Got Hydrocephalus?

Got Hydrocephalus? Got Hydrocephalus? I do, too.

12/20/2025

I only need SIX more followers to complete this week’s goal!

12/20/2025

゚viralシypシ゚viralシhtag

12/20/2025

She loves to sun bathe and watch the ducks!

12/20/2025

And I am the owner of Got Hydrocephalus? where community is the big picture. is front and center on this page and we are helping each other one person at a time. Information, news and updates on my life with my own Hydrocephalus. Come join us 💙

12/20/2025

12/20/2025

12/20/2025

Want the latest news in hydrocephalus research, education, and community programs? Our newsletter delivers important updates, upcoming events, and meaningful ways to stay involved, right to your inbox!
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12/20/2025

For your this year buy them a gift of advocation! I will share the link under this reel!

12/20/2025

12/20/2025

One thing we all did this year: WE KEPT GOING
I am so proud of all of us!

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My story

I was a premature baby, born at 29 weeks on July 6th, 1996 - my birth date was originally September 17th. My first shunt was put in on August 20th, and I was in the hospital for two months prior. A VP (ventriculoperitoneal) shunt was in place.

There were no problems for sixteen years until October 17th, 2012 during my sophomore year of high school. I started getting bad headaches, neck pain, all along my shunt tract. Pain I had never experienced before in my life. When the pain got so bad, I had had to go to the hospital. Long wait in the ER for scans to be done to determine the other part of my life. I had a full shunt revision.

Shortly after my second surgery, on the day before Thanksgiving 2012, I had my third. On November 21st, CSF (cerebrospinal fluid) was leaking from the incision on my head scar. My fourth revision was on February 3rd, 2013 because of leakage as well.

Again, everything was alright for two years until 2016. My fifth revision was April 19th and sixth was on July 24th.