IgG4ward

IgG4ward IgG4ward! Foundation is the only organization dedicated solely to IgG4-related disease (IgG4-RD ), providing trusted education, advocacy and support.

We empower patients, caregivers, and healthcare providers with resources to navigate IgG4-RD.

New advances are changing how IgG4-related disease (IgG4-RD) is treated — and what patients and clinicians can expect in...
10/31/2025

New advances are changing how IgG4-related disease (IgG4-RD) is treated — and what patients and clinicians can expect in the years ahead.

🎥 In this new IgG4ward! PeachJAM Series video, Dr. Arezou Khosroshahi and Dr. John Stone explore the science and the hope behind new treatment options — from traditional steroid therapy to targeted biologics like rituximab and inebilizumab, the first FDA-approved medication for IgG4-RD.

Watch the full talk and explore key highlights on our blog: https://tinyurl.com/yzt57hup

📣 Date Change – IgG4ME! App Tutorial Webinar - ME! TimeOur webinar has a new date and time, but don’t worry — the Zoom l...
10/30/2025

📣 Date Change – IgG4ME! App Tutorial Webinar - ME! Time

Our webinar has a new date and time, but don’t worry — the Zoom link is the same if you’ve already registered!

📅 New Date: Monday, November 18
🕦 Time: 11:30 AM (Eastern Time)
🔗 Register Here: https://us06web.zoom.us/webinar/register/WN_eQmx9C1jQnqBpGpdd7Zx_w

We apologize for any inconvenience and hope you’ll join us in November! 💙
In the meantime, Ryan Sheedy from mejo is offering 1:1 sessions for anyone who’d like a personal walkthrough of the IgG4ME! app.

👉 Click here to schedule a time with Ryan: https://calendly.com/ryan-zxmf/igg4me-session?month=2025-10

New Release: The Road to Diagnosis – Lessons LearnedWe’re kicking off the IgG4ward! PeachJAM Video Series with a special...
10/24/2025

New Release: The Road to Diagnosis – Lessons Learned

We’re kicking off the IgG4ward! PeachJAM Video Series with a special combined video: Welcome Remarks + The Road to Diagnosis – Lessons Learned, presented by Dr. Arezou Khosroshahi (Emory University).

“Many patients have faced a slippery, foggy, and uncertain road to diagnosis. But with collaboration and awareness, that road is becoming clearer.” – Dr. Khosroshahi

Watch the video and read more here:
https://tinyurl.com/mr48bpwk

The Road to Diagnosis – Lessons Learned, presented by Dr. Khosroshahi. Insights into understanding and identifying IgG4-related disease.

Living with a chronic disease such as IgG4-RD can be overwhelming — but it doesn’t have to be.Join IgG4ward! and mejo fo...
10/21/2025

Living with a chronic disease such as IgG4-RD can be overwhelming — but it doesn’t have to be.

Join IgG4ward! and mejo for a live demo of IgG4ME!, your new care companion app created just for the IgG4-RD community.

Hosted by Ryan Sheedy, Co-Founder of mejo and a “rare dad” whose son lives with a rare disease & Katharine Provencher, Director of Advocacy & Community Engagement for IgG4ward!, caregiver to her husband who lives with IgG4-RD, and parent to a son living with a chronic autoimmune disease.

💛 Keep your care organized
💊 Track symptoms and medications
🫶 Strengthen your care connections
✨ Learn how IgG4ME! can make managing IgG4-RD a little easier — together.

➡️ Register now: https://us06web.zoom.us/webinar/register/WN_eQmx9C1jQnqBpGpdd7Zx_w

10/20/2025

Every story begins with a moment that changes everything:
A doctor saying, “Let’s pray it’s stones.”
An MRI revealing a mass.
A hospitalist saying, “Your diagnosis is pancreatic cancer.”

In our newest video, Dr. John Stone, Executive Chairman of the IgG4ward! Foundation, shares what’s ahead for 2026—and three brave individuals living with IgG4-RD share their journeys from fear to hope.

Together, we can Double the Hope.
Every donation through December 31 will be matched 1:1 (up to $150,000).

Read more here: https://tinyurl.com/u9y33xye

10/14/2025

“Together, we can improve the care of people living with IgG4-related disease.” 💙

Hear from Dr. Luke Chen, hematologist at Dalhousie University, in this short video as he invites you to join IgG4ward! CanJAM, a global virtual event for patients, caregivers, and clinicians happening October 17.

Learn more and register for free ⬇️
http://bit.ly/4oht1FM

💌 If you’ve already registered, please stay tuned to your email inbox for the link to the event!

