Tyler's Tribe

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Tyler's Tribe My name is Tyler Decker, I am 26 years old and recently diagnosed with ALS. Follow me on my journey

24/05/2024

Last night our team at Braincare Performance Center ran a 10K 🏃🏽‍♀️🏃🏽‍♀️🏃🏽‍♀️in support of the fight against ALS.❤️

ALS is a progressive Neuro Degenerative Disease, and this local foundation is raising awareness and fighting to find treatments and a cure for ALS.

It was a great night for a team bonding run and an even greater cause to be a part of!❤️

11/12/2023

Meet Gina Kulik, a passionate REALTOR® and senior agent with Compass in Dana Point, who crafts an everlasting story with her clients. 📖💕

For Gina, client connections aren't just transactions; they're lifelong chapters in a never-ending story. 📖💫

A true SoCal girl with deep roots, Gina's journey from design to real estate is a testament to her adaptability and passion for coastal life. 🌴🏡Outside the office, Gina cherishes family moments, pickleball games, and weekly Pilates sessions. Her commitment extends to giving back, supporting Tyler's Tribe in their fight against ALS.

In Gina's world, hard work, loyalty, and integrity shine bright, creating a powerful connection with those she helps. 💪🌟

Congratulations Gina. Here's to building connections that last a lifetime! 🥂

📸 WASIO faces

15/10/2023

Thank you Gavin Newsom for signing AB1369 in support of terminally ill patients’ access to out-of-state care via telehealth. Congratulations and thank you Assemblymember Rebecca Bauer-Kahan for authoring this important legislation!

“AB 1369 spares terminally ill patients who are mobility impaired, such as my 29-year old son, Tyler, who is living with ALS, from the extreme discomfort of physical travel for out-of-state consultations that can be done via telehealth,” said Colleen Decker of Carlsbad, CA. “This is welcome legislation that will greatly help ease the burden on Tyler and our entire family.”

The ALS Association is a proud sponsor of this equity bill. To learn more about how you can advocate for those living with ALS, visit als.org/advocacy.

Tyler's Tribe

So proud of Colleen and everything she is doing for the ALS community!
01/07/2023

So proud of Colleen and everything she is doing for the ALS community!

Colleen Decker, an ALS family caregiver from the San Diego area, recently provided a support statement that was read at a hearing for AB1369 which would provide those living with ALS more equitable access to consult virtually with out-of-state providers who are licensed in another state.

Since Colleen wasn’t able to attend the hearing in person, her statement was read at the California Senate Business, Professions and Economic Development Committee hearing in support of AB 1369, authored by Asm. Bauer-Kahan (CA-16) while Kelly Goss, Managing Director of Advocacy, provided additional testimony in support of the bill.

Thank you, Colleen for being an advocate for ALS. You too can help! Visit https://als.quorum.us/homepage/

To learn more about Colleen and her son, Tyler, please visit: https://www.tylerstribe.org/

With Colleen’s support, The Committee voted 10-1 to advance the bill!

AB 1369 would allow a medical licensing exemption for out-of-state physicians who are licensed in another state to be able to provide virtual care to California patients who are terminally ill. This is vital for ALS families since many people living with ALS have mobility, economic and other challenges that make in-person travel incredibly burdensome, if not impossible. Telehealth care is an effective tool to supplement in-person treatment for those with ALS and many other patients with terminal conditions. The ALS Association is proud to sponsor this bill.

Assemblymember Rebecca Bauer-Kahan Tyler's Tribe

Tyler’s Tribe x Travis MathewHead on over to the link in our bio to get your custom Tyler’s Tribe mens golf Polo!!!!! If...
05/05/2023

Tyler’s Tribe x Travis Mathew
Head on over to the link in our bio to get your custom Tyler’s Tribe mens golf Polo!!!!! If you are coming to the golf tournament please select local pick up, if you can’t make it to the golf tournament please select shipping (will ship after June 15th). Cutoff for ordering for pickup at the golf tournament is May 20th!!

If you can’t make it to the golf portion of our event make sure you make it to the dinner! We have an amazing silent auc...
27/03/2023

If you can’t make it to the golf portion of our event make sure you make it to the dinner! We have an amazing silent auction and a great performance from
Head on over to the link in our bio to get tickets!

Hi everyone! We have received a couple questions about how a nonprofit works so please read the attached for a few facts...
15/02/2023

Hi everyone! We have received a couple questions about how a nonprofit works so please read the attached for a few facts!

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