CHD Coalition - Congenital Heart Defect Coalition

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CHD Coalition - Congenital Heart Defect Coalition

Uniting the CHD Community We hope to create a network in which any CHD parent can come to find local support in any location.

Our organization would like to unite the CHD community by creating alliances with fellow CHD organizations, individuals and CHD hospitals across the United States of America.

01/02/2026

2026 Annual Heart Party -- Registration is OPEN! 💖
👉 https://bit.ly/2026HeartParty

Join us for the CHD Coalition’s Annual Heart Party at Elite Gymnastics. A day of family fun as we celebrate Congenital Heart Defect Awareness Month!

This special event is free for CHD Warriors and their immediate family members, and is designed to create smiles, laughter, and meaningful memories together.

✨ Please note: the activity portion of the Heart Party is best suited for Heart Warriors under the age of 13.

01/01/2026

As we welcome the new year, the CHD Coalition sends our warmest wishes to our entire community and beyond. 💖

May the year ahead be filled with hope, healing, strength, and new possibilities. We look forward to continuing this shared journey together – supporting one another, advancing research, and working toward brighter futures for everyone impacted by congenital heart disease.

✨ Wishing you a Happy New Year filled with promise, progress, and peace. ✨

12/25/2025

From all of us at the CHD Coalition to your family, we wish you a magical holiday filled with love, togetherness, and cherished moments.

May the warmth of the season surround your hearts today and always. Merry Christmas! 🎄❤️

12/22/2025

On the eighth and final night of Hanukkah, the CHD Coalition would like to wish everyone a Happy Hanukkah. May the light we’ve kindled continue to shine beyond the holiday. 🕎

12/21/2025

Following an in-depth evaluation of some of the nation’s most promising research, the CHD Coalition is proud to champion the following three proposals.

Together, they represent a powerful opportunity to transform long-term care for individuals born with congenital heart defects. ✨❤

👉 University Wisconsin-Madison: “10-Minute Cardiac MRI”

This project could revolutionize heart imaging for children with CHD, eliminating the need for long, stressful MRI exams and anesthesia. A single 10-minute scan would make cardiac MRI safer, faster, and more accessible, while improving diagnostic accuracy and reducing costs for families and hospitals alike.

👉 Cincinnati Children’s Hospital Medical Center: “Aortic Valve Neocuspidization”

Traditional valve replacements fail to grow with the child. This groundbreaking study proposes a surgical technique that reconstructs the aortic valve using a child’s own artery tissue, which would create living and growing aortic valve, reducing the need for future surgeries and improving long-term outcomes.

👉 Boston Children’s Hospital: “RESIST-ACHD”

This study examines whether aspirin resistance causes early degeneration of bioprosthetic heart valves in adults with congenital heart disease (ACHD).

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More details on the past studies funded by the CHD Coalition can be found here: https://chdcoalition.org/what-we-do/chd-research

12/16/2025

The CHD Coalition was honored to visit NewYork-Presbyterian Morgan Stanley Children’s Hospital to offer outreach and peer support.

❤ We are truly grateful to have met Karen, a new Heart Mom, and to share a heartfelt conversation. Moments like these remind us why connecting with families in person is so meaningful. ❤

12/13/2025

❤ Share Your CHD Story ❤
Your CHD journey can inspire hope and strength throughout the entire CHD community. Whether you’re a parent, caregiver, or CHD Warrior, your experience matters – and we’d be honored to help share your voice.

➡ Read the story from our latest contributor, David: https://chdcoalition.org/david

Interested in sharing? Reach out to us at info@chdcoalition.org.

12/10/2025

The CHD Coalition is thrilled to announce that we will be funding three CHD research grants totaling $150,000! 👏👏 This incredible milestone is only possible thanks to the overwhelming success of our CHD Walk for Hope and the amazing support of our community. ❤

Our Research Committee carefully evaluated 15 studies from 10 leading institutions across the United States, and the three selected projects show extraordinary promise. Each one has the potential to significantly advance treatments, improve procedures, and enhance long-term outcomes for people living with congenital heart defects. We can’t wait to share more details soon!

A heartfelt thank you to Doctors Austin Wong, George Kipel, Zvi Marans, and Fuad Kiblawi (pictured left to right) for their expertise, dedication, and guidance on the Research Committee. Your leadership makes breakthroughs like this possible.

12/07/2025

❤️ A Huge THANK YOU to Gabriella & Regina! ❤️

We are feeling incredibly grateful this week thanks to two outstanding students from Mountain Lake High School - Gabriella and Regina! These remarkable young women dedicated their time and energy to assembling our Heart Totes, and we couldn’t be more thankful. 😊

CHD Coalition Heart Totes are delivered to families whose CHD Warriors are admitted for procedures – offering comfort, support, and a hope during some of the most stressful moments they’ll ever face. Your kindness helps make that compassion possible.

✨ Gabriella and Regina, your generosity shines brightly and our entire CHD community feels it! ✨

Let’s show them some love in the comments! 💬👇

10/22/2025

✨ Support CHD Awareness ✨ Looking for a meaningful way to make a difference?

Check out our CHD Coalition merchandise! 👕

Every item proudly spreads awareness about congenital heart defects, while helping us continue our programs supporting families affected by CHD. This is a simple way to show love and inspire hope. ❤️

👉👉 Shop now: https://chdcoalition.org/merchandise

10/15/2025

💖 A truly heartwarming moment at NYU Hassenfeld Children’s Hospital this week!

Meet Andrea, who shared some wonderful news. Her grandson, after waiting so long, finally received his heart transplant last month… and today, they’re heading home! 🏡🌟

Sending them all our love and best wishes as they begin this exciting new chapter. 💓

10/10/2025

When a family’s CHD Warrior is in the hospital, the days can feel long and overwhelming. 😞 That’s why in-person support and outreach mean so much. They remind families that they are NOT ALONE on this journey. ❤

We’re here to bring comfort, hope, and connection during one of the toughest times. 💜💙

Our Hospital Outreach Coordinator, Cathy, recently visited NYP–Morgan Stanley Children’s Hospital in New York City. This is 1 of the 8 pediatric hospitals that we service in NY/NJ.

Together, we bring a little bit of love, encouragement, and community right to their hospital rooms. ❤😊

Address

45 Carey Avenue, # 1, Ste 250
Butler, NJ
07405

Website

http://www.chdcoalition.org/

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