FSGS and Nephrotic Syndrome Research

03/21/2023

African Americans are at disproportionate risk for non-diabetic kidney disease and FSGS in particular. Most of this disparity is due to two variants in the APOL1 gene. These variants confer resistance to trypanosomiasis, a serious disease in some African regions, and as such they have raised in frequency in Africa. Here at the Laboratory of Inherited Kidney Disease we are further investigating the biology that leads this APOL1-related form of kidney disease. If you are African American affected by non-diabetic kidney disease or have a relative with disease and you want to help with our research studies, we would like to hear from you. Feel free to contact us at aknob@bidmc.harvard.edu

08/25/2021

Hello there. We are looking for a volunteer with NPHS1 associated kidney concerns to give a one time blood sample. If you or someone you know is interested, please email our research coordinator, Andrea at aknob@bidmc.harvard.edu. Thanks so much!

05/28/2020

05/12/2020

"Nephrotic.... What?!" Yes, the name can be intimidating at first, but don't let Nephrotic Syndrome confuse you. It's not a disease, but rather an umbrella term for the collection of signs and symptoms that occur when the kidney filters leak protein into the urine. Learn more below!

03/14/2020

03/08/2020

At a historic meeting held Monday at Harvard Medical School, more than 80 clinicians and scientists came together to commit to a response.

03/06/2020

A local Angeleno who had been living with kidney failure is counting his blessings after receiving a transplant after his story was told on FOX 11.

02/24/2020

Today kicks off Rare Disease Week! Join us for the next 7 days as we push out informative information on your rare kidney disease.

The first thing we want to make sure you're aware of... our friends and colleagues at the National Center for Advancing Translational Sciences and The NIH Clinical Center are co-sponsoring the 10th this Friday, February 28th.

Hear more about the latest collaborative research for rare diseases at the FREE event. Register now for Rare Disease Day at NIH at https://go.usa.gov/xdrgg

12/17/2019

“Today the Administration announced two new proposed rules to address the critical organ supply crisis in America by expanding reimbursable expenses for living donors, establishing quality metrics for Organ Procurement Organizations (OPOs) and increasing the supply of transplantable deceased donor...

12/03/2019

to donate go to: www.nephcure.org Instagram: Twitter:

11/22/2019

Scientists from Sechenov First Moscow State Medical University together with colleagues from the National Research University of Electronic Technology (MIET) have created a prototype device for dialysis that weighs 3.5 kg and fits in a backpack. Sputnik has spoken with the creators of this device to...

11/18/2019

9 year old genius wants to help develop artificial organs

A child prodigy from Belgium is on course to gain a bachelor's degree at the tender age of 9.

10/28/2019

Did you know one in three American adults is at risk for kidney disease? Anyone can get kidney disease at any time. If kidney disease is found and treated early, you can help slow or even stop it from getting worse. Most people with early kidney disease do not have symptoms. That is why it is import...

09/22/2019

Physical fitness is very important in today's world. Everyone is enjoying the benefits of greater strength and feeling better. Exercise keeps your body strong and healthy. Can I take part in vigorous physical activity? Yes. People who decide to follow an exercise program are stronger and have more e...

09/03/2019

In 1925, FSGS was descried as a pattern of tissue injury. Today, we know that this microscopic damage to tissue is not one disease, but rather the “face” of many distinct disorders. Every case of FSGS is different, but most of the time include severe proteinuria, edema, hypoalbuminemia, and hyperlipidemia.

For patients, living with Nephrotic Syndrome can be a life in agony, trying to walk a narrow line between the burden of disease and the burden of current therapies. Equally in despair are the nephrologists, who have nothing left other than cycling through a handful of medications, hoping that one may “stick.”

In this upcoming Clinical Trial Conference Series, Drs. Gipson, Trachtman, Pollak, and Mottl will briefly review our current understanding of FSGS, highlight the latest research, and discuss opportunities for patient enrollment into clinical trials using the DUPLEX trial and PODO trial, both of which are currently enrolling patients suffering from FSGS.

*Join us Tuesday, SEPTEMBER 3rd for our online Clinical Trial Conference Series. Our international community is encouraged to attend, as you only need internet access to join. To register for this FREE conference, visit glomcon.org/join/

09/02/2019

Weather and Natural Disasters: Help for Kidney Patients If you are a patient affected by a hurricane or natural disaster please call the KCER Hotline: 866.901.3773 if you need assistance or are having difficulty contacting your dialysis clinic. Visit the KCER website for updates, support, and resour...

08/22/2019

Lois Cossar says she's on a mission to cycle across Canada from her dialysis chair. Cossar, who began dialysis treatments in Duncan, B.C., two years ago after kidney failure, says a cycling pilot program now offered at the city's dialysis centre is helping to pass the time during treatments.&

08/20/2019

Your kidneys are responsible for a lot more than you might think. Here's what to know about your child's kidneys and their role in health.