IgG4ward

IgG4ward! Foundation is the only organization dedicated solely to IgG4-related disease (IgG4-RD ), providing trusted education, advocacy and support.

We empower patients, caregivers, and healthcare providers with resources to navigate IgG4-RD.

05/14/2026

We’re excited to officially announce IgG4ward! BayJAM, taking place July 11 at Stanford University. 💙

In this video, Dr. Matt Baker of Stanford University - host of BayJAM alongside the IgG4ward Foundation - shares an invitation to the IgG4-RD community to join us for a day centered on education, conversation, and connection.

This one-day event will bring together patients, caregivers, physicians, researchers, advocates, and industry leaders for expert-led sessions, breakout discussions, and opportunities to connect with others who understand the realities of living with IgG4-related disease.

Attendees will hear from experts at Stanford, Mayo Clinic, and Massachusetts General Hospital and have the opportunity to ask questions directly to specialists working across the field.

If you weren’t able to attend EuroJAM this year, we hope you’ll consider joining us at BayJAM.

Please feel free to share this post with others in the IgG4-RD community who may be interested.

📍 Stanford University
📅 July 11
🔗 https://tr.ee/bWDUUn

05/12/2026

For many people navigating rare disease, finding answers and feeling understood can take time.

That is one of the reasons EuroJAM matters so deeply to our community.

On May 22 - 23, patients, caregivers, healthcare providers, researchers, and advocates from around the world will come together to share experiences, learn from one another, and continue raising awareness for IgG4-RD.

These conversations help create connection, support, and understanding for those impacted by rare disease.

There is still time to join us for IgG4ward! EuroJAM. Registration link: https://tr.ee/kYXWXM

We are grateful for everyone who continues helping move this work forward together.

05/11/2026

Last week, many of you connected with Andy’s reminder that we have to make mental health a priority.

Living with or caring for someone with a rare disease can take an emotional toll in ways that are not always easy to recognize while you are in the middle of it.

This Mental Health Awareness Month, we want to remind our community that emotional well-being matters too for patients, caregivers, and healthcare providers alike.

Whether support looks like rest, connection, honest conversations, or simply knowing you are not alone, those moments matter.

As part of that support, our monthly support group will be held on May 28 for those navigating IgG4-RD together.

We are grateful for this community and the space it continues to create for support and understanding.

05/07/2026

“What is the IgG4ward! Academy and how will it differ from the current IgG4ward! website?”

That question was recently submitted to the IgG4ward! Good Question Series.

In our newest article, we explore how the Academy is being developed to expand educational opportunities across the global IgG4-RD community through more structured learning resources and ongoing educational tools for patients, caregivers, clinicians, researchers, and healthcare professionals.

The IgG4ward! Academy is currently anticipated to launch in May/June 2026.

Read the full article to learn more: https://tr.ee/ogPQcG

05/05/2026

IgG4-related disease requires collaboration across specialties.

The EuroJAM brings together an international, multidisciplinary faculty to reflect how patients are diagnosed and managed in practice.

Hosted by Dr Emma Culver and the IgG4ward! Foundation, the meeting focuses on advancing care, research, and collaboration.

London, UK
May 22–23, 2026

Learn more about the faculty and program:
https://igg4ward.org/resources/igg4ward-eurojam-a-multidisciplinary-approach-to-advancing-igg4-related-disease/

05/04/2026

“I’ve always promoted mental health for others… but never took the time to look at my own.”

That line stayed with us.
Mental health does not always show up the way people expect. It can be quiet. It can sit behind everything else someone is managing.

At the Foundation, mental health has always been a priority. It will continue to be.

This May, for Mental Health Awareness Month, we’re making space for mental health every Monday 💚💙

If you need support, there are resources available on our website. https://igg4ward.org

04/30/2026

“This community that has grown is one of the great gifts of this disease.”

That was shared in this conversation, alongside something equally important: this can feel unjust. It can feel like a real loss.

Both things can be true.

As we head into May Mental Health Awareness Month, we’ll be highlighting the mental health side of living with IgG4-related disease throughout the month.

