Carolina Institute for Developmental Disabilities

09/05/2025

The NC Fragile X Foundation Board will be hosting their annual Family & Friends Picnic on October 11th, 2025. Time is 11am-4pm. Rain or Shine! Please RSVP at the link below by Oct 3:
https://www.zeffy.com/en-US/ticketing/fragile-x-2025-picnic
Meet us at the Lake Mackintosh Clubhouse to check in when you arrive!
Lake Mackintosh Park
2704 Huffman Mill Road
Burlington, NC 27215

Questions? Contact Tim Field at timfield2@gmail.com
or 919-548-9760

The NC Fragile X Foundation Board is pleased to host our annual Family & Friends Picnic. Join us for a day to reunite and gather with our NC Fragile X community!WHAT TO EXPECT:Catered BBQ Lunch (with Vegetarian and kid-friendly options)Scenic and Peaceful Location on the LakeFriendly Faces, both...

08/28/2025

FREE Webinar: NC ABLE – Eligibility, Benefits, and Features
Date & Time Sep 22, 2025 12:00 PM Eastern Time
The presentation focuses on the ABLE account eligibility, account features and benefits of owning an ABLE account. ABLE accounts provide tax- advantaged savings and investment accounts for people living with a disability without jeopardizing other means-tested public supports. Register at the link below:

The presentation focuses on the ABLE account eligibility, account features and benefits of owning an ABLE account. ABLE accounts provide tax- advantaged savings and investment accounts for people living with a disability without jeopardizing other means-tested public supports. Who is eligible for AB...

08/27/2025

https://conta.cc/46co5wo
When the School Bus Stops Coming: Preparing Youth with Disabilities & Their Caregivers for the Road Ahead
Exceptional Children's Assistance Center FREE In-Person Transition Event! Saturday, September 27, 2025 9 am to 4:00 pm Pine Lake Prep 104 Yellow Wood Circle, Mooresville, NC 28115
Register before Sept 1. Click on link below:
https://conta.cc/46co5wo

Email from Exceptional Children's Assistance Center FREE Transition Event! Saturday, September 27, 2025 9 am to 4:00 pm Pine Lake Prep 104 Yellow Wood Circle, Mooresville, NC 28115 A Free In-Person Tr

08/27/2025

https://appwell.appstate.edu/outreach/growingwell/conference/
Important NC Developmental Disabilities Conference October 12-14!
The North Carolina Council on Developmental Disabilities is excited to partner with the Appalachian Institute for Health and Wellness at Appalachian State on a conference focused on raising children and youth with developmental disabilities and other disabilities throughout their lifetime. Scholarships for individuals with intellectual and other developmental disabilities and family members are available for registration (and a limited number for travel).

2025 Growing Well Conference: “Moving Mountains and Community”
Presented by AIHW Community Outreach and Education

October 12-14, 2025 | Leon Levine Hall of Health Sciences
Boone, NC
The Conference is for: Family Members, People with Developmental Disabilities, Professionals, and Advocates!
SCHOLARSHIPS AVAILABLE! Family members and individuals with I/DD can apply for scholarships. There are a limited number of scholarships for registration and for travel to the conference for those more than three hours away from Boone.
Topics will include:
• Medical management of children with complex health conditions
• Evidence-based behavioral therapies
• Cross-system collaboration in child welfare and mental health
• Supporting youth through transitions from school to adulthood including employment and other opportunities
Go here to Learn More and Register!

The Appalachian Institute for Health and Wellness connects App State to the community by supporting research, interprofessional clinics and community outreach.

08/25/2025

WEBINAR: Medicaid is Changing —What Does it Mean for You?
Date: September 4, 2025 Time: 7:00-8:00pm
What to Expect:-Clear explanations of Medicaid changes-How these affect families-Q&A with panel of experts
Register at link below: https://us02web.zoom.us/webinar/register/WN_2r4D7A1XSluVy3tLOlUu4Q #/registration
Who Should Attend: Families• Self-advocates • Caregivers & Providers, Foster, Adoptive, and kinship caregivers, including families supporting loved ones with disabilities across the lifespan

Welcome! You are invited to join a webinar: Medicaid is Changing —What Does it Mean for You?. After registering, you will receive a confirmation email about joining the webinar.

