Living with Cystic Fibrosis

08/15/2025

Did you know?

08/12/2025

08/12/2025

Which airway clearance technique works best for you? https://bit.ly/4kQPFTi

The most effective approach is the one that fits your body, your routine, and your daily life.

Your care team can help tailor a plan that combines different methods—because what works can change depending on your age, CF severity, lifestyle, and how you're feeling day to day.

Many people switch it up based on their needs. What’s in your rotation right now? 💬 Share your go-to techniques in the comments & learn more at the link in bio!

08/12/2025

Regular colonoscopy screenings are vital for adults with CF, who are at a higher risk of colon cancer, says columnist Jennifer Bleecher. https://buff.ly/RGxl8Ah

08/12/2025

See what treatment options are available for cystic fibrosis: https://bit.ly/4lWSRyq

08/12/2025

An Evening of Connection, Impact & Remembrance

Join the Boomer Esiason Foundation’s Young Professionals for a special night at City Vineyard on Thursday, September 11, from 6:00–10:00 PM.

✨ Your ticket includes:
✔️ Open Bar
✔️ Delicious Food
✔️ DJ
✔️ Waterfront Views

Together, we’ll raise a glass to community, purpose, and progress in the fight against cystic fibrosis 💙

📍 City Vineyard, NYC
🕕 6:00–10:00 PM
📅 Thursday, September 11
🎟️ Link in bio!

08/08/2025

Feeling the summer heat? ☀️ For those managing Cystic Fibrosis, warm weather can bring extra challenges. https://bit.ly/4mW1U3m

We want to make sure you're feeling your best, so we've pulled together some vital tips on staying cool and safe from morning to night.

08/07/2025

We are pleased to announce the latest recipients of the Cystic Fibrosis Research Collaborative Program.

Two experienced WA researchers, Associate Professor Anthony Kicic and Dr Yuliya Karpievitch, have each been awarded a fellowship to advance cystic fibrosis research. Associate Professor Anthony Kicic will explore the use of ‘phage’ therapy to target cystic fibrosis lung infections, and Dr Yuliya Karpievitch will use artificial intelligence to help match phages to the right bacteria to treat infection.

This research program is a partnership between the Western Australian Future Health Research and Innovation (FHRI) Fund and Cystic Fibrosis WA, in collaboration with Conquer Cystic Fibrosis.

Visit our website to learn more about this exciting work.
www.cfwa.org.au/what-we-offer/research-advocacy/wa-cystic-fibrosis-research-collaboration-program

08/01/2025

07/30/2025

“My son requires several long hospital visit a year. To make sure he gets the best care, one of us is always at beside. We miss a lot of work, and vacation days do go quickly. This program has helped us from losing our home many times. I know this program is very important in the CF community. Parents should never have to pick between losing their home, or their child’s healthcare.
This program helps parents not have to make that decision.”
-Erika, mother to CF’er Vincent, Extended Hospital Stay Grant recipient