💙💚💚💙Today, on World Mental Health Day, we reaffirm our commitment to supporting the emotional well-being of those living...
10/10/2025

💙💚💚💙

Today, on World Mental Health Day, we reaffirm our commitment to supporting the emotional well-being of those living with rare and chronic illness. 💚

Since our founding in 2023, the IgG4ward! Foundation has recognized that mental health is inseparable from physical health. We’ve kept awareness, education, and support at the heart of our mission—because living with IgG4-RD means caring for the whole person, mind and body.

Mental health challenges are often part of the journey for those facing rare and chronic diseases, and it’s essential that patients and caregivers alike have access to understanding, compassion, and the right tools to thrive.

Visit our Mental Health Hub for resources, and stay tuned for the launch of our Thriving with IgG4-RD support group—coming soon and led by a Licensed Independent Clinical Social Worker.
Together, we can break stigma, build community, and move IgG4-RD awareness—and wellness—forward. 💙💚

Link to the IgG4ward! Mental Health Hub: https://igg4ward.org/mental-health/

10/09/2025

Watch Dr. Mollie Carruthers from the University of British Columbia share why she’s so excited to co-host IgG4ward! CanJAM — our free global virtual event on October 17.

Innovation. Education. Patient voices from around the world.

Watch the video now, then click below to read more and save your spot: http://bit.ly/3KMxaDf

Don’t miss this chance to connect with patients, caregivers, and physicians across borders.

IgG4ward! Double the Hope Campaign We are deeply grateful to our incredible supporters who make the mission of the IgG4w...
10/07/2025

IgG4ward! Double the Hope Campaign

We are deeply grateful to our incredible supporters who make the mission of the IgG4ward! Foundation possible. 💙

Now, thanks to the generosity of an anonymous donor, we are proud to launch the IgG4ward! Double the Hope Campaign.

📅 From October 7 – December 31, 2025 at 11:59 PM ET, every donation will be matched 1:1 up to $150,000.

🔹 $1 becomes $2
🔹$50 becomes $100
🔹$1,000 becomes $2,000

Your support ensures:
✔️ New educational programming in 2026
✔️ Resources for patients and caregivers
✔️ Stronger connections across the global IgG4-RD community

Together, with our supporters and this generous donor, your impact is doubled.
Thank you for standing with us — together we are building hope for the IgG4-RD community.

Click the link to Double your impact today: http://bit.ly/42xrT8R

10/02/2025

The full agenda for IgG4ward! CanJAM is now LIVE!

Hosted by Canadian leaders Dr. Mollie Carruthers (Vancouver) and Dr. Luke Chen (Halifax), this first-ever virtual Patient JAMboree will connect the global IgG4-RD community on October 17.

🎥 Watch the promo video featuring Dr. John Stone and Katharine Provencher from the historic Ether Dome at Massachusetts General Hospital — then dive into the full agenda here: https://bit.ly/42oroxM

Here’s a sneak peek of what’s inside:
✅ Keynote on the diagnostic challenges of IgG4-RD
✅ Patient panel with lived experiences
✅ Breakout sessions on organ-specific disease, treatments, and communication

What a night in Boston!   IgG4ward! was honored to join the Arthritis Foundation's Commitment to a Cure Gala alongside o...
09/30/2025

What a night in Boston!

IgG4ward! was honored to join the Arthritis Foundation's Commitment to a Cure Gala alongside our ambassadors, patients, caregivers, and friends.

We proudly celebrated Dr. John Stone as a 2025 Marian Ropes Awardee — recognizing his brilliant science, transformative care, and deep humanity that extends far beyond the disease.

Please read the full recap of the wonderful night here: http://bit.ly/4gMhOKW

📣 We’re thrilled to share our latest blog: Announcing the First-Ever IgG4ward! CanJAM On Friday, October 17, 2025, we’ll...
09/25/2025

📣 We’re thrilled to share our latest blog: Announcing the First-Ever IgG4ward! CanJAM

On Friday, October 17, 2025, we’ll host the first virtual Patient JAMboree—bringing connection, education and empowerment directly to the global IgG4-RD community.

Hosted by Dr. Mollie Carruthers and Dr. Luke Chen, The IgG4ward! CanJAM is free and open to all worldwide!

👉 Read the full blog + register here: http://bit.ly/3IG42wK

Join IgG4ward CanJAM 2025 on Oct 17! A free virtual Patient JAMboree with education, patient voices, and global IgG4-RD connection.

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