In this Caregiver’s Conversation, led by Katharine Provencher and intended for the full community, Nicole Meline shares simple, grounded ways to navigate these moments.

Not by denying what’s hard, but by noticing what’s happening and finding ways to come back to the present.

There is no one right way to cope.
What works can change over time.

But one thing that came through clearly: you are not alone.

🔗 Watch the full conversation and access the reading guide: https://igg4ward.org/resources/how-to-cope-and-live-with-chronic-illness-reflections-from-our-caregivers-conversation/

04/28/2026

🌏Egypt. Iceland. Australia. France. The US.

That’s where people are already registering from.

We’re less than a month out from EuroJAM, and registrations are continuing to come in from across the globe.

If you’ve been thinking about attending, now is a good time to register.

EuroJAM brings together patients, caregivers, physicians, researchers, and industry to focus on diagnosis, treatment, and the day-to-day reality of living with this disease.

Translation services and travel scholarships are available to help make attendance possible.
May 22–23

Register here: https://igg4ward.org/events/igg4ward-eurojam-a-patient-advocacy-meeting/

We’re looking forward to bringing everyone together.

04/21/2026

Who will you meet at EuroJAM?

If you’ve been to The JAM, PeachJAM, or joined CanJAM, you already know this is something a little different.

It’s not just about the sessions.

It’s about what happens when people come together who understand this disease from different angles.

EuroJAM builds on that and expands it.

Hosted by Dr. Emma Culver, this year brings together 25+ speakers, including 20+ physicians.

Patients and caregivers.
Researchers.
Physicians across specialties.

Rheumatology. Gastroenterology. Pulmonology.
Nephrology. Neurology. Endocrinology.
Dermatology. Urology. Internal medicine.

And now, from different countries as well.

Italy. Spain. France. The UK. Sweden. And beyond.

Different ways of approaching care.
Different experiences.
All part of the same conversation.

You’ll hear about diagnosis, treatment, organ involvement, fatigue, flares, and what living with this actually looks like over time.

And just like the other JAMs, it doesn’t stop with the sessions.

If you want to see what’s planned, you can explore everything here: agenda, registration, travel scholarships, translation support:
https://igg4ward.org/events/igg4ward-eurojam-a-patient-advocacy-meeting/

04/15/2026

🌍 IgG4ward! EuroJAM 2026 – Londres

Le Dr Nicolas Schleinitz (Hôpital de la Timone, AP-HM, Marseille) invite les patients, leurs proches, les aidants et les professionnels francophones à participer à IgG4ward! EuroJAM 2026, le premier événement européen dédié à la maladie liée aux IgG4.

📅 22 et 23 mai 2026
📍 Londres

Cet événement réunira patients, familles, aidants et spécialistes venus de toute l’Europe afin de partager leurs connaissances et leurs expériences, et de mieux comprendre cette maladie systémique.

Des experts internationaux seront présents, dont le Dr Emma Culver, le Pr John Stone (Massachusetts General Hospital, IgG4ward! Foundation) et Katharine Provencher (IgG4ward! Foundation).

🌐 Des services de traduction seront disponibles
💙 Un soutien financier limité (bourses de participation) est proposé
👉 Inscriptions disponibles sur le site de la IgG4ward! Foundation: https://igg4ward.org/events/igg4ward-eurojam-a-patient-advocacy-meeting-french/

Dr. Nicolas Schleinitz (La Timone Hospital, AP-HM, Marseille) invites French-speaking patients, caregivers, families, and healthcare professionals to attend IgG4ward! EuroJAM 2026, taking place in London on May 22–23, 2026.

This event will bring together patients and multidisciplinary experts from across Europe to share knowledge, exchange experiences, and better understand IgG4-related disease.
The program will feature international experts, including Dr. Emma Culver, Dr. John Stone (Massachusetts General Hospital, IgG4ward! Foundation), and Katharine Provencher (IgG4ward! Foundation).

🌐 Translation services available
💙 Limited stipends offered
👉 Register via the IgG4ward! Foundation: https://igg4ward.org/events/igg4ward-eurojam-a-patient-advocacy-meeting/

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Website

https://igg4ward.org/

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