IgG4ward

08/21/2025

💉 Vaccine season is here — and so are more GOOD QUESTIONS!

✨ Special Edition: Good Question Series ✨
The IgG4-RD community asked important vaccine questions during our August 8th Fireside Chat with Dr. Camille Kotton. We couldn’t get to them all — so we’ve created a Special Edition of our Good Question Series with more answers, just in time for vaccine season.

Topics include:
✔️ Flu shots & shingles
✔️ RSV & COVID-19 boosters
✔️ Live virus vaccine safety
✔️ And more…
👉 Explore the Special Edition Good Question Series here: http://bit.ly/4610Jcr

Expert answers to IgG4-RD vaccine questions: flu shots, shingles, RSV, COVID-19 boosters, and live vaccines from Dr. Camille Kotton.

08/19/2025

Your Guide to the PeachJAM Breakout Sessions

Some of the most meaningful moments at our Patient Jamboree’s happen in our breakout sessions. These small-group conversations bring together patients, caregivers, and experts to share real experiences, ask questions, and learn from one another.

This year, you’ll find more breakout options than ever — from medical insights to wellness and caregiver support. 💙

🔹Explore all the sessions here: http://bit.ly/4lz6wdW
🔹Register and save your spot at The PeachJAM! today: https://bit.ly/40Wis1M

Explore PeachJAM 2025 breakout sessions for IgG4-RD. Patients, caregivers & experts connect to learn, share experiences, and build community.

08/18/2025

📺 Now Available: Recorded Fireside Chat: IgG4-RD & Vaccines

On August 8, we hosted a special Fireside Chat on Vaccines and IgG4-RD with leading experts.
For those who couldn’t join live—or want to revisit the conversation—we’re sharing the recorded video along with a companion Reading Guide.

The Reading Guide helps you:
✔️ Follow along with the discussion
✔️ Review key highlights on vaccine timing & safety
✔️ Revisit answers on shingles, flu, RSV, COVID-19 & more

🎥 Watch the August 8 Fireside Chat + Reading Guide here: http://bit.ly/3V7p5uO

Expert vaccine guidance for people with IgG4-RD—covering timing, safety, shingles, COVID-19, flu, RSV, and more.

08/13/2025

🍑 Sabrina says the PeachJAM is more than an event — it’s a boost for your mind, body and spirit.

Watch her quick video to hear why she will be at the PeachJAM!

Learn more and register here: https://igg4ward.org/events/peachjam-the-2025-igg4-rd-patient-jamboree-in-atlanta/

Looking forward to seeing you all in Georgia!

08/07/2025

📣 It’s finally here — the IgG4ME! app is LIVE!

Created by the IgG4ward! Foundation in partnership with mejo, this free, web-based app is designed to simplify your IgG4-RD journey.

✅ Store your health history
✅ Share with doctors or caregivers
✅ Track labs, meds, and appointments
✅ No downloads required

This tool is currently available for users in the United States and we know many of you around the world are eager to use it too. Our partners at mejo are working hard to expand global access. Thank you for your patience as we grow.💙

👉 Learn more and get started: https://igg4ward.org/igg4-me-app/

Discover relevant and credible IgG4-RD research from leading disease experts and explore IgG4-RD clinical trials.

08/05/2025

Before the COVID-19 vaccine existed, Mr. Joy—just days after B-cell depletion—landed in the ICU.

14 days on a ventilator. Almost two months in the hospital. A fight for his life.

He’s not part of our upcoming Fireside Chat, but his story shows exactly why we need to talk about vaccines and IgG4-RD.

Watch the full video & read the full story in our blog: https://igg4ward.org/igg4ward-educational-resources/hear-why-were-talking-about-vaccines-igg4-rd-story/

Join Us on Friday!
🗓 Fireside Chat: IgG4-RD & Vaccines – A Community Conversation
📅 Friday, August 8 at 12 PM ET
🎟 Register here: https://us06web.zoom.us/webinar/register/WN_ZVD6v4O4S1WY_zXKo_KCJA #/registration

07/31/2025

💙“We’ve had every opportunity to meet everyone that would take us years to get to, all in one place, all at one time.”
– Lisa (Caregiver)

▶️ Watch the 1-min 21-sec recap below to see the momentum the JAM of 2024 created for the IgG4-RD community.

