Lymphedema Advocacy Group / Lymphedema Treatment Act

09/04/2025

We now have over 250 stores listed in our new Lymphedema Supplier Directory! (https://lymphedemaproject.org/find-a-supplier/) Please check to see if your supplier is listed, and if they aren't, ask them to join by sharing a link to our Supplier Directory page, printing and bringing them a copy of this flyer. (https://lymphedemaadvocacygroup.org/wp-content/uploads/2025/09/Supplier-Directory-Handout.pdf) All suppliers must add themselves.

09/02/2025

If you are attending this conference, stop by our table in the exhibit hall!

GPS on, minds open—Nashville is calling! 🚗 Here’s why this in-person conference is your must-make stop:

🏠 Belmont University = inspiring learning environment
🤝 Meet colleagues, mentors, and new collaborators
📚 Brush up on the latest from our sponsor exhibits
🚪 Saturday-only ticket available for those short on time

No detours—just progress.

🔗 Learn more and register now: https://bit.ly/4lWIc6U

08/28/2025

To help patients make more informed choices when they select their health insurance plans, please complete our 2025 Lymphedema Treatment Coverage Survey (https://www.surveymonkey.com/r/coverage2025).

This survey takes less than 5 minutes and will be open until the end of September. Results will be analyzed in October and published in November, just in time to assist patients in choosing their plans for the upcoming open enrollment period.

While coverage can change from year to year, a policy's current benefits are often a good indicator of future coverage. Comparing coverage across many plans can highlight which insurers have better or worse coverage overall for lymphedema treatment supplies.

Please share the survey with other patients you know. The more responses we receive, the more valuable the results will be for everyone.

Parents, caregivers, and therapists may complete the survey on behalf of a patient unable to respond on their own, but please only submit one response per patient.

Your participation will help us continue to improve access to care for all Americans with lymphedema. Thank you!

Please take this 5-minute survey, which will be open until the end of September. Results will be analyzed in October and published in November, just in time to assist patients in choosing their plans for the upcoming open enrollment period.

08/21/2025

We’ve recently updated our Patient, Provider, and Supplier handouts. All three answer commonly asked questions about insurance coverage for compression supplies and provide the most necessary information for each group. These handouts and other items are available through our Educational Materials page (https://lymphedemaproject.org/educational-materials-handouts/).

07/30/2025

We are thrilled to announce that we have launched our new Lymphedema Supplier Directory! (https://lymphedemaproject.org/find-a-supplier/)

Now, we need your help to grow this FREE resource!

If you are a supplier, please click in the upper right corner of the Lymphedema Supplier Directory page to register your business(es).

If you are a patient, clinician, or caregiver, please share our Lymphedema Supplier Directory page with any applicable business and encourage them to register.

There is no membership fee or cost for businesses to be included, or for patients to access the information in the directory. And, it’s more than just a list of businesses!

Our goal is to provide a centralized resource that helps people find supplier options, understand how they differ, and make informed choices based on their individual needs and insurance coverage.

We’re thrilled to offer this important new resource to the lymphedema community—and we look forward to working with you to make it a success!

Lymphedema Supplier Directory After entering your location search criteria, click on a business name to view detailed information about each supplier, inclu ...

07/23/2025

A new article, written by the editor of Rehabilitation Oncology, recognizes our work in passing the Lymphedema Treatment Act

An abstract is unavailable.

07/11/2025

If you have been denied coverage by a Medicare Advantage plan managed by United Healthcare (UHC), we need to hear from you!

We are currently in contact with UHC about their compliance with the new Medicare coverage for lymphedema compression garments, and they have asked us to provide detailed examples of any inappropriate denials.

Please use our Denial Reporting Form (https://www.surveymonkey.com/r/denial-form) to share this information with us.

We encourage anyone with any insurance plan to use this form, but right now we especially need to hear from United Healthcare Medicare Advantage policyholders who have been denied coverage for their compression garments.

Take this survey powered by surveymonkey.com. Create your own surveys for free.

07/07/2025

We’ve spent the last couple of months gathering information about the current state of fee-for-service Medicaid coverage for compression garments. Please see this week’s newsletter for details. (https://lymphedemaadvocacygroup.org/nationwide-medicaid-coverage-update/)

We've spent the last couple of months gathering information about the current state of fee-for-service Medicaid coverage for compression garments. The ...

06/07/2025

The first clinical trial to investigate the potential use of GLP-1 receptor agonists in the treatment of lymphedema is now enrolling patients!

Additional details can be read in this Press Release (https://www.prweb.com/releases/institute-for-advanced-reconstruction-announces-first-of-its-kind-prospective-study-of-glp-1-receptor-agonists-for-lymphedema-treatment-302442244.).

For more information about the study or to inquire about participation, please email lymphstudy@arsahealth.com or contact Giana Truax at 866-266-2577 ext. 1860.

With regard to potential future insurance coverage, before any advocacy for that could occur, it must first be proven as a safe and effective treatment for lymphedema, so this study is an important step in that direction.

We do not have any other information beyond what is provided here, so please use the email address or phone number above to direct any questions to the study organizers. To receive information like this by email, please subscribe to our newsletter at https://lymphedemaadvocacygroup.org/subscribe-to-our-newsletter/.

05/29/2025

We want to hear from you - what is your insurance covering or not covering? For links to report what you are receiving coverage for and/or what you are being denied or receiving insufficient coverage for, please visit our website at

As part of our ongoing commitment to improving access to care, we need to hear from you! It's important that we know which plans are already following ...

05/16/2025

We are so proud of our board member, Naydza Muhammad, for receiving a Service Commendation from the American Occupational Therapy Association for her work as a lymphedema policy advisor!

05/15/2025

We are thrilled to announce that Heather Ferguson, our Founder and Executive Director, will be one of the keynote speakers at the 12th International Lymphoedema Framework Conference, taking place October 23rd-25th in Niagara Falls, Canada!

The conference organizers are also generously offering a $55 discount on registration for our members!

Simply follow the instructions below, and note that there are different registration options and costs for patients and professionals. For the patient portion of the conference, the scientific committee is developing program content specifically for both lymphedema and lipedema.

• Follow this link to register: www.ILF2025.com (http://www.ilf2025.com/)

• Choose “Register Your Attendance,” and select your registration type (Professional or Patient).

• Notice on the right-hand side of your screen, the full, regular registration rate will be displayed, along with a “Coupon Code” field.

• Enter the coupon code: LAG2025 and click “Apply.”

• Complete the registration information and submit.

• Your final prompt will be a “Pay Now” button, and notice the amount to pay is reduced to the previous Early Bird rate, to reflect the $55 discount.