HD Reach

05/07/2026

Brandalin chats about her experience with her mother's personality changes due to . She reflects, reminisces, acknowledges feelings of guilt, and chats openly with viewers.
Did you miss the stream? View the entire stream here:

https://www.facebook.com/share/v/1B6piV8wkW/?mibextid=wwXIfr

Can you resonate with her words?

05/07/2026

Use our link to update your profile picture for the month of May! https://www.twibbonize.com/hdreach

05/07/2026

Hang with us as Brandalin and Brandon talk HD, answer questions from the chat, and travel through The Oregon Trail! Come hang!

05/06/2026

We are grateful to announce all of these incredible humans from the community coming forward to talk about their HD stories in our Series!

They will join our streamers over a game of choice and chat about their experiences, their hopes, their journeys, and show the many faces of Huntington’s disease.

Tune into our HDReachGameOverHD Twitch or Youtube channels to view at https://linktr.ee/hdreachgameoverhd.

Twitch is the most active chat so make sure to make an account and follow us to interact with our StoryTime guests and streamers!

Huntington's disease is a neurological degenerative disease deteoriating the brain and mind, mood, and movement of an individual. It is genetic, with a 50% chance of inheriting from a biological parent. THERE IS NO CURE.

Highlighting stories is how we spread awareness of the complexities of HD and how YOU can be apart of our mission to spread the word that Huntington's disease has many faces. We are friends, neighbors, family, professionals and it does not hurt to add a little gameplay with some incredible conversations! Make sure to follow along on our socials, catch our livestreams, and share our videos to spread awareness not just within the month of May, but beyond.

We are so grateful you are here and hope you follow along and join in on our streams to show love and ask questions with our guests and streamers!

05/06/2026

THIS SATURDAY!!!! HD Reach is a featured non-profit for the 2026 Bloom & Zoom Charity Race Festival hosted by Fit & Able Productions on May 9th, 2026 in Cary, NC! 🎉
**You MUST use our unique link to register! PRICE INCREASE TOMORROW May 7th**
https://bit.ly/bzhdreach26

Whether you're a runner, or a walker, choose from the 1-mile fun walk, 5K, or 8K race options.
There are in-person and virtual race options.💙


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05/06/2026

This Huntington's Disease Awareness Month, we’re honored to highlight a powerful moment of recognition! Susan Cosby, a dedicated Family Advisory Board member and meetup facilitator, stands alongside Mayor Bill Saffo as the City of Wilmington, NC officially recognizes May as Huntington’s Disease Awareness Month.

Join us in celebrating and spreading awareness.
https://www.hdreach.org/getinvolved/awareness26.html
https://www.youtube.com/watch?v=JqYseUh5MTs

This Huntington's Disease Awareness Month, we’re honored to highlight a powerful moment of recognition 💙In this video, Susan Cosby, a dedicated Family Advis...

05/06/2026

Are you thinking about genetic testing for HD but aren't sure where to start? Join our open chat room alongside HD Genetics. No need to sign up, just click the link to join during our meeting time, 12:30pm - 1pm ET. We are here to guide you and support you! 💙 🧬
Doxy.me/HDgenetics

05/05/2026

We are excited to announce our next book, “The Unexpected Journey.” Join us on TONIGHT as we discuss the first half.

Bruce Willis’ wife Emma has written the book she wishes she’d been handed on the day of Bruce’s diagnosis: a supportive guide to navigating the complicated, heartbreaking, and transformative experience that is caregiving for your loved one. Weaving her personal journey as a care partner with the latest research and insights from the world’s top dementia, caregiving, and integrative experts she offers the guidance and wisdom caregivers everywhere so desperately need to hear, including:

A diagnosis isn’t just a label, it’s a starting point. It helps you better understand your person’s behavior and respond with more clarity and compassion.
Taking care of yourself is not optional; it's mandatory. It will make you a better care partner. It’s not selfish, it’s self-preserving.
You don’t have a choice about being on the dementia caregiving journey. But you do have a choice in terms of how you approach it and reframe it.
Caregivers are human so you aren’t always going to be patient and selfless. You have challenges and struggle with conflicting emotions and that’s okay.

📚📚📚 Any questions please reach out to Erika at eboulavsky@hdreach.org https://www.hdreach.org/community/events/bookclub.html

05/04/2026

Join us for our in person events and virtual events for the month of May for HD Awareness Month! Our Bloom and Zoom event is right around the corner and registration is STILL OPEN! We can't wait to see you there. 💙 For more information, checkout https://www.hdreach.org/community/events/

05/03/2026

THIS WEEK!!!! HD Reach is a featured non-profit for the 2026 Bloom & Zoom Charity Race Festival hosted by Fit & Able Productions on May 9th, 2026 in Cary, NC! 🎉
**You MUST use our unique link to register! Prices increase May 7th**
https://bit.ly/bzhdreach26

Whether you're a runner, or a walker, this event has something for everyone! Choose from the 1-mile fun walk, 5K, or 8K race options.
There are in-person and virtual race options, so whether you're near or far, you and your friends and family can participate and support our programs and activities. 💙

We’d love for our HD Reach members and supporters to join us on race day—let’s make it a memorable event together!


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