Ontario County Lyme Support Group

05/03/2026

Protect your children & all family members. Prevention and proper tick removal is crucial. 💚💚💚
coloradoticks.org/remove-a-tick-properly
coloradoticks.org/tick-bourne-disease-prevention

05/03/2026

Your best defense against tick-borne illness is to avoid contact with ticks in the first place. Your next best defense is to quickly find and remove any ticks that may latch on to you.
Learn what to do if bitten by a tick: https://www.lymedisease.org/tick-bite/

05/03/2026

05/03/2026

Lyme disease affects people of all ages. The CDC notes that it is most common in children, older adults, and others such as firefighters and park rangers who work outside and have higher exposure to ticks.
Learn How To Protect Yourself From Ticks: https://www.lymedisease.org/lyme-basics/ticks/personal-protection/

05/02/2026

05/01/2026

05/01/2026

Lyme Disease Awareness Month is a time to get people’s attention. It's a moment each year when we metaphorically shake folks by the shoulders and say,

05/01/2026

We thank Congressman John James for sharing his first-hand experience with tick-borne diseases and the fallacies of standard testing. Both Rep. James' wife and son contracted Lyme disease and other co-infections such as Bartonella and Babesia. Rep. James states that he wants everyone to have access to higher quality testing such as IGeneX.

Full transcript:
"Secretary, ticks are becoming a bigger issue in Michigan and around the country. My wife and son have Lyme disease and other co-infections, but they don’t show through standard antibody testing. If you have the ability to pay for a high cost test like IGeneX, it shows the (Lyme) strains and confirms Bartonella in her red blood cells and my son has Babesia in his red blood cells. We know that undiagnosed Lyme causes fatigue, autoimmune conditions, and neuro-psychiatric issues in elderly and even schizophrenia in younger patients. We also know that with proper diagnosis, many of these symptoms can be treated and the disease disease reversed. My concern is as many Michiganders are suffering from unexplained symptoms may think they’ve been tested for Lyme when in reality they have not because the standard test is not thorough enough. What can we do together to make sure that people are are getting thorough and accurate test testing for Lyme disease to stop this type of spread, sir?"

How many celebrities, elected officials, other public figures, or just regular individuals must be impacted before meaningful changes can occur?

Link to video in comments ⬇️⬇️⬇️

04/30/2026

Jamie's Story - Chronic Lyme Burned My Life to the Ground

No amount of plucky optimism or high pain tolerance could hide the fact that I was sick. Joint pain, severe night sweats, headaches, muscle and body pain, sensitivity to light and sound, anxiety, depression, burning in my bladder, stomach upset, loss of appetite, brain fog so severe I couldn't read or park my car, and more had been plaguing me for over four years by the time I got my Lyme disease diagnosis.

I think the worst symptom for me was the cognitive decline. A voracious lifelong reader, I am just now able to enjoy reading again after almost a year of treatment with a Lyme literate MD. My symptoms are about 80% better now, but flares still occur and require rest and treatment. I was an athlete before I got sick. Now, I'm a slower, softer version of myself, but I look forward to skiing, biking and paddling again someday when I'm more recovered.

"Chronic disease was a forest fire that burned my life to the ground. Once I stopped fighting the fire and let it burn away the things I had once thought valuable, I began to learn from it and accept where I was. The empty spaces gave me room for new growth and my life moved in a different direction." Gregg Kirk, The Gratitude Curve

Follow Jamie on Instagram:

04/30/2026

Countless patients with Lyme and associated illnesses go undiagnosed or misdiagnosed.

In honor of undiagnosed day, we’re taking time to recognize every patient with this experience.

This statistic from the 2025 MyLymeData study shows just how many patients can take months and even years to be diagnosed, left without answers.

That’s why, at ILADS, we’re committed to advancing the standard of care with education, awareness, and advocacy.

To all patients: we see you.

Visit our website today to learn more about Lyme diagnosis.

04/30/2026

Finding a tick on your body can be alarming, as scientists say they’re seeing a high level of ticks carrying Lyme disease and other tick-borne illnesses in Connecticut. But new technology being used by a hospital in Waterbury is allowing for a faster diagnosis to provide quicker treatment. Saint M...