Inflammatory Breast Cancer (IBC) Research Foundation

10/21/2025

While not common, leptomeningeal metastasis are a challenging type of cancer spread. If you'd like to learn more, here's an outstanding webinar by two experts in the field.

10/06/2025

If you have questions about health insurance, worker rights, and estate planning and more, for those facing cancer....this is the on-line conference for you. These folks "know their stuff" and you'll come away with lots of new info and a great resource.

Free online conference on cancer rights, navigating finances, health and disability insurance, employment, advocacy, & more.

10/03/2025

Excited that our Exec Director's post for on LinkedIn is getting noticed. See this post by OncoDaily

Ginny Mason: Beyond Pink - Practical Support for Breast Cancer Patients / Breast Cancer, cancer, Ginny Mason, OncoDaily, Oncology

09/25/2025

As a one-stop resource hub for breast cancer patients living with brain metastasis, we are committed to sharing cutting-edge information and resources in a simple format. Curated by fellow patients and supported by nonprofit funding, our mission is to connect you to knowledge and support tailored sp...

09/15/2025

We're sharing this link for metastatic patients who might want to attend Stage 4 conference by LESLIE'S WEEK There's also a chance to win an awesome vacation! Click the link to learn more.

To give our LESLIE'S WEEK Stage 4 MBC Honorees a voice in their diagnosis, treatment, and living results by increasing their understanding of the language in communicating with those who treat them in their MBC quest for longevity. This is an opportunity for attendees to gain an understanding of the...

09/10/2025

IBCRF partners with Survivingbreastcancer.org to provide this montly virtual support group to those dealing with IBC. This is for anyone dealing with IBC. Lead by a professional counselor who is ready to help address individual issues and provide support for those who need some encouragement. Registration is free and needed to receive the link to join.

Join the Inflammatory Breast Cancer SBC community, meet others diagnosed with IBC, and connect with those who truly understand the unique needs we all face.

09/07/2025

This is a great book to help families dealing with engage children in a discussion about how they are coping and what questions do they have. Gilead Sciences will send a copy or link to the e-book version. Click on the link in the shared post.

08/26/2025

Do you have a special pet that's "been there" to help you through your IBC experience? We know that pets can provide comfort, companionship and even encourage people to 'get off the couch' and care for them. Consider a donation in honor or memory of that special furry, feathery or even scaley friend! https://ibcresearch.org/get-involved/donate/

08/26/2025

This link will take you to the journal article presenting data validating the Diagnostic Scoring System developed by the IBC Collaborative physicians, researchers and advocates of IBCRF, Milburn Foundation and SG Komen.

AbstractBackground. Susan G. Komen, the Inflammatory Breast Cancer (IBC) Research Foundation, and the Milburn Foundation convened patient advocates, clinic

08/18/2025

Check out this webinar being offered tomorrow, August 19, by Survivingbreastcancer.org & Triage Cancer. We all know dealing with healthcare has become a nightmare. Triage Cancer does a great job of getting to the basics and provides excellent guidance when we can feel out of our depth and frustrated. (the date listed in the clip below was for an earlier event...current event is tomorrow the 19th). We highly recommend this webinar.

Triage Cancer Conferences cover key tips to help navigate legal and practical issues, reduce the financial burden of a cancer diagnosis, and lower stress.

08/15/2025

The diagnosis and treatment of cancer has changed a lot since the 1990's. Our Exec Director was interviewed for this story on the advent of biomarkers and how cancer treatment is now more personalized. We're grateful for the continued research than improves outcomes.

“It’s a very different world now in cancer,” said longtime patient advocate Ginny Mason. “Now you need to understand the subtype of your cancer. You need to know what your biomarkers are." Curious about how cancer care is transforming at Fred Hutch Cancer Center and beyond? Read on.