MGH Neurology

05/22/2026

05/22/2026

Check out the Healey & AMG Center's newsletter on preclinical research: https://conta.cc/49Tubm8

Read about new publications and projects from the bench, as well as community events and recent awards.

Email from Massachusetts General Hospital Spring 2026 Newsletter: Preclinical Research   Sean M. Healey & AMG Center for ALS Spring 2026 newsletter: Preclinical research At the Healey & AMG Center for

05/21/2026

This , we're asking Healey & AMG team members about the care and resources they provide for people living with ALS.

Learn more about Dr. Cynthia Moore's role and the PACT program.

"ALS affects the entire family, including children and grandchildren. That’s why the Daniella Lipper ALS Parenting At a Challenging Time Program was developed. The ALS PACT team offers information and support to adults cared for in the Healey & AMG Center, to help them feel confident about supporting children’s coping with a loved one’s ALS. Thanks to generous support from the EGL Foundation, there is no charge for our service. Our freely available online handouts discuss topics like communicating with children about a new diagnosis, helping children adjust to changes in a loved one’s breathing, swallowing and mobility, and deciding when to seek psychotherapy for a child."

Find the PACT handouts here: https://www.massgeneral.org/neurology/als/services/als-parenting-pact

05/20/2026

On the last day of the Society for Clinical Trials Annual Meeting, Lori Chibnik, PhD, MPH, Brittney Harkey, PhD, MS, Lindsay Heyd, BA, and Hong Yu, MS, will present "From Integration to Dissemination: Data and Statistical Management in a Perpetual ALS Platform Trial" at 11:00 AM MT.

Check out the program here: https://www.sctweb.org/meeting/

05/20/2026

In a recent webinar, Healey & AMG team members shared updates and answered questions related to research access for the HEALEY ALS Platform Trial. Watch the recording here: https://www.youtube.com/watch?v=XMjcu0pLFDs

On this , we would also like to thank all clinical trial participants and their families, researchers, and collaborators for helping advance research in ALS.

Catherine Small, Patient Navigator for the HEALEY ALS Platform Trial, and Judi Carey, RN, Research Access Nurse at Mass General, provided updates about enrol...

05/19/2026

At the Society for Clinical Trials Annual Meeting today, Healey & AMG Center team members will present the following:

▪️ 9:00 AM MT - Lia Tamburello, BA, Poster: Finding the Sweet Spot: Optimizing Site Activation for Efficient Enrollment
▪️ 4:00 PM MT - Erin Steinhart, MA, Presentation: The NN111 ExTINGUISH Trial: Lessons Learned in Trial Implementation, Recruitment, and Retention for a Rare Disease in an Acute Care Setting, International Clinical Trial

View the full program and list of presentations from Healey & AMG Center team members: https://www.sctweb.org/meeting/

05/18/2026

Please join us on Thursday, 5/21, at 5:00 pm ET for a community Q&A webinar featuring Kate Connaghan, PhD, CCC-SLP, of the MGH Institute of Health Professions and Katey Burke, PT, DPT, NCS, of Massachusetts General Hospital. They will present on social connectedness in ALS.

Register:
https://mgb-org.zoom.us/webinar/register/WN_JW9rQBhTRFW5uoUIDtJguw #/registration



Network of Excellence for ALS - NEALS ALS ONE I AM ALS EverythingALS Les Turner ALS Foundation Muscular Dystrophy Association ALS TDI The ALS Association North Star ALS

05/18/2026

Today is the start of the Society for Clinical Trials Annual Meeting! The Healey & AMG Center has several team members presenting throughout the next few days, including the presentations below today.

▪️ 10:15 AM MT - Brandi Negrón, MS, Presentation: Dual Coordination Center Strategies for Centralized and Efficient Vendor Contracting in the ALL ALS Consortium
▪️ 10:15 AM MT - Erin Steinhart, MA, Presentation: Formation of the NeuroNEXT Patient Advisory Council: Challenges and Lessons Learned
▪️ 11:30 AM MT - Saira Qadir, Roundtable: Enhancing Cross-Functional Interactions: The Three Cs for Data Managers
▪️ 2:45 PM MT - Ashlyn Butkowski, MS, Poster: Trends of Clinical Trial Designs Over the Last Decade

View the full list of Healey & AMG Center presenters and the meeting program here: https://www.sctweb.org/meeting/

05/14/2026

Healey ALS MyMatch prioritizes high quality biomarker data in early-phase ALS clinical trials, paving the way for faster advancements in treatment.

Learn more about the program on our website: https://www.massgeneral.org/neurology/als/research/healey-mymatch

05/13/2026

In this new paper, Healey & AMG Center researchers and collaborators measured tau levels in ALS and healthy control plasma samples. They found that plasma pTau-T181 levels are consistently elevated in ALS, supporting future studies to define its potential utility as an ALS biomarker.

Read the abstract here: https://onlinelibrary.wiley.com/doi/10.1002/mus.70266

Introduction/Aims Reliable biomarkers for amyotrophic lateral sclerosis (ALS) remain limited. Although previous studies have shown altered cerebrospinal fluid (CSF) tau measures in ALS, the clinical...

05/12/2026

This and , we asked Colleen what her role at the Healey & AMG Center for ALS means to her and what kind of care she provides.

“During my time as a nurse practitioner at the Healey & AMG Center for ALS, I have had the privilege of working alongside an inspiring multidisciplinary care team. ALS affects many aspects of daily life, and it means a great deal to help provide coordinated care that supports the whole person, not just the diagnosis. What I value most is helping people feel seen, supported, and cared for at every step of their journey.”

Learn more about the center on our website: https://www.massgeneral.org/neurology/als