana Sofia Rocha to chosen Toddler of the Year 2025

Lilliana's Journey
Margaret Rocha
Amanda Dzielinski
Tiago Rocha
Jose Rocha
Melanie Rocha
LaiditaeJose Casqueira

https://toddleroftheyear.org/2025/lilliana-a0d3Hello all, there’s only one hour left to move to the quarterfinals. Only ...
08/29/2025

https://toddleroftheyear.org/2025/lilliana-a0d3

Hello all, there’s only one hour left to move to the quarterfinals. Only 1st place moves others get eliminated 🙏🏼 We need to make sure our warrior Lilliana'sofia stays in first place. If you haven’t voted yet today place vote now 🙏🏼please & thank you so so much from Lilli and our family 💪🏼💛💪🏼

https://toddleroftheyear.org/2025/lilliana-a0d3?fbclid=IwQ0xDSwMLkFBleHRuA2FlbQIxMQABHsf6980DNeIo4xcADMGJx8KjQ4ve0dFtSn_eFhtmQZicav-LV9YYzCDj0-P5_aem_Rm59dWM1zvBBPxEYHtIlRg

You got this Lilli 💛
Margaret Rocha
Amanda Dzielinski
Tiago Rocha

https://toddleroftheyear.org/2025/lilliana-a0d3

Hello Lilliana’s army, friends & family by blood & of the heart 💛
For those who don’t know we’ve entered Lilliana in this competition (didn’t know anything about it, the process & how long it was 😅-sorry),
to be elected Toddler of the year… when we entered, we really wanted to share her story, we wanted to tell everyone that miracles happen…
(& we understand, not all miracles are alike)…
we wanted to bring hope into the world, tell everyone to pray, meditate manifest, etc. and more than anything BELIEVE MIRACLES EXIST!!!

* Lilliana has made it to 2nd place in her group & category and we sincerely hope that by this Thursday the 28th she can be in 1st so that she is not eliminated. ONLY 1ST PLACE MOVES TO QUARTERFINALS!
We ask everyone to PLEASE PLEASE VOTE EVERYDAY & share to help us make this possible for our warrior Lilliana!!! THANK YOU IN ADVANCE!!!

https://toddleroftheyear.org/2025/lilliana-a0d3?fbclid=IwQ0xDSwMLkFBleHRuA2FlbQIxMQABHsf6980DNeIo4xcADMGJx8KjQ4ve0dFtSn_eFhtmQZicav-LV9YYzCDj0-P5_aem_Rm59dWM1zvBBPxEYHtIlRg

(for those who don’t know)
** Lilliana Sofia Rocha is not your typical 3 & 1/2 year old toddler.
She is a precious warrior, a miracle baby, a survivor of a rare and aggressive brain cancer- choroid plexus carcinoma grade 4, that nearly took her life on September 21st 2022 when she had her first, 14 plus hours surgery to remove her brain tumor…
Liliana has many many struggles which include daily seizures that debilitate her in many ways… she is non verbal but is learning to communicate in her own way… she is a strong determined fighter that teaches us to never doubt, that anything is possible…
Our faith & prayers (& 🙏🏼 of so many) has carried Lilli this far, with God, our Virgin Mary & all our Saints watching over her, she continues strong defying all expectations, living her miracle journey one day at a time…
We are so grateful & feel beyond blessed with the miracle she/we were given…

It’s an honor and pleasure to share our girls story with the world, we would love for her to continue in the competition into the quarterfinals!!!

We also want to take the opportunity to thank everyone for the past 3 years of love, support & prayers!!

Thank you in advance for all your support and efforts to make this possible 💛💛💛💛

Margaret Rocha
Amanda Dzielinski
Tiago Rocha

https://toddleroftheyear.org/2025/lilliana-a0d3Hello Lilliana’s army, friends & family by blood & of the heart 💛For thos...
08/26/2025

https://toddleroftheyear.org/2025/lilliana-a0d3

Hello Lilliana’s army, friends & family by blood & of the heart 💛
For those who don’t know we’ve entered Lilliana in this competition (didn’t know anything about it, the process & how long it was 😅-sorry),
to be elected Toddler of the year… when we entered, we really wanted to share her story, we wanted to tell everyone that miracles happen…
(& we understand, not all miracles are alike)…
we wanted to bring hope into the world, tell everyone to pray, meditate manifest, etc. and more than anything BELIEVE MIRACLES EXIST!!!

* Lilliana has made it to 2nd place in her group & category and we sincerely hope that by this Thursday the 28th she can be in 1st so that she is not eliminated. ONLY 1ST PLACE MOVES TO QUARTERFINALS!
We ask everyone to PLEASE PLEASE VOTE EVERYDAY & share to help us make this possible for our warrior Lilliana!!! THANK YOU IN ADVANCE!!!

https://toddleroftheyear.org/2025/lilliana-a0d3?fbclid=IwQ0xDSwMLkFBleHRuA2FlbQIxMQABHsf6980DNeIo4xcADMGJx8KjQ4ve0dFtSn_eFhtmQZicav-LV9YYzCDj0-P5_aem_Rm59dWM1zvBBPxEYHtIlRg

(for those who don’t know)
** Lilliana Sofia Rocha is not your typical 3 & 1/2 year old toddler.
She is a precious warrior, a miracle baby, a survivor of a rare and aggressive brain cancer- choroid plexus carcinoma grade 4, that nearly took her life on September 21st 2022 when she had her first, 14 plus hours surgery to remove her brain tumor…
Liliana has many many struggles which include daily seizures that debilitate her in many ways… she is non verbal but is learning to communicate in her own way… she is a strong determined fighter that teaches us to never doubt, that anything is possible…
Our faith & prayers (& 🙏🏼 of so many) has carried Lilli this far, with God, our Virgin Mary & all our Saints watching over her, she continues strong defying all expectations, living her miracle journey one day at a time…
We are so grateful & feel beyond blessed with the miracle she/we were given…

It’s an honor and pleasure to share our girls story with the world, we would love for her to continue in the competition into the quarterfinals!!!

We also want to take the opportunity to thank everyone for the past 3 years of love, support & prayers!!

Thank you in advance for all your support and efforts to make this possible 💛💛💛💛

Margaret Rocha
Amanda Dzielinski
Tiago Rocha

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Bordentown, NJ
08505

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