Juliet’s Journey

Juliet’s Journey Juliet is our miracle daughter. Follow her health journey here!

Today we have two appointments for Juliet to go over and test for some concerns we have with episodes she’s having at ni...
05/06/2025

Today we have two appointments for Juliet to go over and test for some concerns we have with episodes she’s having at night.

Prayers please!

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I always seem to forget how much anesthesia effects our little girl.Yesterday after leaving the hospital, Juliet was inc...
04/22/2025

I always seem to forget how much anesthesia effects our little girl.

Yesterday after leaving the hospital, Juliet was incredibly tired, and irritable which meant we went back to the Ronald McDonald House a lot earlier then we planned and just DoorDashed supper.

Even after we ate, Juliet was super fussy so I took her back up to the room and she fell asleep really fast which is super unlike her usual self who we have to beg to go to sleep.😅

Her airway evaluation yesterday was positive! They said that the graft looked good! There was no change from the previous evaluation which is exactly what we want! 🩵🫁

The issues with her sleep, must have a different origin that we will have to continue to figure out.

Thank you for all of the thoughts and prayers!

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Juliet had some post op complications but she’s awake now and recovering ❤️
04/21/2025

Juliet had some post op complications but she’s awake now and recovering ❤️

Our sweet girl is in the OR.Prayers please! ❤️
04/21/2025

Our sweet girl is in the OR.

Prayers please! ❤️

Happy Easter!! 🐰 💐Our family is all settled in Portland and ready for Juliet’s procedure in the morning.Juliet is having...
04/21/2025

Happy Easter!! 🐰 💐

Our family is all settled in Portland and ready for Juliet’s procedure in the morning.

Juliet is having another airway evaluation to check on her graft following some concerns we have with her sleep, and as a follow up to her airway reconstruction.

Once we have more answers and clarification on what may or may not be going on , I will be able to elaborate! For now, we are just trying to figure it out with her team. 🩵

Anytime Juliet goes under anesthesia, it is scary and traumatic for us, and I’m sure for her too! We completely love her team and trust them so much which definitely helps!

Please pray for us and her as we tackle another surgery. I’ve lost count what number this is for her.

Thank you in advance!

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Juliet has been sick since Sunday evening.Monday, I tested positive for Covid so I was convinced that she too had Covid ...
04/03/2025

Juliet has been sick since Sunday evening.

Monday, I tested positive for Covid so I was convinced that she too had Covid so I didn’t bother testing her.

The last few days Juliet has progressively gotten worse.

I tried desperately today to avoid the local ER as to not expose her to anything else but while I was trying to figure out the next steps she started to belly breathe which was really my last straw. So off to the ER we went.

We were in and out in a few hours and had really good care.

While waiting for the test results Juliet was walking around the room and playing which was reassuring.

Juliet tested positive for RSV, and was given a steroid before we were discharged.

Hopefully we are able to continue to navigate this illness at home! We are so thankful for her amazing medical team both here and in Portland.

🙏🏻 Prayer Requests: Speedy recovery for Juliet
Wisdom to her medical team
Peace to Mom, Dad & Brother as this RSV diagnosis is a little triggering as this is the illness that sparked so many scary events with Juliet when she was a newborn.

Thank you all for your continued support!

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2 years ago today we were told Juliet was most likely septic and to expect to say goodbye. This was on the morning she w...
03/15/2025

2 years ago today we were told Juliet was most likely septic and to expect to say goodbye.

This was on the morning she was originally supposed to get her open heart surgery. The surgery we had been waiting for a Boston bed for.

Her little body had already been though too much and her heart was functioning so poorly they didn’t think she had it in her to fight any longer.

Grief counselors came in and asked us what was important to us to do before the end and Jake wanted her baptized which I was totally on board with. The team at Boston Children’s Hospital made it happen that very day not knowing when her little heart would give out.

By the grace of God, they were wrong. She wasn’t truly septic, but she was extremely sick and had a viral infection.

It would be six more days before the team decided she was strong enough to endure open heart surgery.

Our miracle. ❤️

I was so worried that when Emmett and Juliet spent 4 1/2 months apart that they’d not have a bond or that building that ...
03/03/2025

I was so worried that when Emmett and Juliet spent 4 1/2 months apart that they’d not have a bond or that building that bond would take more time.

Boy was I wrong.

These two are inseparable.

😍❤️🥹

Here, Juliet is watching her brother’s basketball practice! 🏀⛹️

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Calais, ME

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