HD Reach

01/30/2026

Registration is now open! Education Day 2026 will be held April 17–18 at The Kirk of Kildaire in Cary, NC. This year’s theme, Bridging Connections, focuses on bringing our community together through learning, collaboration, and shared experiences. Have ideas or questions for this year’s event? Your input will help make Education Day 2026 amazing. Don’t miss out!

Learn more:
https://www.hdreach.org/conference/2026.html

01/29/2026

Living with or caring for someone with can at times feel isolating and overwhelming. But you are not alone—there’s hope in community.

Actor and comedian Will Forte is partnering with Honestly HD to share his family's HD Story of Hope. Together with his brother-in-law, Doug, who lives with HD, they share their first-hand experience with HD -- the challenges, its profound impact, and ultimately their closer family bond due to the condition.

Watch their powerful story on honestlyhd.com/stories-of-hope – a hub for information, inspiration and tools to help with HD, including chorea, one of the most visible and treatable symptoms of HD.

01/28/2026

NEXT WEEK: Join us as we finish up, "The Other Dr. Gilmer." We are delighted to have the author, Dr. Benjamin Gilmer, join our call! If you've read the book on your own and would like to join to chat with the author, we would love to have you.

📚📚📚 Any questions please reach out to Erika at eboulavsky@hdreach.org https://www.hdreach.org/community/events/bookclub.html

01/26/2026

RDU: We hope you all are staying safe in this winter storm! As a precaution, we will be cancelling this week's meetup at the Boot Room. Be sure to check out our other events and we hope to see you next month! https://www.hdreach.org/community/events/ 💙💜

01/23/2026

Yesterday, HD Reach joined Huntington's Disease Society of America, HDYO, Help 4 HD, and the Huntington's Disease Foundation to deliver two Change.org petitions to the FDA on behalf of the Huntington’s disease community.

Nearly 48,000 Americans signed on to urge the FDA to honor the previously agreed upon accelerated approval pathway and expedite the review of uniQure’s AMT-130, a first of its kind, HD specific, disease modifying treatment.

Our community is calling for transparency in the FDA’s review process and timely access to potential treatments for those living with and at risk for Huntington’s disease, even when risks exist.
This is just one step. We will continue raising awareness and pushing on social media to keep the momentum going.

01/22/2026

01/22/2026

HD Reach is a featured non-profit for the 2026 Bloom & Zoom Charity Race Festival hosted by Fit & Able Productions on May 9th, 2026 in Cary, NC! 🎉
**You MUST use our unique link to register! Prices increase March 14th**
https://bit.ly/bzhdreach26

Whether you're a runner, or a walker, this event has something for everyone! Choose from the 1-mile fun walk, 5K, or 8K race options.
There are in-person and virtual race options, so whether you're near or far, you and your friends and family can participate and support our programs and activities. 💙

We’d love for our HD Reach members and supporters to join us on race day—let’s make it a memorable event together!


💙💜

01/22/2026

On the road with big news ahead 👀 Stay tuned around 1 PM. NC ➡️ VA

01/21/2026

We are so grateful to look back on 2025!

Thank you to the Huntington's disease community, our sponsors, our volunteers, and all who support us in person and virtually. Because of your support, we get to look back with pride and look forward with determination to bring support, care, and connection to the Huntington's disease community.

We are here for YOU!

Check out all that we experienced in 2025! Thank you to the Huntington's disease community, our sponsors, and those who love us enough to devote their time a...

01/21/2026

Raleigh-Durham, we hope to see you next week! Sign up here: https://www.hdreach.org/community/events/ 💙💜