http://nmdp.org/, https://tia-strong.itemorder.com/, https://www.gofundme.com/f/support-tias-fight-against-severe-aplast

Tia Strong, 1309 Beacon St, Brookline, MA (2026)

04/23/2026

A year ago, I remember sitting in the hospital asking my husband, “Why is this happening? What is the point of all of this? I can’t see the light. I don’t understand why this is part of my story… What is God trying to teach me?”

There were so many questions. And if I’m being honest, some days those questions still exist.

But a month ago, I got a call from my cousin, Lexi…

“Hey T, I just found out I’m a perfect match for someone. I’m going to do it… because of you.”

I mean, wow.

From the very beginning of this journey, the one thing I held onto was this: maybe my story could help save someone else’s life. Even if it was just one person, I told myself it would all mean something.

And today… it does.

Today, my beautiful cousin donated life-saving bone marrow. She signed up hoping to save my life, but instead, she was given the chance to save a complete stranger’s.

And I know that stranger is feeling something that’s impossible to fully put into words because I’ve been there. The kind of gratitude that changes you forever.

What an incredible act of selflessness… to put your life on pause for someone you’ve never even met.

Today feels like a full circle moment. And I am so unbelievably grateful and so proud of you, Lex.

You are a hero. Today and every day.
You may have signed up for me, but what you gave today is something so few people ever get the chance to give. I love you so much. Thank you for doing something that means so much to me. My heart feels so full today.

And now, it’s my mission to reach as many people as I can and make a difference. If you haven’t already, please consider signing up to become a donor. You truly never know whose life you could save.

Text TiaStrong to 61474 and you’ll get a link to have a swab kit sent right to your door.

It would mean the world to me. ❤️

04/07/2026

Today I was officially weaned off of my Anti-Rejection medication!!!! Huge win in the transplant world!!!🥹❤️

03/10/2026

Just a little update:

I’ve gotten some messages asking how my new treatment was and how I was doing so I figured I was due for a little update.

My new treatment is going great! I do feel crummy for a couple days after it but I can’t complain! I am finally 1 month off of steroids which is a huge win!!! We are slowly starting to wean some of my other big medications. It’s so nice to finally be able to tell my doctor “I’m doing good!” And I know he feels the same way!

We also got to visit my Uncle Joe who has been admitted to Dana Farber since August. He is battling Acute Myeloid Leukemia and he is so incredibly strong!!! I ask you to please keep him in your prayers, I know he would be so grateful for all the prayers sent his way! You got this Uncle Joe!!! I love you❤️

Xoxo,
Tia🫶🏻

03/06/2026

One year ago, life felt normal.
I was a pediatric ICU nurse, a travel nurse, making lifelong friends along the way. I was four months into married life. Tommy and I were talking about having kids. I felt content. Fulfilled. Happy.

And then, in a split second, everything changed.

I had no idea what was coming. All I heard on the other end of the phone was, “Your blood work is extremely abnormal.”

A couple weeks later, my world completely flipped. I went from caring for critically ill children to being the patient myself. And let me tell you , being on the other side is HARD. A kind of hard that’s difficult to put into words.

Instead of getting overly sentimental, I want to share a few things I’ve learned along the way:

1. The blood pressure cuff really is annoying. To every 3 year old I told, “It’s ok buddy, it’s just a quick hug” … I’m sorry.

2. IV pumps? I used to think I heard them in my sleep before all of this. Now they genuinely trigger me. I may have “accidentally” restarted my own fluids a few times. Sorry nurses, the nurse in me was just trying to help. 🙈

3. When patients said, “Ew, I can taste the flush,” I definitely doubted them. They were right. You can taste it. And yes it’s ew.

4. When someone seems grumpy, I’ll remember week 6 or 7 in the hospital when I felt like screaming at anyone who walked into my room. Patience goes a long way.

5. I will always say thank you. It matters more than you know.

6. I will never take a single day for granted again.

7. The little things? They’re actually the big things.

8. When nothing makes sense, find one small good thing to hold onto. Sometimes that’s enough to get you through the day.

9. My respect for caregivers, nurses, doctors, techs, paramedics, receptionists, every single role has grown on me in ways I can’t express.

10. IV Decadron pushed too fast absolutely causes an itchy butt. To my tiny patients… I’m so sorry.

11. IV Benadryl >>> PO Benadryl. (IYKYK 😂)

12. You are so much stronger than you think.

13. If you can move your body, do it. Everyday. Because some people can’t.

14. Dark color platelets >>> light color platelets. (IYKYK🤣)

15. Your health is everything. Take care of yourself.

16. Do not skip your annual checkups.

17. All those “things” you GET to do, those are privileges. Don’t forget that.

18. Hard times show you who truly shows up. Those people? They’re family.

19. Choose your spouse like your life depends on it because one day, it might.

20. Hold your people close. Always.

21. Lastly, life can change in an instant. Appreciate every single day you’re given. We truly never know what tomorrow holds.

And finally thank you. Whether you’ve been here since the beginning, somewhere in the middle, or you’re just arriving now… your support means more than I can ever fully explain.

I hope somewhere along this journey I’ve taught you all one or two things. ❤️

Xoxo,
Tia 🫶🏻

02/26/2026

Over the last year, I have seen countless ways this community has rallied around Tommy and me. The love and support we have felt is something I cannot fully describe but I hope one day I’ll be able too. My new mission in life is to make sure others who are facing difficult times feel that same sense of support we are so lucky to have.

I couldn’t be more grateful. This past year has shown me a lot, opened my eyes to a lot but most importantly it showed me what incredible things that can happen when people come together as one.

