Unsteadyandready

Unsteadyandready Hey Erin here Diagnosed with ALS at 23
(15)

02/16/2026

Let’s be real, doing anything adaptive when you have ALS never looks pretty or easy…..and it’s not. Plus I’m 6-2” and part paralyzed and part stiff as a board. It’s a lot! Also, can’t move my fingers for thumbsdown 👎🏼which is the symbol for “HEY IM DONE IN HERE”. Lol.

Hey I’m Erin and I have ALS at 26. I’m here to bring awareness to a terminal disease without a cure. That any one at any age can get this disease, and no one knows why. (Another 👎🏼)

Cheers and massive amounts of love to the people and non profits who go out of their way to make adventures happen for those of us who can’t anymore.

02/15/2026

Fresh out of the wind tunnel I was still catching my breath

02/14/2026

In my case it’s random. My bro is just fine.

90% of all cases of ALS are sporadic (non genetic) they tested me because they thought I was too young for it to be sporadic. But turns out, I’m not.

02/14/2026

If I can do it, I will!

02/08/2026

ALS is concluded when all other crappy diseases are first ruled out.

After I was diagnosed I felt so down, if it was my lot in life to have a massive health crisis at 23 why couldn’t it be something with even a little bit of hope for a cure?

Like I would like to have any other disease instead of ALS. Which sounds weird I know, but just being real

At 23 I was diagnosed. I didn’t recognize the symptoms, I just thought I needed to join CrossFit and so I did. It didn’t help

02/06/2026

It was hard not to kick the tattoo artist

02/06/2026

This isn’t where I thought life would take me.

02/05/2026

Now I can’t move my hands anymore.

02/04/2026

Spasticity makes my legs so stiff. Redwoods! The sauna surprised me by how much my legs started moving.

02/04/2026

I didn’t plan this life.

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Brea, CA
92821 - 92823

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