Lymphedema Advocacy Group / Lymphedema Treatment Act

01/16/2026

Another ADVOCACY OPPORTUNITY: Each state’s Medicaid program is now required to have a Beneficiary Advisory Council (BAC). This is a unique opportunity to improve coverage and access to care for lymphedema treatment supplies and services, as well as improve your state’s Medicaid program as a whole.

If you meet the eligibility requirements outlined below and are interested in serving on your state’s BAC, please contact us (https://lymphedemaadvocacygroup.org/contact-us/) and we will connect you with your state’s application process.

More information can be found HERE (https://www.medicaid.gov/medicaid/access-care/medicaid-advisory-committees-and-beneficiary-advisory-councils), and a summary follows:
• All states must form a BAC comprised of current/former Medicaid beneficiaries, family members, and caregivers.
• A subset of BAC members must serve on the state’s Medical Advisory Committee (MAC).
• BACs must meet separately, and in advance of MAC meetings, to facilitate beneficiary input.
• Meetings must be planned at times and locations that maximize participation and accessibility for BAC members.
• BAC governance and processes must be posted on the state’s website.
• BAC membership must be term-limited to ensure a variety of perspectives and opportunities for participation.
• State staff will be designated to support and facilitate participation of BAC members.

01/13/2026

ADVOCACY ACTION ALERT: The Center for Medicare and Medicaid Services (CMS) is currently accepting public comments until 1/26 on how the Medicare Advantage program could be improved. You do not have to be a Medicare Advantage policyholder to participate, although comments based on personal experience are especially powerful.

Click here for the submission form and then click on the blue “Comment” button in the upper left corner of the page (https://www.regulations.gov/document/CMS-2025-1393-0002).

The deadline to submit comments is January 26th. Some suggested topics to include are listed below, but please put any comments into your own words, and feel free to include comments on non-lymphedema-related topics:
• Lack of in-network suppliers for lymphedema compression treatment items.
• Policyholders are frequently unable to obtain accurate information about lymphedema-related coverage.
• Coverage for lymphedema compression treatment items is inconsistent and often does not align with Original fee-for-service Medicare coverage.

01/08/2026

12/23/2025

Three years ago today we made history with passage of the Lymphedema Treatment Act, bringing coverage for compression garments to millions of patients, but there’s more work to do! We need your support to ensure continued progress in improving access to care. Please consider making a tax-deductible donation to our 2025 Year-End Campaign (https://www.paypal.com/donate?campaign_id=K5GDXR5UXRQH8) or by mailing a check to: Lymphedema Education & Awareness Project, PO Box 82, Carrboro, NC 27510

12/19/2025

Please join us in thanking National Lymphedema Network for their sponsorship support! Together, we are changing the landscape of lymphedema care in the United States, and we will continue to do everything possible to ensure that lymphedema patients have access to the treatments they need.

12/18/2025

Please join us in thanking the USMCA (U.S. Medical Compression Alliance) for their sponsorship support! Together, we are changing the landscape of lymphedema care in the United States, and we will continue to do everything possible to ensure that lymphedema patients have access to the treatments they need.

12/17/2025

Please join us in thanking Tactile Medical for their sponsorship support! Together, we are changing the landscape of lymphedema care in the United States, and we will continue to do everything possible to ensure that lymphedema patients have access to the treatments they need.

12/16/2025

Please join us in thanking medi USA - i feel better for their sponsorship support! Together, we are changing the landscape of lymphedema care in the United States, and we will continue to do everything possible to ensure that lymphedema patients have access to the treatments they need.

12/15/2025

This week’s newsletter has important information for patients about a webinar in January, for suppliers about upcoming Medicare audits, as well as additional information for both groups. (https://lymphedemaadvocacygroup.org/?p=13419)

12/12/2025

Please join us in thanking L&R USA INC. for their sponsorship support! Together, we are changing the landscape of lymphedema care in the United States, and we will continue to do everything possible to ensure that lymphedema patients have access to the treatments they need.

12/11/2025

Please join us in thanking JOBST USA for their sponsorship support! Together, we are changing the landscape of lymphedema care in the United States, and we will continue to do everything possible to ensure that lymphedema patients have access to the treatments they need.

12/10/2025

Please join us in thanking ImpediMed for their sponsorship support! Together, we are changing the landscape of lymphedema care in the United States, and we will continue to do everything possible to ensure that lymphedema patients have access to the treatments they need.