VITFriends Vitiligo Support Group

09/23/2025

VITFriends congratulations Jean-Marie Meurant and the VIPOC Leadership for their continued work of Advocacy and UNITY within our Global Vitiligo Community.

VITFriends relationship has been long standing. For 2025, it is wonderful to see our new U.S.A representatives at this years European Academy of Dermatology and Venereology Congress - Justin T Hall Alisha Archibald Sharon M. King, Steve Taylor, and our advisor Yan Valle.

Finally, it was also lovely to see Vivian Najjuka from Nigeria, a longtime friend since 2015, when she wrote asking to join us on the U S Capitol Steps for our first National Vitiligo RALLY.

VITFriends is a Massachusetts-based registered non-profit (501c3) patient advocacy organization dedicated to educating, empowering, and encouraging people living with vitiligo to embrace their skin and live their best lives. Founded with a vision to enhance quality of life, VITFriends emphasizes sel...

09/21/2025

As the President and Vice President of VITFriends, Patricia Rossy and I, along with the support of our spouses traveled to Windsor, Connecticut.

It was our pleasure to attend the reorganizing and renaming of the Connecticut VITFriends group on August 16, 2025 - Connecticut Voices for Vitiligo.

Congratulations to Millicent Meadows who is a FOUNDING MEMBER of VITFriends and in 2009, she attended our very first VITFriends Boston support meeting. She came with her mother Rev Allen (RIP)and brother Todd (RIP) both of whom had Vitiligo. Millicent has serve on our Board and is the Leader of CT.

We WELCOME Terry Perry a new member to the CT Group and will serve alongside Millicent in the role as Co-Leader of CT.

Here's a look at the August meeting in CT:

09/15/2025

Let nonsense float downriver, friend.

09/15/2025

VITFriends Vitiligo Support Group is proud to introduce a NEW children's book to our shelf.

"Angel's BIG Splash" is authored by Mallory Habstritt a beautiful young lady who has Vitiligo. We met Mallory at the 2022 World Vitiligo Conference, hosted by our Minnesota Leader Alicia Roufs and her team.

Thank you Alicia, Mallory and the MN Team for gifting us with this book. Here's a photo of the page that spoke to me. Also, here's the Amazon link where you can purchase this lovely book. https://a.co/d/hSCX3Pr

Finally, we give the book our best rating - #5.

09/13/2025

This book authored Ali Standish entitled "How to Disappear Completely" was the center of discussion today for our Book TALK Session by our Purple Patch Teen & Young Adults Group.

Part 2 will be announced shortly and we want to INVITE anyone of any-age with Vitiligo to attend, this is an insightful and empowering read. Please, look out for our announcement and bring a friend along with you. We are also hoping to invite the author to join us.

Write or CALL us with QUESTIONS:
vitfriendsorg@gmail.com - - 844-374-3639

ENJOY this short sample of the TALK today:

Book Talk - "How to Disappear Completely" Author Ali Standish

09/12/2025

On this Podcast "The Journey with Vitiligo" we feature our special GUEST: Cassie Abrams

- Cassie shares her journey with several autoimmune diseases - Whatis is like LIVING with Vitiligo - Being a part of our VITFriends Purple Patch Group - Why she

09/11/2025

Do you ITCH? Does your Vitiligo areas ITCH?

Our show entitled Vitiligo Medical is hosted by our Lead Medical Student Intern - Kristin.

This is her Interview with Itch Expert, Dr. Brian Kim, who is an itch expert from Mount Sinai Hospital, NY.

A Vitiligo Support, Education and Awareness Network.

09/10/2025

JOIN our BOOK Talk:

We wanted to REMIND our TEENS, Young Adults, Medical Student and Parents that even if you have NOT read the BOOK to please plan on joining, even if it is for a short time.

The book for our TALK is - "How to disappear Completely" and I have sent an INVITE to the author as well.

So, have there been times when you may have wanted to disappear because of your Vitiligo? Let's TALK about it! This is being led by our Medical Student and a person with Vitiligo - Cassie!

REGISTER Here:
https://us02web.zoom.us/meeting/register/8emcQLknRpK49guaBN3oIA

After registering, you will receive a confirmation email containing information about joining the meeting.

FUTURE Meeting:
October 11 - Priyanka is working with our GUEST - Erika of Living Dappled
December 13 - Bella is working on the TOPIC: AUTOIMMUNE

Stay TUNED!

Welcome! You are invited to join a meeting: Purple Patch Teen Sept Meeting - Guest: Cassandra - Book Club. After registering, you will receive a confirmation email about joining the meeting.

09/06/2025

What an amazing opportunity to attend the US Patient Advocacy Summit hosted by Incyte Dermatology.

Attending, were invited guest and USA Leader representing the communities from Eczema, HS and Vitiligo Groups.
The theme was

09/03/2025

We are extremely grateful for the work and the amazing relationship with our Medical Student Interns.

Debby Cheng is our Harvard University Medical Student Intern and we ask that you would take a look at this 6 Minutes SURVEY she has created.

Your feedback is NEEDED and Necessary.

Thank you!

Thank you for taking this short survey. We're working on a resource called the First Visit Toolkit, designed to help people with vitiligo feel more informed, supported, and empowered during their first dermatology visit.

09/03/2025

Purple Patch Teen Presents: Summer Reading!

JOIN our Medical Student and Vitiligo Patient Cassie Abrams who will lead us on this journey.

Grab your favorite snack, find a comfy seat, and join us for our Summer Reading event featuring How to Disappear Completely by Ali Standish!
Date: September 13, 2025
Time: 5 PM EST
Where: Register ONLINE at:
https://us02web.zoom.us/meeting/register/8emcQLknRpK49guaBN3oIA

We’ll dive into an inspiring and heartfelt story, share our thoughts, and connect with other book-lovers. Whether you’ve read the whole book or just want to listen in, you’re welcome!
Let’s end the summer with stories that stick with us.

Welcome! You are invited to join a meeting: Purple Patch Teen Sept Meeting - Guest: Cassandra - Book Club. After registering, you will receive a confirmation email about joining the meeting.