07/06/2024
I hope everyone had an amazing Fourth of July! I feel like I should put something for an “update” everyone has been so amazing to call and message with prayers and well wishes. ♥️♥️I don’t have much of a plan still but Mayo would like to see me and do more testing this month. They believe my tumor is benign but would like me to meet with the sarcoma clinic, they believe they need to reduce the size of the tumor before removal. This will hopefully give me better chances of keeping more of my bladder.
Since the tumor is an IMB (inflammatory myofibroblastic tumor) it “should” all be contained in this one tumor. But, the bladder isn’t a place they have seen this before. It’s very rare and currently there has not been a lot of research on them. Other places they have been found are in lungs or eyes. This is why they need more scans to check my chest and be sure it has not metastasized in to any other organs.
They have so many uncertainties that they can’t be sure of until it is removed, so for this reason I am still quite uneasy. They don’t know if my pain will go away post surgery and they don’t know how much of my bladder has been damaged by this and the previous procedure to stop the bleeding.
I am thankful for a positive outlook currently. People have been so generous and understanding. At this time I can do most all things normally but, wear out super quick. Going to Mayo is a very humbling experience. I definitely have a new perspective of what struggle is. There are so many sick people there. I am glad I have some answers even if they aren’t exact. I feel my outcome will be better than most. I am grateful for all the doctors who have the knowledge and skill to make it that way for me.
Again I appreciate all the amazing people I have in my life. Some of these days have been pretty rotten and I am sure there will be more. But, with all the best people in my corner I feel I have way more strength to get through this.
As far as my business goes, I am doing what I can. I am trying to work half days. I hope that before my surgery I can increase that but, having too many people on the schedule makes it hard to be flexible for whenever Mayo calls and would like me there. At this point I am willing to put about anything on pause so I can expedite this process and get this little monster out of me. If I haven’t rescheduled you or reached out I’d like to, but feel I should wait until this portion of the testing is done and a surgery is scheduled. Thank you for being understanding as this isn’t ideal at all, being self employed is an amazing opportunity and I would not change it for the world. In times like these it is hard to let the people you love and care for so much wait.
