Boston Bleeding Disorders Center

06/24/2025

With just a few days left in June, we’re taking a moment to highlight the importance of men’s health and encourage open conversations around bleeding disorders awareness.

Our Nurse Chris Baer shares a timely reminder about the importance of regular check-ins and care.

“As a nurse in a Bleeding Disorders Center, Men’s Health Month is a crucial time to spotlight conditions that can go undiagnosed in men, such as hemophilia and von Willebrand disease. Raising awareness is the first step, many men may ignore symptoms like frequent nosebleeds, prolonged bleeding after injury, or unexplained joint pain. Early detection and proper treatment can significantly improve quality of life and prevent long-term complications. This month, we encourage all men to speak up about symptoms and seek care. Your health is worth it! “

Let’s continue to support the men in our lives in making their health a priority.

05/30/2025

As we near the end of the month, it’s important to remember that mental health awareness doesn’t stop here. These conversations need to continue year-round, and so does the support.

Our social worker, Amanda Stahl, shared a powerful reminder:
“You’re not alone, everyone struggles with their mental health at times, and it’s okay to ask for help. Leaning into your community can help give you a sense of belonging. Whether it’s connecting at an upcoming Boston Bleeding Disorders Center event or showing up for a NEHA gathering, your community is there to support you.”

Together, we can keep the support going!

05/16/2025

UPDATE: Unfortunately, due to unforeseen circumstances, we will need to reschedule our Stretch into the Season with The Boston Bleeding Disorders Center event. We are currently working on identifying a later date. Thank you!
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🔔The Boston Bleeding Disorders Center is excited to gather for our next patient and family event for a morning of safe and effective exercises to bring in the season. An invitation should be in your inboxes 📩 and hitting your mailboxes 📪 soon! We are so excited for you to join us, make sure to RSVP!

05/15/2025

Follow along our social worker, Amanda Stahl, as she takes over New England Hemophilia Association Instagram and Facebook story on Mental Health Action Day!

05/12/2025

Today is the final day of National Nurses Week! 💙

Let’s take a moment to celebrate and thank the incredible nurses who care for our communities with unwavering compassion, strength, and dedication. Thank you, Natalie, Maura, Paula, and Chris, your impact is immeasurable and we're so grateful for you.

Nurses are the heart of healthcare, and your impact is felt every single day.

05/09/2025

Gene therapy is opening new doors for people with bleeding disorders, offering the possibility of longer-lasting treatment. Read more about Terrence Blue’s experience in this article by The Harvard Gazette. Greater awareness like this helps move the conversation forward and can help shift perspectives and support progress.

Terence Blue has spent his life managing the condition. After new treatment, he says, "I am actually healing faster than I ever have."

04/17/2025

Happy World Hemophilia Day from the BBDC team! ✨🩸

Today we join the global bleeding disorders community in raising awareness and advocating for a better future!

Join us in celebrating and spreading awareness:
🔴 wear something red today and share a selfie on social media
#⃣ use the following hashtags on social media and join the conversation
📸 Snap a picture of a landmark lit up in red. See full list of landmarks lighting up in red: https://wfh.org/world-hemophilia-day/

04/15/2025

Wear something red and join the New England Hemophilia Association to celebrate World Hemophilia Day! NEHA will be hosting two celebrations: Wednesday, April 16th in Biddeford, ME and Thursday, April 17th in Somerville, MA.
To register, visit https://www.newenglandhemophilia.org/events/whd25/

In recognition of World Hemophilia Day, we are hosting three special celebrations on April 16 and 17.

04/14/2025

¡Apúntate en su calendario! El 17 de abril es el . El tema de este año es "Acceso para todos: Las mujeres y las niñas también sangran".
Puedes participar en la campaña "Ilumínate de Rojo" del Día Mundial de la Hemofilia, usar hashtags al publicar en redes sociales, compartir tu historia y actuar a nivel local. Usa recursos y materiales como carteles y portadas para redes sociales en wfh.org/whd.

04/14/2025

Mark your calendars! April 17th is . This year's theme is Access for all: Women and girls bleed too.
You can get involved by participating in the World Hemophilia Day Light it Up Red! campaign, use hashtags when posting on social media, share your story and take action locally. Download resources and materials like posters and social media covers from wfh.org/whd.

03/30/2025

Happy Doctors' Day! 🩸🩺

Today, we celebrate Dr. Croteau, Dr. Connell and all the incredible doctors who dedicate their lives to treating and managing bleeding disorders. From navigating complex treatments to providing hope and support, your work changes lives every single day. We are beyond grateful for your dedication, research, and relentless pursuit of better care for the bleeding disorders community.

Thank you for all that you do! 💙

03/26/2025

Our social workers Jackie Miranda and Amanda Stahl attended the Wonderfund’s Period Party, helping assemble period packs for kids in the foster care system. These packs provide essential supplies—and this year, they also include an informational card created by our clinical team at the Boston Bleeding Disorders Center! The card offers guidance on what’s normal (and what’s not) when it comes to periods, helping young people in foster care feel informed and empowered.