02/04/2026

A little update:

Truthfully, I wasn’t sure I was even going to share this update. But here’s to me sharing everything including life post transplant. 🤪

While my blood results post transplant look great, some of the after effects have been tough. I’ve been struggling with GVHD of the gut. For those who don’t know, GVHD (graft-versus-host disease) happens when your donor cells attack your body. After a transplant, acute GVHD can actually be a good sign, it means the donor cells are active, alert, and doing their job. But when it lingers and becomes chronic, it can be dangerous and very disruptive.

My doctors have tried a few medications to help, and while they’ve provided some relief, they haven’t completely solved the problem. Many days I deal with stomach pain, nausea and GI issues. For a while, I told myself I could live like this because it’s better than where I was before transplant. But the truth is, I can’t and I hope this new immunotherapy treatment will do just that! 🙏🏻

I share this not just as an update, but in the hope that it might help others who are post transplant or who will be one day. Life after a transplant is strange and exhausting, but it’s also rewarding. It teaches you strength you didn’t know you had and connects you with a community that makes you feel so grateful. I hope that sharing my story helps even one person feel a little less alone.

As always, thank you for listening, for keeping me in your prayers, and for being here.

Xoxo,
Tia🫶🏻

01/29/2026

Someone messaged me yesterday and said “your strength inspires me in my own personal journey”. It made me pause and really think about the word “strength”.

A year ago, strength meant something completely different to me. Strength was physical, strength meant being able to swing up a kettle bell heavier than me, proving what I could lift.

Before SAA, I thought I was strong. I now know that strength is what shows up when life feels heavy. Strength is receiving hard news but still choosing to see the good. Strength is allowing yourself to feel fear, grief, anger and uncertainty and still keep going. Strength reminds you of your resilience. Strength helps clarify what truly matters in this life.

01/25/2026

Yesterday was such amazing turnout for Tia Strong!

We are so incredibly grateful for the entire Green Island Heatly staff who made this event possible. You guys truly put so much time and effort into this day and it truly showed!! Thank you to Punk Rock Saves Lives, we were able to get out 30 more swabs to save more lives!!!!! It makes my heart so incredibly happy!!!

Lastly thank you to everyone who came out to support Tia Strong, thank you from the bottom of our hearts. It was such a wonderful day, and I am feeling so inspired and excited for what’s ahead. More future events to happen.❤️

I can’t end this without saying obviously Tia Strong team came out and took the Win!!! Thank you to all the teams that participated. It was so much fun to watch!!!

Xoxo,
Tia🫶🏻

01/21/2026

Hi everyone!!!

This Saturday at the Green Island School we will be having a charity basketball event for Tia Strong. We will also have Punk Rock Save Lives there to have a swabbing section for bone marrow/stem cell donation to be placed on the registry! The event will be starting at 11am!!

My brother Anthony will also be mic’d up while on the court. I’m sure you won’t want to miss that! Tommy and him are already talking the talk on who will be the winners.🤣

My mission for Tia Strong is to help other families navigating difficult times. I never want anyone to go through hardships alone. Having the support I got was truly amazing & I hope to be that for a future family having to go through the unthinkable.

I hope to see you all there!!! Thank you so much for your continued support. ❤️

12/16/2025

Hi everyone!

I’ve had quite a few of you message me and ask how things are so I figured I would do a little update since we just got back from Boston.

I finally got cleared to DRIVE AGAIN. I feel like I have a little bit of my normal life back. It’s been the biggest struggle to rely on everyone to drive me. Although, it was very appreciative I am so thankful to be able to do it myself again.

I have been on pain medication since March and I am so proud to say I am officially a week off of all pain medication. My doctor was very very happy about that and so am I. My labs are looking pretty good overall. We are slowly getting there! I’d say it was a A+ appointment.🙌🏼

As always thank you for the prayers & good vibes!

Xoxo,
Tia

12/11/2025

✨ Introducing T.S. Comfies ✨

I’m so excited to announce the launch of my new pajama brand, T.S. Comfies, a line created straight from the heart.

T.S. Comfies was inspired by a personal chapter in my life. During my time in the hospital, changing into a fresh pair of pajamas each day brought me comfort, calm, and a sense of hope. That small moment of peace meant everything to me and it sparked the vision for this brand.

Now, I’m sharing that comfort with you. T.S. Comfies is all about softness, care, and cozy moments that make you feel safe and supported. Whether you’re healing, resting, or simply unwinding, I hope our pieces bring you the same comfort they once brought me.

Thank you for being a part of this journey. Here’s to comfort that feels like home. ❤️✨

Go follow me over on instagram and give our page some love!

12/08/2025

These photos are so much more than a tree farm shoot. They represent a year filled with life changing news, tears, fear, pain, heartache, anxiety but also love, growth, and little wins that meant everything.

Through it all, I’ve never felt so loved. Tommy stepped into the role of caretaker without hesitation. He is not just helping me heal, but helping me nurse my body, mind and soul back to a place of safety.

This year has changed my perspective on everything. Your people matter. Your connection matters. The love you build matters. All the small things in life matter.

If there’s one thing I hope you take from my journey, it’s to slow down. Notice the good. Let go of the heavy stuff. Pour into the people who feel like home. Make the memories you’ll never regret. Sometimes slowing down is the most healing thing you can do. 🫶🏻

Photos: madelyn’s photographs
Make up: Dérive Esthetics & Makeup

Tia Strong

04/23/2026

04/07/2026

03/10/2026

03/06/2026

02/26/2026

02/04/2026

01/29/2026

01/25/2026

01/21/2026

12/16/2025

12/11/2025

12/08/2025

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