08/14/2025

Every five years, the North Carolina Council on Developmental Disabilities (NCCDD) creates a Five-Year State Plan. This plan helps guide its work and decide which projects to fund to improve services and supports for people with intellectual and developmental disabilities (I/DD) in North Carolina.

To make the state plan, NCCDD looks closely at what people with I/DD in North Carolina need by asking for input to better understand what matters to them, their families and their local communities. We gather input in two ways: through an online survey and through in-person and virtual listening sessions. Then, the Council puts together a plan that includes clear goals, steps to reach those goals, and actions to create positive change to promote self-determination, integration, productivity, inclusion and independence.

You can be part of helping NCCDD define its goals for the next five years by visiting NCCDD – Five-Year State Plan and providing input!

The North Carolina Council on Developmental Disabilities works with others across the State to make sure people with intellectual and developmental disabilities (I/DD) and their families have access to community services, individualized supports, and other forms of assistance.

07/30/2025

RESERVE YOUR VIRTUAL FRONT ROW SEAT FOR TONIGHT 7PM Eastern Time -- Join ECAC's Unmet: North Carolina’s Disability Crisis - Watch Party!
Unmet is a 25-minute film commissioned by the North Carolina Council on Developmental Disabilities (NCCDD). It tells real stories of North Carolinians with intellectual or developmental disabilities (I/DD) and what happens when their needs are unmet. The film premiered in 2023 and was shown in different theaters across the state. Join ECAC's Watch Party to support NCCDD in raising awareness and helping create positive change for people with I/DD in North Carolina. REGISTER at the link below.

Unmet is a 25-minute film commissioned by the North Carolina Council on Developmental Disabilities (NCCDD). It tells real stories of North Carolinians with intellectual or developmental disabilities (I/DD) and what happens when their needs are unmet. The film premiered in 2023 and was shown in diffe...

07/15/2025

The North Carolina Post Secondary Education Alliance (PSEA) at the CIDD works to expand postsecondary education options for people with intellectual and developmental disabilities in North Carolina by providing support for new program development and the ongoing success of current programs. As opportunities for these students across NC’s community colleges continues to grow, NCCCS Access to Achievement gives us a sneak peek of students as they reach new milestones! Click on link to view video:

07/10/2025

We are excited that Dr. Stephen Hooper, former associate dean and chair of the Department of Health Sciences and former associate director of the CIDD, has been named the interim director of the new UNC Carolina Institute for Neurodevelopmental Disabilities.

Stephen Hooper, PhD, will serve as the interim director of the new UNC Carolina Institute for Neurodevelopmental Disabilities. Dr. Hooper is a longstanding faculty SOM member in the departments of psychiatry and health sciences. The new institute joins together the Carolina Institute for Development...

07/02/2025

NC woman with Down syndrome couldn't get a job. Now she runs her own business.

Gabi took matters into her own hands and co-founded Gabi’s Grounds with Mary in 2017.

06/27/2025

Thursday, July 24, 2025 7:00 - 8:30 pm
(Spanish Interpretation Provided)
Creating Inclusive Housing Opportunities for Adults with IDD / Creando oportunidades de vivienda inclusiva para adultos con discapacidades intelectuales y del desarrollo

As children with intellectual and developmental disabilities (IDD) grow into adulthood, many families find themselves asking: What comes next? One of the most urgent and complex parts of that answer is housing and independent living. Planning for the future means ensuring that our loved ones have sa...

06/27/2025

Creating Inclusive Housing Opportunities for Adults with Intellectual and Developmental Disabilities WEBINAR July 23, 2025 12:00 PM
As children with intellectual and developmental disabilities (IDD) grow into adulthood, many families find themselves asking: What comes next? One of the most urgent and complex parts of that answer is housing and independent living. Planning for the future means ensuring that our loved ones have safe, inclusive, and supportive places to live as they enter adulthood.

In this webinar, Laura Wells, Executive Director of HOPE NC, will explore how inclusive housing models are being developed and implemented across North Carolina to meet this need. Participants will learn what inclusive housing is, why it matters, and how it helps individuals with IDD thrive in communities where they are valued and supported.

Laura will also share how HOPE NC is working to change policy and increase funding for inclusive housing and how families, especially parents, can be powerful partners in this advocacy.

As children with intellectual and developmental disabilities (IDD) grow into adulthood, many families find themselves asking: What comes next? One of the most urgent and complex parts of that answer is housing and independent living. Planning for the future means ensuring that our loved ones have sa...