HD Reach

07/29/2025

We can’t wait to see you next week as we finish up our current book, “The Measure.” Haven’t read the book? Join! Already read the book? Join!

📚📚📚 Any questions please reach out to Erika at eboulavsky@hdreach.org https://buff.ly/cYKbVAi

http:eboulavsky@hdreach.org

07/28/2025

HD Research Update: The EMA has rejected pridopidine for HD treatment. While disappointing, it matches trial data. Prilenia plans more studies—research momentum and hope continue in 2025. 💙 Check out HDBuzz for more.

The EMA has rejected pridopidine for HD treatment in Europe. While disappointing, this outcome aligns with the trial data. Prilenia plans further studies, and despite setbacks, HD research in 2025 continues to bring momentum and hope.

07/28/2025

🏌️Want to make a difference while spending a day on the green?
We’re looking for passionate volunteers to support our upcoming Drive Hope Home Golf Tournament — and we’d love to have you join us!

By volunteering, you’re helping us do more than run a successful event. You’re helping HD Reach provide resources, support, and hope to North Carolina families impacted by Huntington’s disease. 💙 Interested? Let us know — we’ll find the perfect spot for you on tournament day! https://docs.google.com/forms/d/e/1FAIpQLScMqjiCsqGX06ap6-05-Z0nTsJwER7a-mNIksD64jX59W_VBA/viewform?usp=sharing&ouid=118422230721060327311

⛳️ Register today so we can reserve some tee time for you! www.hdreachgolf.com

See y’all on the green!! ⛳️🏌️‍♀️🏌️‍♂️

07/25/2025

Greenville NC meetup at 5:30pm tonight! Come hang out!
ECU Monroe Convention
2000 Venture Tower Dr, unit 200, Greenville, NC

We have pizza!

07/25/2025

🛶 We’re looking forward to seeing you tomorrow at the Bear Town Paddle Battles in New Bern! Come race, cheer, and connect — all while supporting families impacted by Huntington’s disease. 💙 Let’s make waves for a great cause!

Walk ins are welcome! https://buff.ly/VVlxPOl

07/24/2025

🏈 Join our Fantasy Football League and raise funds for HD! For just $25, you get to play all season long and connect with some amazing people. Whether you’re an expert, a novice, or genuinely have no idea what you’re doing, we want you to join! We will host a special zoom session for anyone who needs help understanding how to play. League winner gets bragging rights, a trophy, and a $100 e-gift card.
Sign up by entering your name, email, and paying a $25 entry fee! https://www.hdreach.org/community/fantasy-football.html

07/24/2025

GREENVILLE area! We are trying new locations each month to find a good fit for our community, but we need you there! Sign up so we can save you a seat: https://buff.ly/k1Z7o6n 💙💜 Walkins are welcome. For questions, contact Shirley at shirlrn1@gmail.com

07/23/2025

"This wasn’t just a delay in care; it was a delay in dignity."

In a powerful piece featured by HD News, our friend Tanita Allen shares her experience as a Black woman living with Huntington’s disease — from being dismissed and misdiagnosed to advocating for future doctors to listen beyond the textbook.

📣 HD News – a BioNews brand – provides trusted information, news, and connection to empower the Huntington’s disease community and create a space where hope thrives.

Future healthcare providers: your awareness can change lives. Start by listening.

Columnist Tanita Allen shares what she helps medical students understand about the patient's journey, especially patients of color.

07/23/2025

RDU TONIGHT!! There’s delicious food available for purchase, but we will always have the free pizza 🍕. Walk-ins are welcome but please register if you can. If there are no signups, the event will be cancelled. https://buff.ly/14rbnTA 💙💜

07/22/2025

Help. Uplift. Grow. 💙 That’s what we do at HD Reach, and your support makes it possible.

By becoming a HUG monthly donor, you're part of a community committed to easing the burden of Huntington’s disease. Your gift keeps vital services going strong, including:

📞 700+ annual support calls
🧬 Anonymous genetic testing + counseling
🤝 In-person support in 6 NC locations
📰 A newsletter reaching 1,200+ people
🎓 Education for professionals + caregivers

Be the reason someone finds hope.
Join HUG today. 💙 https://www.hdreach.org/donate/monthly-giving.html

07/21/2025

We are 8 weeks out from our annual golf event, Drive Hope Home, scheduled for September 15th at the beautiful 12 Oaks Country Club in Holly Springs, NC.

www.hdreachgolf.com

⛳️ Register today so we can reserve some tee time for you! Lunch is included, along with plenty of snacks and refreshing beverages. Plus plenty of raffle baskets and prizes!

If you know a local business or entity that would be interested in sponsoring this event, please message us!

See y’all on the green!! ⛳️🏌️‍♀️🏌️‍♂️

07/20/2025

LET'S SEE YOUR SWAG! 💙
Show off your HD Reach gear—send us a pic via Messenger! Check out our online store for t-shirts, sweatshirts, and more. Every purchase supports our mission.Thank you for your support! Shop now: https://buff.ly/9m91Xh3