03/08/2026
Jennifer Andrews, mom to Josephine (9, with PWS) experienced the incredible power of art while in Washington, D.C. last week for Rare Disease Week.
"It was incredibly powerful! During the event, the Rare Artists spoke about the power of art to communicate things words can’t. They’ve brought their artwork into congressional offices and shared it with lawmakers, saying, ‘I could tell you about my rare disease, but you can also look at this, and it will tell you everything you need to know.’ They talked about expanding access to art for everyone in the rare disease community as a meaningful form of expression, and about the powerful way art brings people together." - Jennifer Andrews, mom to Josephine (9)
PWSA | USA's Rare Aware Art Share is a way for individuals with PWS to show us who they are and how they advocate for themselves, whether at home, in school, in their community, or legislative offices. This is not a competition or a fundraiser, but simply a way to showcase our loved ones with PWS and create a space for their artistic voice to be heard. This year we're taking this art share to our representatives in D.C.!
There is no right way to advocate or raise awareness. Every voice matters, and every action counts.
We are accepting digital submissions of artwork until April 1, but why wait? Have your loved one create their piece today!
Learn more and submit at https://www.pwsausa.org/pws-rare-aware-art-share/
