Severe Chronic Neutropenia International Registry

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The Severe Chronic Neutropenia International Registry (SCNIR) is a global organization dedicated to finding the causes, consequences, and best treatments for severe chronic neutropenia (SCN).

02/10/2026

Action Needed: Annual SCNIR Medical Update Form

We’re updating our records and we need your help! Please complete our 10-minute form to ensure our research reflects your current experience. Check your inbox for the SCNIR Annual Medical Care Update Form and complete today. If you didn’t receive the form, please reach out to us at SCNIR-dl@childrens.harvard.edu. Thank you for supporting our ongoing research!

Happy New Years from the SCNIR! We hope everyone has had a wonderful holiday season and wish you all the best for the 20...
01/02/2026

Happy New Years from the SCNIR! We hope everyone has had a wonderful holiday season and wish you all the best for the 2026 year. Reminder that our survey opportunity is closing soon on January 15th. Please reach out to our team if you have any questions on how to participate.

12/04/2025

Watch our short informational video about our new survey study opportunity! The SCNIR values our participants' voices and wants to hear about your experiences. If you have any questions, please contact us at SCNIR-dl@childrens.harvard.edu.

We are excited to share our 2025 SCNIR Fall Newsletter with you all! Please see the attached images for more details. 😄
09/25/2025

We are excited to share our 2025 SCNIR Fall Newsletter with you all! Please see the attached images for more details. 😄

Please see the PSA attached below for an opportunity to share your neutropenia experience with us! If you are not alread...
05/06/2025

Please see the PSA attached below for an opportunity to share your neutropenia experience with us! If you are not already consented to the SCNIR or have any questions, please email us at scnir-dl@childrens.harvard.edu.

Dear SCNIR Participants,We wanted to share an important update regarding the recent Neupogen shortage affecting many of ...
03/24/2025

Dear SCNIR Participants,

We wanted to share an important update regarding the recent Neupogen shortage affecting many of you. Please find the attached letter from our investigators addressing the situation.

Please email us at scnir-dl@childrens.harvard.edu or call our study line at 617-919-1574 with any questions.

Welcome all! We're happy to have our Facebook officially up and running. We'll be posting here regularly with a variety ...
02/11/2025

Welcome all! We're happy to have our Facebook officially up and running. We'll be posting here regularly with a variety of updates and information.

If you missed out on our 2024 SCNIR Family Day, follow this link to watch the recordings: https://www.scnir.org/familydayrecordings. Several more recordings will be available in the coming weeks, so there's more to come soon!

Reminder to email (SCNIR-dl@childrens.harvard.edu) or call (617-919-1574) with any questions or updates.

04/23/2024

Address

Boston, MA

Telephone

+16179191574

Website

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