HDSA-Albany

HDSA-Albany HDSA is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington’s disease and their families.

Huntington's Disease (HD) is a devastating, hereditary, degenerative brain disorder that results in a loss of cognitive, behavioral and physical control, and for which, presently, there is no treatment or cure. HD slowly diminishes the affected individual's ability to walk, think, talk and reason. Symptoms usually appear in an individual between 30 and 50 years of age and progress over a 10 to 25 year period. Eventually, a person with HD becomes totally dependent upon others for his or her care. More than 30,000 people in the United States are currently diagnosed with HD and 200,000 are at-risk.. Each of their siblings and children has a 50 percent risk of developing the disease. Although medications can relieve some symptoms in certain individuals, research has yet to find a means of conquering or even slowing the deadly progression of HD.

Join Us for a Conversation about the uniQure AMT-130 AnnouncementThe recent uniQure news on gene therapy for Huntington’...
10/26/2025

Join Us for a Conversation about the uniQure AMT-130 Announcement
The recent uniQure news on gene therapy for Huntington’s disease has generated excitement and questions across the community.
📅 Thursday, October 30 | 🕑 2:00 PM ET
This event will feature:
🎥 A conversation with Dr. Walid Abi-Saab (uniQure) and Dr. Sarah Tabrizi (UCL)
💬 Followed by Q&A with HDSA's own Dr. Tam Maiuri, MaryAnn Emerick, and Allison Bartlett, Esq.
Register at https://hdsa-org.zoom.us/webinar/register/6917612418591/WN_lsxS7Pq_RFeOaOwyvrNnig to learn what the latest results mean for HD families and what to expect next.

We are excited to announce that a portion of HD Education Day this Saturday, October 25 will now be available virtually!...
10/24/2025

We are excited to announce that a portion of HD Education Day this Saturday, October 25 will now be available virtually! Don't miss our "Latest and Greatest Research Update" by Neurologist Dr. Hanspal who will talk about the new possible gene therapy on the horizon!

Go here to

register: https://heypeers.com//meetings/48882

We are excited to announce that a portion of HD Education Day this Saturday, October 25 will now be available virtually!...
10/23/2025

We are excited to announce that a portion of HD Education Day this Saturday, October 25 will now be available virtually! Don't miss our "Latest and Greatest Research Update" by Neurologist Dr. Hanspal who will talk about the new possible gene therapy on the horizon! Go here to register: https://heypeers.com//meetings/48882

10/23/2025

🌸🌿 Amaryllis season is officially HERE!

With over 20 amazing products to choose from, with vibrant amaryllis varieties and fragrant paperwhites! 🌺 Shop with confidence knowing that FP (FlowerPower) guarantees all products will grow beautifully. 🌼

Don't forget to credit your order to your chapter or affiliate at checkout! Let's bloom together
http://HDSA.fpfundraising.com

Help shape the future of HD care, support, and research.HDSA is planning for the next three years, and your insight can ...
10/17/2025

Help shape the future of HD care, support, and research.

HDSA is planning for the next three years, and your insight can help guide the way.

If HD is part of your story, we’d love to hear from you.

Take our quick survey at: https://fs22.formsite.com/hdsa/olqg4bsvru/index

HDSA is planning the path ahead for the next three years, and your input can help lead the way.If Huntington’s disease t...
10/16/2025

HDSA is planning the path ahead for the next three years, and your input can help lead the way.

If Huntington’s disease touches your life, we’d love to hear your perspective.

Take our quick survey at https://fs22.formsite.com/hdsa/olqg4bsvru/index to help guide HDSA’s work through the year 2028.

Get all the information about our upcoming Education Day!Register here:
10/16/2025

Get all the information about our upcoming Education Day!

Register here:

© 2025 Huntington’s Disease Society of America. All rights reserved. A charitable organization with 501(c)(3) tax-exempt status. EIN: 13-3349872

HDSA is collecting input from the HD community to help guide our work in the next three years.If you’d like to be part o...
10/15/2025

HDSA is collecting input from the HD community to help guide our work in the next three years.
If you’d like to be part of that, take the short survey at the link in our bio.

Take a few moments to complete our survey at: https://fs22.formsite.com/hdsa/olqg4bsvru/index

Address

Castleton-on-Hudson, NY
12033

Opening Hours

Monday 5pm - 7pm
Tuesday 9am - 2pm
Thursday 9am - 2pm
Saturday 11am - 1pm

Telephone

+12122421968

Website

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