Massachusetts Down Syndrome Congress (MDSC)

04/28/2026

Register now for the 2026 Webinar Series, part of the MDSC Center on Down Syndrome and Aging.

We will kickstart the series on Thursday, May 7 from 12:00-1:30 ET with Dr. Julie Moran who will present “Is It Alzheimer’s? Getting An Accurate Diagnosis”.

To learn more and sign up for each webinar, visit mdsc.org/center-on-down-syndrome-and-aging/

04/23/2026

Sign up today!

The Quarterly Virtual Support Group for Families of Children with Down Syndrome and Special Healthcare/Behavioral Needs is this Saturday, April 25 at 9am ET on Zoom.

Co-hosted with Down Syndrome Program at Boston Children's Hospital, the group gathers parents and caregivers to connect, feel supported, and share resources.

To register, email Katie at firstcall@mdsc.org.

04/22/2026

TEAM MDSC runner Carlie Siegel didn't just finish the 2026 Boston Marathon — she finished it as the final official finisher of the entire race! 💙💛

Carlie's journey from Hopkinton to Copley Square on Monday was not easy, but she persevered.“You're walking, but you're moving forward and you're still moving,” she said. “You're going to finish. You're going to cross that finish line."

She's now just under $300 shy of her fundraising goal. Help her finish that too! 👇 givengain.com/project/carlie-raising-funds-for-massachusetts-down-syndrome-congress-111824


https://www.runnersworld.com/news/a71088131/final-finisher-boston-marathon-2026/

Carlie Siegel crossed the line in the nick of time on Marathon Monday to get under the 5:36 p.m. cutoff time.

04/21/2026

Spots are still open! Join fellow MDSC dads for our next virtual support group TOMORROW evening to connect and share! 💛

04/19/2026

Join us tomorrow on Heartbreak Hill between mile 17-18! Go team MDSC! 💙💛

Donate here: https://www.givengain.com/campaign/mdsc2026

04/18/2026

So grateful for the chance to come together ahead of race day with some of our incredible MDSC marathon runners! 💙💛 It was amazing to feel the energy in the room - everyone is so motivated and ready - and to meet so many of the family members and supporters cheering them on every step of the way.

We can’t wait to celebrate and support this inspiring group on Marathon Monday… stay tuned for details tomorrow on where to find us on Heartbreak Hill at our MDSC tent! 🏃‍♂️👏

04/17/2026

TEAM MDSC BOSTON MARATHON SPOTLIGHT | Meet Lindsay Mann Mittura 💙💛

Lindsay is running the 2026 Boston Marathon for the MDSC in honor of her daughter Mia and Mia's twin brother, Jude. Mia was born with the SUPERPOWER of Down syndrome — and Lindsay's family sees that diagnosis as a beautiful gift that has changed them in all the best ways.

Mia has faced her share of medical challenges along the way, and through all of it she has shown remarkable strength and determination. As Lindsay puts it: "I am running for Mia and her friends of all abilities to share just how extraordinary individuals with Down syndrome are!"

Want to cheer Lindsay and the rest of Team MDSC across the finish line? Join us on Marathon Monday! We'll be set up between Miles 17 and 18 on Commonwealth Ave, across from Brae Burn Country Club in West Newton, starting at 10AM. Just a 15-minute walk from Woodland Station on the Green Line — we'll have snacks, cowbells, and plenty of team spirit. Email race@mdsc.org for more details.

👉 Support Lindsay's run: givengain.com/project/lindsay-raising-funds-for-massachusetts-down-syndrome-congress-114544

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04/16/2026

TEAM MDSC BOSTON MARATHON SPOTLIGHT | Meet Debbie Sutter 💙💛

Debbie Wong Sutter is running the 2026 Boston Marathon for the MDSC — and this isn't her first time. Debbie also ran for Team MDSC in 2024, and she's back for more.

Debbie is running in honor of her brother, "Captain" Edward. Thanks to inclusive programs and advocacy organizations like MDSC, Edward never faced the challenges of growing up with Down syndrome alone — and the results speak for themselves. As Debbie describes it: "These support systems opened doors: helping him graduate high school, build real independence, and land a full-time job at Walmart that he's incredibly proud of and has enjoyed every single day."

Edward's story is exactly what MDSC's programs make possible — and Debbie is running to ensure that more individuals with Down syndrome have the same opportunities, independence, and bright futures.

👉 Support Debbie's run: givengain.com/project/debbie-raising-funds-for-massachusetts-down-syndrome-congress-112740

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04/15/2026

TEAM MDSC BOSTON MARATHON SPOTLIGHT | Meet Joshua Komyerov 💙💛

Josh is running the 2026 Boston Marathon for the MDSC — and after 15 years on staff as Deputy Director of Communications & Operations, this one is personal.

For Josh, running 26.2 miles on April 20th is a way to put his whole self behind the mission he has spent 15 years advancing. He's running for too many friends and families to name as well as the other 8,000 individuals with Down syndrome across Massachusetts.

As Josh puts it: "For me, running the Boston Marathon as a member of Team MDSC feels like the culmination of my life's work — advocating for the acceptance and inclusion of individuals with disabilities at an organization that has become my second family."

Josh also had the privilege of knowing founder Susan Hurley since his earliest days at MDSC — a small but mighty force with a big personality who could energize any room. He'll be carrying her spirit on every mile of April 20th.

👉 Support Josh's run: givengain.com/project/joshua-raising-funds-for-massachusetts-down-syndrome-congress-111294

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04/14/2026

TEAM MDSC BOSTON MARATHON SPOTLIGHT | Meet Alden Huang 💙💛

Alden is running the 2026 Boston Marathon for the MDSC — and for this Babson College senior from Wellesley, the connection to our mission runs deep.

Alden's mother Clare served on the MDSC Board of Directors, and he has volunteered at MDSC events including the Buddy Walk. He also has a cousin, Cameron, with Down syndrome, who lives in Canada. As Alden puts it: "I really wanted the opportunity to run for an organization that brings attention and opportunity to great people like Cameron."

A standout high school runner who captained his cross-country team and competed at New England Nationals, Alden stepped away from the sport after graduation before rediscovering what running gave him. As he describes it: "It gave me a break from my work, a chance to [relieve] any pressure in a productive manner, and kept my mental and physical health intact." Now he's channeling that back into 26.2 miles for a cause close to his heart.

👉 Support Alden's run: givengain.com/project/alden-raising-funds-for-massachusetts-down-syndrome-congress-114601

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