Happy to report that energy is back! (Sept 12-13, Atlanta) will feature:
• Face-to-face time with top IgG4-RD specialists
• Interactive breakout sessions on diagnosis, treatment & daily living
• Space for caregivers, patients and families to connect and exchange real-life tips

🍑 Registration is OPEN and filling up!! Save your spot today: https://igg4ward.org/events/peachjam-the-2025-igg4-rd-patient-jamboree-in-atlanta/



Youtube link:
https://youtu.be/0q3cFKfXmNA

Why was the IgG4ward! JAM of 2024 so impactful?In this video, two doctors, a patient, and a caregiver explain how face-to-face connections, real-time Q&A wi...

07/29/2025

Registration is now open❗️

Join us on Friday, August 8, 2025, at 12:00 PM ET for our Fireside Chat: IgG4-RD & Vaccines – A Conversation Shaped by Our Community.

This event with Dr. Camille Kotton and Dr. John Stone will be guided by your questions and concerns.

Please register today and take a moment to submit your questions—your input will shape this discussion on vaccine safety, timing and more.

👉 Register now: https://tinyurl.com/2p9hu6xh
👉 Submit your questions here: https://tinyurl.com/bdfbr2ap

💙💙

07/28/2025

📣 TOMORROW! If you’ve had pancreas problems that doctors think might be autoimmune, or if you’ve had an IgG4 test and still don’t have clear answers, this webinar is for you!

We’ll cover:
✔️ What autoimmune pancreatitis (AIP) actually is
✔️ How Type 1 (IgG4-related) and Type 2 are different
✔️ Why AIP is so hard to diagnose
✔️ Treatment options, including a new FDA-approved therapy
✔️ How AIP can affect more than just your pancreas
✔️ How to speak up and get the care you need

💬 Plus, a live Q&A with the experts!

🎙️ Featuring Dr. Yasmin Hernandez-Barco (Massachusetts General Hospital) & Katharine Provencher (IgG4ward)

🗓️ Tomorrow, July 29
🕛 12 PM ET
💻 Free and Virtual– Save your spot now!

Register Today: https://buff.ly/NGm45ML

07/27/2025

Reminder of an upcoming webinar with Mission: Cure regarding autoimmune pancreatitis.

Autoimmune pancreatitis (AIP) is rare, and easy to miss.

It’s often confused with other conditions, but getting the right diagnosis can change everything.

If you or someone you love is dealing with unexplained pancreas symptoms, or has had an IgG4 test, this is for you.

📅 Join our free webinar on July 29 to learn:
- The differences between Type 1 (IgG4-RD) and Type 2 AIP
- How AIP is diagnosed (and why it’s tricky)
- Treatment options—including an FDA-approved therapy for Type 1
- What IgG4-related disease means for your whole body, not just your pancreas

🔗 Register today: https://buff.ly/x0zHakj

07/24/2025

📣The PeachJAM 2025 Agenda is Here!🍊

We’re bringing the IgG4-RD community together for two days of learning, connection and empowerment — September 12–13, 2025, at the Emory Conference Center Hotel in Atlanta.

With expert-led lectures, patient and caregiver sessions and opportunities for Q&A, this is a weekend you won’t want to miss!

Please click below to access the full PeachJAM agenda and to save your spot today: https://tinyurl.com/2asj5vjz

💙🧡

Explore the PeachJAM 2025 agenda! Join us Sept 12–13 in Atlanta for expert talks, breakout sessions, and community connection.

07/22/2025

IgG4ward! will be in attendance for this important webinar. We hope you can join too!

🧬 You’re Not Alone. Let’s Connect.
Caring for someone with a rare disease can feel overwhelming—and isolating. That’s why Give an Hour is offering no-cost, trauma-informed peer support training made just for you.

💬 Rare Caregiver Peer Support Training: Connect. Reflect. Grow.
Upcoming 2025 Dates:
• July 23 | 12–1:30 PM EST | *TOMORROW*
• September 17 | 3–4:30 PM EST
• November 19 | 6–7:30 PM EST

✅ Learn to:
– Build authentic connection
– Support others with empathy and trust
– Navigate boundaries & burnout
– Create space for resilience and healing

🧠 Led by expert facilitators who are caregivers, too.
🎓 No cost. No pressure. Just powerful support.
🔗 Register now: https://loom.ly/oGOAQJI
📧 Questions? Email: jwells@giveanhour.org

✨ Supported by the Alexion Charitable Foundation and AMGEN.
Because mental health is part of rare care.

Alexion Pharmaceuticals Amgen