HDSA-Albany

HDSA-Albany HDSA is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington’s disease and their families.

Huntington's Disease (HD) is a devastating, hereditary, degenerative brain disorder that results in a loss of cognitive, behavioral and physical control, and for which, presently, there is no treatment or cure. HD slowly diminishes the affected individual's ability to walk, think, talk and reason. Symptoms usually appear in an individual between 30 and 50 years of age and progress over a 10 to 25 year period. Eventually, a person with HD becomes totally dependent upon others for his or her care. More than 30,000 people in the United States are currently diagnosed with HD and 200,000 are at-risk.. Each of their siblings and children has a 50 percent risk of developing the disease. Although medications can relieve some symptoms in certain individuals, research has yet to find a means of conquering or even slowing the deadly progression of HD.

Take Action Now — Stand Up for AMT-130AMT-130, a promising gene therapy for Huntington’s disease, is at risk of not gett...
12/16/2025

Take Action Now — Stand Up for AMT-130

AMT-130, a promising gene therapy for Huntington’s disease, is at risk of not getting a full, fair FDA review. After decades without a treatment that slows or stops HD, families cannot afford delays.

We need your voice!

Ask your Members of Congress to urge the FDA to allow AMT-130 to move forward to a science-driven review.

For people living with HD, every day matters.

Your message right now can help keep hope moving forward.

🔗 hdsa.org/advocacyhome/TakeAction

12/15/2025

The deadline to reserve your order is TODAY, Monday, December 15th!

Place your Amaryllis order today!

With over 20 amazing products to choose from, with vibrant amaryllis varieties and fragrant paperwhites! 🌼 Shop with confidence knowing that FP (FlowerPower) guarantees all products will grow beautifully. 🌺

Remember to credit your order to your chapter or affiliate at checkout!

Give a gift that blooms this season! Click: http://HDSA.fpfundraising.com to learn more.

12/14/2025

The deadline to reserve your order is tomorrow, Monday, December 15th!

Place your Amaryllis order today!

With over 20 amazing products to choose from, with vibrant amaryllis varieties and fragrant paperwhites! 🌼 Shop with confidence knowing that FP (FlowerPower) guarantees all products will grow beautifully. 🌺

Remember to credit your order to your chapter or affiliate at checkout!

Give a gift that blooms this season! Click: http://HDSA.fpfundraising.com to learn more.

12/12/2025

Take Action Now — Stand Up for AMT-130

AMT-130, a promising gene therapy for Huntington’s disease, is at risk of not getting a full, fair FDA review. After decades without a treatment that slows or stops HD, families cannot afford delays.

We need your voice!

Ask your Members of Congress to urge the FDA to allow AMT-130 to move forward to a science-driven review.

For people living with HD, every day matters.

Your message right now can help keep hope moving forward. 💙💜

🔗 hdsa.org/advocacyhome/TakeAction

Spots are filling up for our 4th Annual Driving For Dollars event. Get your squad together to help benefit the HDSA-Alba...
12/12/2025

Spots are filling up for our 4th Annual Driving For Dollars event. Get your squad together to help benefit the HDSA-Albany. We are always advancing & raising awareness about HD. Process from this event will go to HDSA-Albany

Link to register:

https://www.elevateoc.org/drivingforedollars

12/11/2025

Place your Amaryllis order today!

The deadline to reserve your order is next Monday, December 15th!

With over 20 amazing products to choose from, with vibrant amaryllis varieties and fragrant paperwhites! 🌼 Shop with confidence knowing that FP (FlowerPower) guarantees all products will grow beautifully. 🌺

Remember to credit your order to your chapter or affiliate at checkout! Give a gift that blooms this season!

Give a gift that blooms this season! Click: http://HDSA.fpfundraising.com to learn more.

THANK YOU - everyone who has signed and lent their voice to this petition. Reaching 35,000 signatures is a powerful remi...
12/11/2025

THANK YOU - everyone who has signed and lent their voice to this petition. Reaching 35,000 signatures is a powerful reminder of what we can achieve together, standing united. Your support demonstrates the strength, determination, and heart of our HD community.

The petition remains open, pushing forward until the FDA makes its final decision. Our new goal is to reach 50,000verified signatures by January 1. We can get there with your help!

Let’s continue to make a difference—together.

To help us reach even more families, please like and share this post.

HDSA is planning the path ahead for the next three years, and your feedback can help guide the way.If Huntington’s disea...
12/10/2025

HDSA is planning the path ahead for the next three years, and your feedback can help guide the way.

If Huntington’s disease touches your life, we’d love to hear your perspective.

Take the quick survey at: https://fs22.formsite.com/hdsa/olqg4bsvru/index to help guide HDSA’s work through the year 2028.

We’re Going LIVE with HDBuzz! 🎥🔬HD research can be complicated — but getting answers shouldn’t be. Join an open Ask the ...
12/09/2025

We’re Going LIVE with HDBuzz! 🎥🔬

HD research can be complicated — but getting answers shouldn’t be. Join an open Ask the Scientist Anything session where the HDBuzz team breaks down clinical trials, new therapies, and the latest science in real time.

Your questions. Their expertise. No jargon, just clarity. https://hdsa-org.zoom.us/webinar/register/2017652939043/WN_EI8MvkN6RYCUBiB-CrwluQ

Stand Up for AMT-130 — Take Action NowAMT-130, a promising gene therapy for Huntington’s disease, is at risk of not gett...
12/09/2025

Stand Up for AMT-130 — Take Action Now
AMT-130, a promising gene therapy for Huntington’s disease, is at risk of not getting a full, fair FDA review. After decades without a treatment that slows or stops HD, families cannot afford delays.

We need your voice immediately.

Ask your Members of Congress to urge the FDA to allow AMT-130 to move forward to a science-driven review.

For people living with HD, every day matters.

Your message right now can help keep hope moving forward. 💙💜

🔗 hdsa.org/advocacyhome/TakeAction

Address

Castleton-on-Hudson, NY
12033

Opening Hours

Monday 5pm - 7pm
Tuesday 9am - 2pm
Thursday 9am - 2pm
Saturday 11am - 1pm

Telephone

+12122421968

Website

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