Jolene Brings JOY: Her Journey with Sanfilippo

Jolene Brings JOY: Her Journey with Sanfilippo Follow for updates on our precious Jolene and her journey with a rare neurodegenerative disorder.

Happy Easter from JoJo and family!
04/05/2026

Happy Easter from JoJo and family!

03/31/2026

Spring break โ˜€๏ธ๐Ÿ’œ

While the boys were at Robot Drone League Nationals, us girls enjoyed lots of sensory room time, bike rides, Target and ...
03/29/2026

While the boys were at Robot Drone League Nationals, us girls enjoyed lots of sensory room time, bike rides, Target and a cake pop, Goodwill, and a super fun guided safari tour in Madison with ShaSha!

Field Day for JoJo 2026 โ˜€๏ธ
03/26/2026

Field Day for JoJo 2026 โ˜€๏ธ

Jojo is this month's Soaring Eagle for her class! So proud of her! ๐Ÿฆ…๐Ÿ’™๐Ÿ’š
03/25/2026

Jojo is this month's Soaring Eagle for her class! So proud of her! ๐Ÿฆ…๐Ÿ’™๐Ÿ’š

03/21/2026

Saturday....๐Ÿ’œ

03/14/2026

Jojo got to participate in the Special Olympics Friday! She loved the music and running around on the field.

The kiddos and I are hoping to make memories this summer at Camp Haven! See the post below for how you can help make tha...
03/13/2026

The kiddos and I are hoping to make memories this summer at Camp Haven! See the post below for how you can help make that possible for our family and others.

We hope JoJoโ€™s story touched your heart and inspired you. ๐Ÿ’™ Her journey is a powerful reminder of the strength, love, and perseverance families show every day.

If youโ€™d like to send JoJo and her sweet family some loveโ€”or help make it possible for them to attend Camp Havenโ€”you can donate here:
https://www.zeffy.com/en-US/donation-form/donate-to-send-families-to-camp-haven

Every prayer, share, and donation helps create meaningful experiences for families like JoJoโ€™s. ๐Ÿ•๏ธโœจ

03/08/2026

Today is the day! ๐Ÿ’œ

Episode 2 is LIVE! ๐ŸŽ™๏ธGrab a box of tissues and get ready to laugh, cry, and be inspired. Thank you, Jessica, for sharing...
03/08/2026

Episode 2 is LIVE! ๐ŸŽ™๏ธ

Grab a box of tissues and get ready to laugh, cry, and be inspired. Thank you, Jessica, for sharing your incredible story with us โ€” itโ€™s one you wonโ€™t forget. ๐Ÿ’›

https://open.spotify.com/episode/1R3rCDvM4gGDGMQrSWe3GN

Grace In Motion ยท Episode

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