NKH Crusaders

10/06/2025

The NKH Crusaders Rare Connections Support Group meets tomorrow at 12:00 PM EST, and there’s still time to sign up. If you’re a caregiver for someone with a rare disease, this group is for you.

Come as you are. Stay for support, understanding, and connection.

Sign up to get the Zoom link:
👉

Join the NKH Crusaders support group to connect with families and caregivers affected by Non-Ketotic Hyperglycinemia, and other rare diseases. Share experiences, find encouragement, and build a network of support in a compassionate community.

09/29/2025

Our community could use some prayers tonight We have many children battling serious infections , some at home some in the hospital. Please pray for Jackie, Zander, Colton , Brodyn, Thaddeus , Braylynn, Anastasia , Jace. Just a mild cold to you or me can be life threatening for our children. Remind them with your prayers no one fight this alone !!

09/08/2025

Caring for someone with a rare disease? Join us for an evening of connection, encouragement, and shared experience.

🗓️ Rare Connections support group meets again Thursday, Sept. 18 at 8:00 PM EST
This group is open to any rare disease caregiver — near or far, new to the journey or years in.

Sign up to get the Zoom link:
👉 https://www.nkhcrusaders.com/support-group

09/02/2025

The NKH Crusaders Rare Connections Support Group meets today at 12:00 PM EST, and there’s still time to sign up. If you’re a caregiver for someone with a rare disease, this group is for you.

Come as you are. Stay for support, understanding, and connection.

Sign up to get the Zoom link:
👉 https://www.nkhcrusaders.com/support-group

09/01/2025

💙 Are you a caregiver for someone with a rare disease? You don’t have to do it alone. 💙

Our Rare Connections support group is a safe space to share, listen, and connect with others who understand the journey. Whether you're newly diagnosed or years into caregiving, there's a seat at the table for you.

📆 Join us this Tuesday at 12:00 PM EST.
🔗 Sign up at https://www.nkhcrusaders.com/support-group

Alone we are rare, together we are strong.

Join the NKH Crusaders support group to connect with families and caregivers affected by Non-Ketotic Hyperglycinemia, and other rare diseases. Share experiences, find encouragement, and build a network of support in a compassionate community.

08/21/2025

Are you a caregiver for someone with a rare disease? You don’t have to do it alone.

Our Rare Connections support group is a safe space to share, listen, and connect with others who understand the journey. Whether you're newly diagnosed or years into caregiving, there's a seat at the table for you.

Join us TONIGHT at 8PM EST.
Sign up at https://www.nkhcrusaders.com/support-group

Alone we are rare, together we are strong.

08/15/2025

📣 Save the Date – NKH Crusaders 11th Annual Conference 📣

We’re gathering in Boston, MA, April 15–18, 2026 for four incredible days of connection, learning, and hope — with a special Banquet on April 17 and a closing breakfast on April 18.

Important Dates to Remember:

9/1 – Hotel discount code released

10/1 – Full speaker list announced

11/1 – Scholarship applications open

12/1 – Conference and banquet tickets on sale

Get all the details and stay updated here: 🔗 nkhcrusaders.com/conference

We can’t wait to see you in Boston! 💙