A Beautifully Broken Life.

A Beautifully Broken Life. A page about life with a child that is severely disabled.

Headed to federal way for rehab appt.  Waiting for Grandma to meet us.    I heart is full with how much I love this girl...
11/24/2025

Headed to federal way for rehab appt. Waiting for Grandma to meet us. I heart is full with how much I love this girl.

11/20/2025
Ella in her new sweatshirt. Holding her new pumpkin pie chapstick for school. Wearing her home pumpkin pie chapstick.  B...
11/12/2025

Ella in her new sweatshirt. Holding her new pumpkin pie chapstick for school. Wearing her home pumpkin pie chapstick. Being a teenager refusing to open her eyes. You can see the smirk because she knows what she is doing. lol

Damn I love this kid

Princess got another package today with chapstick and a sweatshirt.   She was so happy to open it.
11/12/2025

Princess got another package today with chapstick and a sweatshirt. She was so happy to open it.

The Princess got a couple boxes from amazing today with  several of her fav  chap sticks and few new ones to try.  Thank...
11/09/2025

The Princess got a couple boxes from amazing today with several of her fav chap sticks and few new ones to try. Thank you !!!!!

About a month ago I bought this chapstick for the princess.   We put it on every morning before school.   She will lick ...
11/07/2025

About a month ago I bought this chapstick for the princess. We put it on every morning before school. She will lick her lips and smile when i tell her she smells like pumpkin pie.
Last week i find out when at school they use the Carmex I sent them. When they put it on her she will glare at her para and fown. Apparently she has an opinion on chapstick. I love her her personality and options come out. So I went back to see if I could find the same chapstick. They didn’t have it but have peppermint bake meringue. She decided it was ok and would work. She held onto the new chapstick all the way to school this am and was happy to show the Para.

Ella’s first wheelchair at 11 months old.
11/04/2025

Ella’s first wheelchair at 11 months old.

10/28/2025

Ella’s social security was up for review a few months ago. I missed the call. Called the number back and the extension was wrong. Tried to dial by name. Couldn’t. Called the main line and set up another phone appt for the following Monday when off work. Waited for call never came
Called made an appt for the following Monday when off work. Waited for call never came.
Called and said since I’m not getting the calls I should make an in person appt so made an in person appt. Showed up at my time. Waited an hour to be told they didn’t do reviews at the office but could make me a phone appt for Monday.
Waited yesterday for my call. No call. Called the main line and was told they had tried to call me and now he would have somebody get back to me within 72hrs about the review.
Ella’s social security was cut off because of all of this.

It’s never just simple.

10/14/2025

Being a single special needs mom is terrifying.

What if something happens to my baby?
What if something happens and she ends up in the hospital and I can’t go to work?
What if I have nobody to watch her to go to work?
How to I keep supporting me and her pay check to pay check?
What if something happens to my van and my family can’t help?
What do I do with a dog when we go to the hospital?

These and a billion other questions are running through my mind at 430am this morning

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Centralia, WA

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