Unsteadyandready

Unsteadyandready Hey Erin here Diagnosed with ALS at 23
(21)

04/22/2026

The exhale of relief at reaching the rail on the ferry. My mom asked “are you sure you want to do this?” I have ALS, yes I want to do everything until I can’t anymore.

04/20/2026

Maybe you picked it up before my mom could?

I guess it depends on just how twisty your humor is

I have ALS welcome to my journey!

I think it’s so weird that I’m incredibly ill with ALS but then sometimes it doesn’t look like it at all in pics. Thanks...
04/20/2026

I think it’s so weird that I’m incredibly ill with ALS but then sometimes it doesn’t look like it at all in pics. Thanks to my mom for propping me up today ❤️

There are scammers out there pretending to be me. Please don’t fall for it! Report them. UnsteadyandReady is my only ac...
04/18/2026

There are scammers out there pretending to be me. Please don’t fall for it! Report them. UnsteadyandReady is my only account. Please protect yourself against fraudsters!!!! - Erin

04/16/2026

Nobody talks about this part of ALS.
The part where your person gives up their life and picks up yours.
My mom did that for me. She became my hands, my voice when I am too tired to use mine, my headrest adjuster, my glam squad, my medication alarm, my appointment keeper, my back scratcher , That is not even close to the full list.
She does all of it without being asked. Every single day. And somehow, in the middle of all of that, she still manages to just be my mom.
I would not survive without her. I mean that literally.

Tips to avoid a broken chair please!! Drop a comment 🙏🏼. I have a permobil I was so freaking uncomfortable on my littl...
04/15/2026

Tips to avoid a broken chair please!! Drop a comment 🙏🏼. I have a permobil

I was so freaking uncomfortable on my little foldable travel chair in Florida , I can’t do that anymore. So it’s my big 300lb chair I’m bringing.

In 2 weeks my mom wants to show me one of her favorite cities and I’m nervous the airlines might damage my chair, is there anything we can do to keep it safe.

Ugh the stress 😖

Flying Delta.

ALS doesn’t damage your lungs. My lungs are fine.It damages the muscles that RUN your lungs. Specifically your diaphragm...
04/12/2026

ALS doesn’t damage your lungs. My lungs are fine.

It damages the muscles that RUN your lungs. Specifically your diaphragm.

I’m not a doctor, I’m a 26 yo with ALS and was given this advice when I was diagnosed. …Practice diaphragmatic breathing and try to strengthen that ability.

Has it worked? Maybe?? I’m not really sure but in a disease where there is no cure, I’ll give it a go.

04/11/2026

Who knew you could get ALS at 22? Not me. I was unbalanced and blaming the wind

I had all the symptoms starting at 22 but went a year blissfully unaware that ALS had already begun shutting me down.

And when I was diagnosed I looked at my mom and said…. what’s ALS? 😳

My mom’s “high tech” invention. These hold toast, popsicles, quesadillas, sandwiches but today.. peeps.
04/11/2026

My mom’s “high tech” invention. These hold toast, popsicles, quesadillas, sandwiches but today.. peeps.

04/09/2026

“Mom....! I need you to just cut it off please”

I’m so weak in my arms now. It’s too hard to wrestle with it.

I have a method to putting on my clothes
AND that bra had to die! It used to be fine in the beginning, but my abilities change constantly.

On a side note, looking at this video I mourn my back muscles,
where are they?!

Hey, I’m Erin and I was diagnosed with ALS at the age of 23. I’m here to let the world know that Amyotrophic Lateral Sclerosis is no joke. What is a joke is that there still isn’t a cure for this fatal disease..

My creative mind doesn’t have ALS, but my body does.
04/08/2026

My creative mind doesn’t have ALS, but my body does.

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